Posts - My Ovacome | HealthUnlocked

My Ovacome

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All posts for October 2020

Survey: experiences of paracentesis (drainage of ascites)

Hello This is to let you know that we're carrying out an anonymous survey for those who have experienced a paracentesis procedure or for relatives of those who...

Hello This is to let you know that we're carrying out an anonymous survey for th...

OvacomeSupport

Partner•4 years ago

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Virtual support from Ovacome and Ovarian Cancer Action this week

Hello This is to let you know about the online events on our programme this week. Gentle home exercise class with Cancer Exercise Specialist Lizzy Davis -...

Hello This is to let you know about the online events on our programme this week...

OvacomeSupport

Partner•4 years ago

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Scan results in

Oncologist rang about my scan results and I felt really upset as was expecting better. After the first three rounds of carbo /caelyx the three lymph nodes near...

Oncologist rang about my scan results and I felt really upset as was expecting b...

win_56

•4 years ago

16 Replies

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After OC sleep problems

Hi Ladies, I know this is probably a trivial problem compared to the situations many of you are going through right now, but you were so lovely when I was in...

Hi Ladies, I know this is probably a trivial problem compared to the situations ...

LittleMissMerit

•4 years ago

10 Replies

Really struggling but no one can help

This is all a big jumble I don’t know where to start My cancer centre is about 2 hours away cause of traffic etc I have 3 local hospitals which are easy to...

This is all a big jumble I don’t know where to start My cancer centre is about ...

CountryChick78

•4 years ago

4 Replies

Osteoarthritis after ovarian cancer chemotherapy

Hi i was wondering if anyone else had been diagnosed with osteoarthritis after having carboplatin and placitaxil combination. I fimished my course 3 months...

Hi i was wondering if anyone else had been diagnosed with osteoarthritis after ...

kadabra12

•4 years ago

20 Replies

In remission for 9 years today!

Just a short good news posting - 9 years ago today I had a TAH, BSO and omentectomy and was subsequently diagnosed with stage 1a seromucinous adenocarcinoma. I...

Just a short good news posting - 9 years ago today I had a TAH, BSO and omentect...

BJ_UK

•4 years ago

22 Replies

CA125 variations

Reading peoples posts its so weird that some people have CA125 numbers in the thousands and some in the hundreds on diagnosis or start of treatment. I started...

Reading peoples posts its so weird that some people have CA125 numbers in the th...

rosebine

•4 years ago

21 Replies

Interesting article in today’s Observer

https://www.theguardian.com/science/2020/oct/17/curing-the-incurable-ovarian-cancer-max-perutz-science-writing-award-2020-winner

https://www.theguardian.com/science/2020/oct/17/curing-the-incurable-ovarian-ca...

citrine

•4 years ago

14 Replies

Re: Lindaura/Laura - Thanks to Ovacome community

Dear All, This was originally in the long thread following my post about my mother's passing, but i wanted to make sure people saw it and read about how...

Dear All, This was originally in the long thread following my post about my moth...

Laurasdaughter

•4 years ago

35 Replies

Mets to adrenal glands, anyone?

Hello All, I had scan results yesterday which weren't great news. My second line treatment of carbo/caelyx has utterly failed and I've had progression whilst...

Hello All, I had scan results yesterday which weren't great news. My second lin...

Gemmyw

•4 years ago

9 Replies

WEEKLY TAXOL UPDATE.

Hi Ladies Started weekly Taxol beginning of September. Side effects not too bad, usual nausea and constipation! CA125 down to 224 from 673 after 2 infusions so...

Hi Ladies Started weekly Taxol beginning of September. Side effects not too bad,...

Hidden

•4 years ago

29 Replies

Research into the psychological impact of COVID-19 on women undergoing treatment for ovarian cancer

Hello, everyone This is to let you know about a research project being undertaken at the University of Nottingham. Here is an outline about the study from the...

Hello, everyone This is to let you know about a research project being undertake...

OvacomeSupport

Partner•4 years ago

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Living with a stoma

Stoma I have been told my debulking surgery I will lose my bowel has any one else going through this and living with a stoma and how bad is it to live with.

Stoma I have been told my debulking surgery I will lose my bowel has any one els...

Stepdancer

•4 years ago

19 Replies

Olaparib submission to NICE

Hello I know that we have previously requested your comments about olaparib and some of you have very helpfully shared your experiences. We are preparing a...

Hello I know that we have previously requested your comments about olaparib and ...

OvacomeSupport

Partner•4 years ago

7 Replies

Help and advice regarding management of surgical menopause at 27 years old?

Hiya, I'm 27 years old, just been diagnosed with early stage uterine cancer and as it's estrogen positive, I will be unable to commence hormone replacement...

Hiya, I'm 27 years old, just been diagnosed with early stage uterine cancer and ...

ayesha4993

•4 years ago

3 Replies

Does Taxol work?

I have been to see my oncologist today to discuss starting Taxol. I was assured this may help hold back my cancer, which is spreading) but I cannot be cured....

I have been to see my oncologist today to discuss starting Taxol. I was assured ...

Gemimablackvelvet

•4 years ago

63 Replies

Nephrostomy woes

Can anyone give me some insight into how they fare with their nephrostomy. I don’t think I have gone one single day since I’ve had it (June) without some sort...

