Posts - My Ovacome | HealthUnlocked

My Ovacome

17,746 members • 19,983 posts

All posts for November 2020

Survey: experiences of paracentesis (drainage of ascites)

Hello We posted last month about a survey into experiences of paracentesis. Thank you to everyone who has responded so far! Ovacome are working with Dr...

Hello We posted last month about a survey into experiences of paracentesis. Tha...

OvacomeSupport

Partner•3 years ago

2 Replies

Christmas cards and baubles supporting Ovacome available now

Hello, everyone The Ovacome Christmas cards are flying off the shelves this year! Order yours now before they’re gone... We also have a range of greeting cards...

Hello, everyone The Ovacome Christmas cards are flying off the shelves this year...

TheOvacomeTeam

Partner•3 years ago

2 Replies

In focus: Hereditary ovarian cancer - BRCA

Hello, everyone This month in our ‘Health in Focus’ posts, we’re looking at hereditary risks for ovarian cancer and genetic testing. We’re often asked about...

Hello, everyone This month in our ‘Health in Focus’ posts, we’re looking at here...

OvacomeSupport

Partner•3 years ago

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Olaparib / Lynparza help for PPC

Hi 🙋🏽‍♀️ Does anybody on here take olaparib as a maintenance for PPC? My mums about 2-3 months in, after finishing 6 rounds of chemo and debulking surgery....

Hi 🙋🏽‍♀️ Does anybody on here take olaparib as a maintenance for PPC? My mums ...

Amiieb

•3 years ago

7 Replies

Avastin belching!

Hello I'm first time posting Q's but have gained so much support and information from this site over the past few months ( often in the early hours) My wife...

Hello I'm first time posting Q's but have gained so much support and informati...

Cardiff05

•3 years ago

6 Replies

Empathy on abdominal pain

I can't help Rose except empathise. I have severe upper right hand side abdominal pain. Had it for three weeks hospice keep increasing the pain killers but...

I can't help Rose except empathise. I have severe upper right hand side abdomina...

Iwillbeatit

•3 years ago

2 Replies

Access to Webinars.

Hi I week or so ago someone replied to a post and included a link to a webinar about different treatments available for ovarian cancer. I started to watch it...

Hi I week or so ago someone replied to a post and included a link to a webinar a...

Jacky5

•3 years ago

6 Replies

More chemo but a different one !!

Good evening everyone, I’ve stage 4 ovarian cancer ,diagnosed in January 2019 I’ve had 6 rounds of chemo, surgery then 3 more rounds of chemo then 18 ‘ Bevs’...

Good evening everyone, I’ve stage 4 ovarian cancer ,diagnosed in January 2019 ...

W6W3

•3 years ago

4 Replies

Birthday greeting

Hi Cheryl, just want to wish you a happy birthday today. November 16 is your special day. We are the November Gals with birthdays in the November Gales!...

Hi Cheryl, just want to wish you a happy birthday today. November 16 is your spe...

Pianoplayer731021

•3 years ago

4 Replies

Hartmann’s reversal?

Has anyone had a Hartmann’s reversal at all and how did they find it? I would like my stoma reversed in around ten months, all being well. Thank you Denise

Has anyone had a Hartmann’s reversal at all and how did they find it? I would li...

Frenchhouse3

•3 years ago

10 Replies

Carbo/caylex

Bloods and face to face with doctor today, all good ca125 down to 35,kidney pain all gone, tumours shrinking, so 4th chemo goes ahead today 😁😁😁😁

Bloods and face to face with doctor today, all good ca125 down to 35,kidney pain...

patricia54053

•3 years ago

21 Replies

Online talks, workshops and groups with Ovacome this week

Hello This is to let you know about the online events on our programme this week. Gentle home exercise class - Tuesday 17 November, 2-2.45pm...

Hello This is to let you know about the online events on our programme this week...

OvacomeSupport

Partner•3 years ago

Be the first to reply

Rubraca feeling not too good

Just s quick update. Been taking Rubraca full 1200mg doseage since Wednesday. This morning took my meds at 8.00, am was not feeling too good. 9.00am being...

Just s quick update. Been taking Rubraca full 1200mg doseage since Wednesday. Th...

win_56

•3 years ago

17 Replies

Reccurence PPC - How to know if it's gone?

Hello everyone. Long time follower with a mom diagnosed with PPC in june of 2018. Got her first reccurence of june this year. CT-scan didn' t show anything...

Hello everyone. Long time follower with a mom diagnosed with PPC in june of 201...

KAIM83

•3 years ago

4 Replies

Acid??

Hi has anyone similar experience. I'm 10mon post op from subtotal hysterectomy ovaries and omentum. Have large incisional hernia and suffering with acid,...

Hi has anyone similar experience. I'm 10mon post op from subtotal hysterectomy o...

Jacqui1737

•3 years ago

5 Replies

CART-T and gynecological cancer

Hi Friends, I wanted to ask this... a few weeks ago my doctor told me that in about a year they will have a treatment for gynecological cancer in regard to...

