Posts - My Ovacome | HealthUnlocked

My Ovacome

17,746 members • 19,983 posts

All posts for March 2021

Groin pains

Hello I am 7.5 yrs since my diagnosis and was cured with surgery but of late I have been experiencing groin pains both sides. My mind is doing overtime and Im...

Hello I am 7.5 yrs since my diagnosis and was cured with surgery but of late I h...

Cwmbran1

•3 years ago

12 Replies

Survey for patients living in or attending hospitals in Somerset, Wiltshire, Avon and Gloucestershire

Hello This piece of research is being undertaken in Somerset, Wiltshire, Avon and Gloucestershire to understand more about the experience of ovarian cancer...

Hello This piece of research is being undertaken in Somerset, Wiltshire, Avon an...

OvacomeSupport

Partner•3 years ago

3 Replies

Can anyone feedback information on the DICE trial please?

Last week I was given to understand that my CT scan showed overall stable disease. I had been expecting something worse as I have had increased symptoms. My...

Last week I was given to understand that my CT scan showed overall stable diseas...

Cheryl4677

•3 years ago

15 Replies

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Covid jab response

On the news this morning that cancer patients have a lower response to the covid jab. Something else to worry about

On the news this morning that cancer patients have a lower response to the covid...

rosebine

•3 years ago

8 Replies

Jumping through Hope

We are all familiar with the circus act where an animal, usually a small dog, is trained to jump through hoops held by the circus master. The hoops vary in...

We are all familiar with the circus act where an animal, usually a small dog, is...

SophiaMariaA

•3 years ago

22 Replies

Health in Focus: Ovarian Cancer Awareness Month - Survivors Teaching Students

Hello everyone As March is Ovarian Cancer Awareness Month in the UK, in this month’s Health in Focus posts we’re exploring some of the approaches to raising...

Hello everyone As March is Ovarian Cancer Awareness Month in the UK, in this mon...

OvacomeSupport

Partner•3 years ago

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Has anyone tried the honey LifeMel whilst going through chemo?

I am newly diagnosed and finding myself in a whirlwind of fear, trying to find knowledge and general panic. I have heard of this honey and hear it can be...

I am newly diagnosed and finding myself in a whirlwind of fear, trying to find k...

TR77

•3 years ago

3 Replies

Can anyone offer a friendly listening ear?

Hello Can anyone help relieve my anxiety on a new diagnosis? How do you navigate through this without constant fear?

Hello Can anyone help relieve my anxiety on a new diagnosis? How do you navigat...

TR77

•3 years ago

32 Replies

Anyone had decent remission WITHOUT maintenance therapy after 1st line treatment for Stage 4 OC?

Have any Stage 4 OC patients gone into a long/decent remission after 1st line chemo (& surgery) only? I mean WITHOUT maintenance therapy (Avastin/Niraparib...

Have any Stage 4 OC patients gone into a long/decent remission after 1st line ch...

Ella1717

•3 years ago

46 Replies

Latest update

Hi Ladies Meeting with consultant gave the news I was dreading. Weekly Taxol had not worked and the scan showed slow progression of cancer. No more chemo...

Hi Ladies Meeting with consultant gave the news I was dreading. Weekly Taxol had...

Hidden

•3 years ago

41 Replies

After surgery

Still waitin g to see if I am actually going to be fit to have surgery. The surgeon told me that he would be removing my omentum with everything else. Ive...

Still waitin g to see if I am actually going to be fit to have surgery. The sur...

rosebine

•3 years ago

35 Replies

Online groups, talks and workshops with Ovacome this week

Hello All This is to let you know about the Ovacome online events taking place this week. London ovarian cancer support group - Monday 8 March, 3.30-5pm...

Hello All This is to let you know about the Ovacome online events taking place t...

OvacomeSupport

Partner•3 years ago

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Niraparib

Hello everyone...Does anyone here have experience with being on Niraparib and Rampiril (blood pressure meds). I am only on the start of my third month of the...

Hello everyone...Does anyone here have experience with being on Niraparib and Ra...

Roszi

•3 years ago

4 Replies

International Women’s day.

On International Women’s day just want to send best wishes to all the amazing women in this community. Your understanding and caring, alongside your...

On International Women’s day just want to send best wishes to all the amazing wo...

Litchick

•3 years ago

3 Replies

Feeling blessed

4 years on from diagnosis, CA125 Steady at 10. No recurrence as yet! Don’t post much but do read posts at least twice a week. Don’t recognise many from when I...

4 years on from diagnosis, CA125 Steady at 10. No recurrence as yet! Don’t post ...

March2017

•3 years ago

31 Replies

I’m going to be on avastin only, 3 weekly cycle soon. Just wondering what if any side effects anyone has had?

Avastin, side effects

Artyrose

•3 years ago

13 Replies

Sick 2 weeks after surgery

Hi everyone My mum had her surgery 2 weeks on Tuesday and last night started with stomach cramps and being sick. Did anyone else get this? She thinks she may...

Hi everyone My mum had her surgery 2 weeks on Tuesday and last night started wi...

Beverleyt

•3 years ago

5 Replies

Avastin sinuses

I’ve been on three-weekly Avastin since April/May last year, and am mostly doing really well. But in addition to achy feet and ankles, I have a constant runny...