Can anyone give me some insight into how they fare with their nephrostomy. I don...

JustKBO

•4 years ago

7 Replies

Chemo not Working

Hi ladies. I’ve been in chemo hell for the last couple of months. Carbo/Gem has been tough. I’ve not felt at all well since it started. Anyway, my CA 125 is...

Hi ladies. I’ve been in chemo hell for the last couple of months. Carbo/Gem has ...

Lockygill

•4 years ago

21 Replies

Ovarian cancer is scarey but we need to stay positive would love to hear from real people on their own journeys what works and what dosnt

I was diagnosed with stage 3 ovarian cancer in March 2019. Extremely ill with massive ascites. Had 3 rounds of caboplatin & paclotaxile. Surgery then 3 more...

I was diagnosed with stage 3 ovarian cancer in March 2019. Extremely ill with m...

Rudieems

•4 years ago

7 Replies

Lindaura/Laura, 12/12/46 - 12/10/20

Dear all, My incredibly beautiful, vibrant, amazing and brilliant mother passed away at about 22:30 on Monday night, October 12, 2020. Linda (a.k.a. Laura)...

Dear all, My incredibly beautiful, vibrant, amazing and brilliant mother passed...

Laurasdaughter

•4 years ago

104 Replies

Anyone know about pleurodesis please???

Hi has anyone had or experience of mechanical pleurodesis? How was recovery and breathing? Is there ANY way of knowing if its been successful and the lung has...

Hi has anyone had or experience of mechanical pleurodesis? How was recovery and ...

Emma630

•4 years ago

3 Replies

Ovacome webinar 5.30-6.30pm tomorrow on Surgery for ovarian cancer: latest developments

Hello This is to let you know that there are still places available if you'd like to join tomorrow's webinar with Professor Sadaf Ghaem-Maghami, MBBS PhD...

Hello This is to let you know that there are still places available if you'd lik...

OvacomeSupport

Partner•4 years ago

2 Replies

In focus: diet - vegetarianism, veganism and soy

Hello, everyone This month in our ‘Health in Focus’ posts, we’re looking at diet. Often, people diagnosed with cancer make changes to their diet because they...

Hello, everyone This month in our ‘Health in Focus’ posts, we’re looking at diet...

OvacomeSupport

Partner•4 years ago

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Psychological support

My sister diagnosed with Ovarian 3stage cancer...4 chemos and surgery went well.. reports say Ca almost resolved.. She is so focusing on reoccurrence and...

My sister diagnosed with Ovarian 3stage cancer...4 chemos and surgery went well....

Harp-1

•4 years ago

6 Replies

Has anybody been diagnosis recently with mucinous ovarian cancer?

Has anybody been diagnosed recently with muscinous ovarian cancer

11209

•4 years ago

4 Replies

Update on rising ca125.

Well I've just had the dreaded news , the fun times are over , the bugger's back , in my peritoneum and in the remains of my omementem , its been good not...

Well I've just had the dreaded news , the fun times are over , the bugger's back...

fendweller

•4 years ago

53 Replies

Virtual support from Ovacome and Ovarian Cancer Action this week

Hello This is to let you know about the online events on our programme this week. All about PARP inhibitors - Monday 12 October, 6-7pm...

Hello This is to let you know about the online events on our programme this wee...

OvacomeSupport

Partner•4 years ago

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Update early phase trial

Thank you ladies for your kind replies. They certainly helped when I spoke to the team leader at the Churchill last week. They hope that I may be suitable for...

Thank you ladies for your kind replies. They certainly helped when I spoke to th...

Welshandproud

•4 years ago

14 Replies

In focus: diet - introduction

Hello, everyone This month in our ‘Health in Focus’ posts, we’ll be looking at diet. Often, people diagnosed with cancer make changes to their diet because...

Hello, everyone This month in our ‘Health in Focus’ posts, we’ll be looking at d...

OvacomeSupport

Partner•4 years ago

3 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for October 2020

Survey: experiences of paracentesis (drainage of ascites)

Virtual support from Ovacome and Ovarian Cancer Action this week

Scan results in

After OC sleep problems

Really struggling but no one can help

Osteoarthritis after ovarian cancer chemotherapy

In remission for 9 years today!

CA125 variations

Interesting article in today’s Observer

Re: Lindaura/Laura - Thanks to Ovacome community

Mets to adrenal glands, anyone?

WEEKLY TAXOL UPDATE.

Research into the psychological impact of COVID-19 on women undergoing treatment for ovarian cancer

Living with a stoma

Olaparib submission to NICE

Help and advice regarding management of surgical menopause at 27 years old?

Does Taxol work?

Nephrostomy woes

Chemo not Working

Ovarian cancer is scarey but we need to stay positive would love to hear from real people on their own journeys what works and what dosnt

Lindaura/Laura, 12/12/46 - 12/10/20

Anyone know about pleurodesis please???

Ovacome webinar 5.30-6.30pm tomorrow on Surgery for ovarian cancer: latest developments

In focus: diet - vegetarianism, veganism and soy

Psychological support

Has anybody been diagnosis recently with mucinous ovarian cancer?

Update on rising ca125.

Virtual support from Ovacome and Ovarian Cancer Action this week

Update early phase trial

In focus: diet - introduction

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