Hi Friends, I wanted to ask this... a few weeks ago my doctor told me that in ab...

carolleigh

•3 years ago

7 Replies

Tamoxifen

Has anyone had tamoxifen as a treatment? Did you have any adverse side effects?

Kempyhillbilly

•3 years ago

5 Replies

Tumour pain

Im panicking a bit, having pain in left side of abdomen for the past few days. Got v large tumour. Its not given me any pain previously except for after 1st...

Im panicking a bit, having pain in left side of abdomen for the past few days. G...

rosebine

•3 years ago

10 Replies

Abraxane

Does anyone know about Abraxane? A friend has moved to this instead of Paclitaxel and apparently it's a much shorter treatment. An hour or half an hour rather...

Does anyone know about Abraxane? A friend has moved to this instead of Paclitaxe...

candyapplegrey

•3 years ago

7 Replies

My wife, Diane.

When Diane was diagnosed in April/May 2005 the CA125 was greater than 20,000 and increased at one point to 140,000. The oncologist said this made no sense but...

When Diane was diagnosed in April/May 2005 the CA125 was greater than 20,000 and...

S1w2e3

•3 years ago

45 Replies

Parp inhibitors

Hi everyone. I have seen posts on here about parp inhibitors but cant find any of them. My consultant is talking about putting me on them when I finish chemo....

Hi everyone. I have seen posts on here about parp inhibitors but cant find any o...

Cazbird

•3 years ago

18 Replies

Rotterdam regimen (Etoposide and Cisplatin)

Hi Ladies, this is my first post and apologies for it’s length! I have stage 4 and BRCA gene diagnosed in Feb 2020 which is inoperable. Had six chemo cycles of...

Hi Ladies, this is my first post and apologies for it’s length! I have stage 4 a...

Villamartin

•3 years ago

4 Replies

Devastated

Hi ladies To say I’m gutted is an understatement 😩 My CA125 is up to 567 so urgent scan tomorrow, ascites drain booked for 23rd November, oncologist...

Hi ladies To say I’m gutted is an understatement 😩 My CA125 is up to 567 so urg...

Broader

•3 years ago

26 Replies

Avastin infusion

Hi beautiful lady’s .I am in Avastin and have throat pain,have blisters on my throat .Its normal?

Hi beautiful lady’s .I am in Avastin and have throat pain,have blisters on my th...

Erebuni

•3 years ago

4 Replies

My ca125 is 195 should I be worried

My ca125 is 195 I have a borderline ovarian. Tumour

WIL3

•3 years ago

2 Replies

In focus: hereditary ovarian cancer - genetic testing

Hello, everyone This month in our ‘Health in Focus’ posts, we’re looking at hereditary risks for ovarian cancer and genetic testing. We’re often asked about...

Hello, everyone This month in our ‘Health in Focus’ posts, we’re looking at here...

OvacomeSupport

Partner•3 years ago

5 Replies

taxol and nail deterioration

Am on weekly taxol and am halfway through. Toenauls disappearing or are rough and brittle and fingernails are moderareky strong but brittle and the white is...

Am on weekly taxol and am halfway through. Toenauls disappearing or are rough an...

Ruebacelle

•3 years ago

9 Replies

Bevacizumab

Hi I've got stage 4 high grade serous ovarian cancer. I have had 4 cycles of carbonation and permission I had a hysterectomy 3weeks ago with my last 2 cycles...

Hi I've got stage 4 high grade serous ovarian cancer. I have had 4 cycles of ca...

Ova-whelmed

•3 years ago

14 Replies

Starting Rubraca tomorrow

Hi all Well finally starting Rubraca tomorrow to keep my cancer stable. To say I'm anxious is an understatement but haven't got much choice. Starting on the...

Hi all Well finally starting Rubraca tomorrow to keep my cancer stable. To say ...

win_56

•3 years ago

23 Replies

Letters to your GP

Havent actually seen a consultant face to face for a year. After every phone consult I get a copy of a letter sent to my GP with results etc, and of course its...

Havent actually seen a consultant face to face for a year. After every phone con...

rosebine

•3 years ago

8 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for November 2020

Survey: experiences of paracentesis (drainage of ascites)

Christmas cards and baubles supporting Ovacome available now

In focus: Hereditary ovarian cancer - BRCA

Olaparib / Lynparza help for PPC

Avastin belching!

Empathy on abdominal pain

Access to Webinars.

More chemo but a different one !!

Birthday greeting

Hartmann’s reversal?

Carbo/caylex

Online talks, workshops and groups with Ovacome this week

Rubraca feeling not too good

Reccurence PPC - How to know if it's gone?

Acid??

CART-T and gynecological cancer

Tamoxifen

Tumour pain

Abraxane

My wife, Diane.

Parp inhibitors

Rotterdam regimen (Etoposide and Cisplatin)

Devastated

Avastin infusion

My ca125 is 195 should I be worried

In focus: hereditary ovarian cancer - genetic testing

taxol and nail deterioration

Bevacizumab

Starting Rubraca tomorrow

Letters to your GP

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