I’ve been on three-weekly Avastin since April/May last year, and am mostly doing...

RainbowC

•3 years ago

6 Replies

Moving

Good morning ladies, I hope that you are all keeping reasonably well. We are considering a move to Cheltenham,as my daughter lives there. Is there anyone here...

Good morning ladies, I hope that you are all keeping reasonably well. We are con...

Caleda4

•3 years ago

4 Replies

Olaparib

Is Niraparib the same as Olaparib (Lynparza) one is a brand name. This is an AstraZeneca made drug??? I am on Olaparib. It sounds very much the same as my...

Is Niraparib the same as Olaparib (Lynparza) one is a brand name. This is an Ast...

1032

•3 years ago

6 Replies

Wales online social group

Hello All This is to let you know about a social group for those of you in Wales with an ovarian cancer diagnosis. It runs on the last Saturday of the month at...

Hello All This is to let you know about a social group for those of you in Wales...

OvacomeSupport

Partner•3 years ago

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Planning a Devon support group

Hello All One of our members is looking at setting up an ovarian cancer support group in Devon and would like to hear from those of you in the area if you are...

Hello All One of our members is looking at setting up an ovarian cancer support ...

OvacomeSupport

Partner•3 years ago

Rucaparib (again!)

I have written previously about starting Rubraca, and now want to know how long it as before the side effects started. I have been On it a week now, and so far...

I have written previously about starting Rubraca, and now want to know how long ...

27-359

•3 years ago

10 Replies

late-diagnoses

interested-to-see-how-many-of-us-have-been-diagnosed-late.-not-sure-where-to-go-for-statistics.--will-awareness-month-make-a-difference.--mad-that-testicular-ca

interested-to-see-how-many-of-us-have-been-diagnosed-late.-not-sure-where-to-go-...

candyapplegrey

•3 years ago

21 Replies

Health in Focus: Ovarian Cancer Awareness Month

Hello All As March is Ovarian Cancer Awareness Month in the UK, in this month’s Health in Focus posts we’re going to explore some of the approaches to raising...

Hello All As March is Ovarian Cancer Awareness Month in the UK, in this month’s ...

OvacomeSupport

Partner•3 years ago

Be the first to reply

CA-125 rising on Olaparib

My mom had surgery/HIPEC in July 2020. Her latest CA125 result has come at 1500. She started 300 mg Olaparib/day 3 weeks back but not seeing any impact at...

My mom had surgery/HIPEC in July 2020. Her latest CA125 result has come at 1500....

msuspartan

•3 years ago

5 Replies

ladies can any of ye share your wisdom with me on how ye kept your bowels moving i am using dulcolax but know have horrendous trapped wind

Keeping me awake all night

Clifden1

•3 years ago

29 Replies

Surgery possibly going ahead,

Seen surgeon today, he's willing to operate if anaesthetist is happy that Im fit enough. Been through 12 cycles of chemo in two lots, told inoperable...

Seen surgeon today, he's willing to operate if anaesthetist is happy that Im fit...

rosebine

•3 years ago

13 Replies

Side effects of Covid vaccine

I had my covid vaccine late January and since then my stomach has really been playing up. I have had stomach pains, it has been really gurgling loud and I...

I had my covid vaccine late January and since then my stomach has really been pl...

Lesinbeds

•3 years ago

19 Replies

Are you living with stage 3 or 4 ovarian cancer? If so we’d like to hear from you.

Are you living with advanced ovarian cancer (stage 3 or 4)? If so we’d like to hear from you. The information you provide will help us gain insight into the...

Are you living with advanced ovarian cancer (stage 3 or 4)? If so we’d like to h...

TheOvacomeTeam

Partner•3 years ago

2 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for March 2021

Groin pains

Survey for patients living in or attending hospitals in Somerset, Wiltshire, Avon and Gloucestershire

Can anyone feedback information on the DICE trial please?

Covid jab response

Jumping through Hope

Health in Focus: Ovarian Cancer Awareness Month - Survivors Teaching Students

Has anyone tried the honey LifeMel whilst going through chemo?

Can anyone offer a friendly listening ear?

Anyone had decent remission WITHOUT maintenance therapy after 1st line treatment for Stage 4 OC?

Latest update

After surgery

Online groups, talks and workshops with Ovacome this week

Niraparib

International Women’s day.

Feeling blessed

I’m going to be on avastin only, 3 weekly cycle soon. Just wondering what if any side effects anyone has had?

Sick 2 weeks after surgery

Avastin sinuses

Moving

Olaparib

Wales online social group

Planning a Devon support group

Rucaparib (again!)

late-diagnoses

Health in Focus: Ovarian Cancer Awareness Month

CA-125 rising on Olaparib

ladies can any of ye share your wisdom with me on how ye kept your bowels moving i am using dulcolax but know have horrendous trapped wind

Surgery possibly going ahead,

Side effects of Covid vaccine

Are you living with stage 3 or 4 ovarian cancer? If so we’d like to hear from you.

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Which of these have you found helpful or would have liked to have been offered as part of your ovarian cancer care? (Please comment below)

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