Posts - My Ovacome | HealthUnlocked

My Ovacome

17,741 members • 19,980 posts

All posts for September 2020

Disappointed

Feeling a bit down from my telephone consultation this afternoon after my second line first cycle of carboplatin/caelyx. Bloods all good and ready for round...

Feeling a bit down from my telephone consultation this afternoon after my secon...

Gardengirl60x

•4 years ago

20 Replies

Avastin with carboplatin.

Hi everyone. I have primary peritoneal cancer high grade serous... Grade 4. I am a young and fit 55 year old. I am post debulking surgery and Dr has now said...

Hi everyone. I have primary peritoneal cancer high grade serous... Grade 4. I am...

pants22

•4 years ago

13 Replies

STILL CLEAR

Good morning all, I thought long and hard about posting my update but decided to go ahead because I know how positive news can be uplifting. I recall a post a...

Good morning all, I thought long and hard about posting my update but decided to...

JayGeeCee

•4 years ago

46 Replies

Want to take advantage of all our features? Just log in!

Mastized to brain

Hi - I was diagnosed with Ovarian cancer in 2018 - this is my 3rd reoccurrence.... it is now in my liver, lungs, and now brain ... anyone else fighting this...

Hi - I was diagnosed with Ovarian cancer in 2018 - this is my 3rd reoccurrence.....

Cebacob

•4 years ago

24 Replies

Solicitation from marrieannshahid

Just received an unsolicited private message from a person or entity identified as mariesnnshajid. It really upset me. 😠This creature is an ambulance chaser...

Just received an unsolicited private message from a person or entity identified ...

Sashay2020

•4 years ago

9 Replies

Alternative to Niraparib

Hi lovely people I am hoping somebody can give me some help. My mum has primary peritoneal cancer it’s treated the same as ovarian she has been on niraparib...

Hi lovely people I am hoping somebody can give me some help. My mum has primary ...

Aliollie

•4 years ago

8 Replies

Has anyone asked their oncologist not to give them a prognosis? I am leery of the statistics and wondering if it would be helpful to hear.

Prognosis question

Teamteal2020

•4 years ago

22 Replies

In focus: targeted therapies - PARP inhibitors

Hello, everyone This month in our Health in Focus series, we’re looking at targeted therapies. Cancer cells behave differently from healthy cells in a number...

Hello, everyone This month in our Health in Focus series, we’re looking at targe...

OvacomeSupport

Partner•4 years ago

12 Replies

Olaparib - its official!

So after joining the double blind trial for Olaparib at the beginning of January 2014 I have today been told the trial has been completed and unblinded and...

So after joining the double blind trial for Olaparib at the beginning of January...

Katmal-UK

•4 years ago

69 Replies

Olaparib

My wife Suzanne last had chemo 3 years ago yesterday (Sept 2017) to deal with her 2nd recurrence. This is now the longest time without chemo since her...

My wife Suzanne last had chemo 3 years ago yesterday (Sept 2017) to deal with he...

WoodyB

•4 years ago

12 Replies

1st chemo

Hi Ladies I am having my 1st chemo today. Feel slightly anxious and trying to stay positive and not think too much about what and how if any side effects I may...

Hi Ladies I am having my 1st chemo today. Feel slightly anxious and trying to st...

Dubai18

•4 years ago

32 Replies

Really upset

Good evening lovely ladies 🌼 I just want to vent a little. I had a bad week last week and my Oncologist decided that I needed a week off chemo. This afternoon...

Good evening lovely ladies 🌼 I just want to vent a little. I had a bad week las...

Welshandproud

•4 years ago

48 Replies

Teal Ladies

May I ask who are the Teal ladies, have seen mention several times but cant find out anything else !

May I ask who are the Teal ladies, have seen mention several times but cant find...

rosebine

•4 years ago

5 Replies

Update on Lumpy 2

Ok, here we go!!!! I'll be doing 25 days of Proton radiation (5 days a weex, 5 weeks) to shrink lumpy and take care of any critters still lurking in the node...

Ok, here we go!!!! I'll be doing 25 days of Proton radiation (5 days a weex, 5 w...

Mommoo65

•4 years ago

12 Replies

New bruise [picture]

Latest clexane bruise ...

candyapplegrey

•4 years ago

3 Replies

Virtual support from Ovacome and Ovarian Cancer Action this week

Hello This is to let you know about the online events on our programme this week. Stoma Group - Tuesday 15 September, 11am-12pm...

Hello This is to let you know about the online events on our programme this week...

OvacomeSupport

Partner•4 years ago

Be the first to reply

Rucaparib

Hi is anyone on Rucaparib.. My oncologist said she is going to put me on this and not Niraparb. I asked het why and she said that I won't have to come on for...

Hi is anyone on Rucaparib.. My oncologist said she is going to put me on this an...

win_56

•4 years ago

26 Replies

Carbo/caelyx chemo pain

Hi, I ve had my second chemo combo as above Saturday was day 6 and I experienced pains in my abdomen. It's gone off now. Has anyone experienced these type of...

Hi, I ve had my second chemo combo as above Saturday was day 6 and I experienced...

Cazbird

•4 years ago

5 Replies

A&E and so on

Dear everyone, Haven't been able to access computer for three days as have been in something they call the Emergency Assessment Unit. On Wednesday night I...

Dear everyone, Haven't been able to access computer for three days as have been...

candyapplegrey

•4 years ago

8 Replies

Etoposide

Hi all, was diagnosed with OC stage 3c jan 2016, after many chemo’s have been told that there is nothing else that can be done to halt the cancer and have been...

Hi all, was diagnosed with OC stage 3c jan 2016, after many chemo’s have been to...

SheilaAD

•4 years ago

5 Replies

Almost certain recurrence

Hi everyone I’ve posted a couple of times over the last couple of months about lung nodules found on my tow lates ct scans. I really appreciated all the advice...

Hi everyone I’ve posted a couple of times over the last couple of months about l...

Fred22

•4 years ago

6 Replies

Lindaura

We haven’t heard from you for a few weeks are you ok Laura?

JustKBO

•4 years ago

9 Replies

Gemzar side effects

My wife at age 65 was diagnosed ovarian 3C, 3 years ago. BRCA negative. Had debulking then several types of chemo. Lost hair. Emotionally hard for her....

My wife at age 65 was diagnosed ovarian 3C, 3 years ago. BRCA negative. Had deb...

tjr24682

•4 years ago

2 Replies

Ordered My Cake!!!!

Well Hello... So Sept 11th is my last Chemo, woot woot. Just ordered my cake which says Congrats Chemo Grad. Know in my heart this is going to be a long road,...

Well Hello... So Sept 11th is my last Chemo, woot woot. Just ordered my cake wh...

PCCDaisy

•4 years ago

12 Replies

Phase one trials

Hi there lovely ladies I'm sorry that I haven't posted for a while but things have been a bit up and down for me lately. I have had 13 of 18 weekly taxol...

Hi there lovely ladies I'm sorry that I haven't posted for a while but things ha...

Welshandproud

•4 years ago

24 Replies

Taxol

Hi Ladies Just a quick catch-up. Unfortunately Caelyx did not work for me. Ended up in hospital with high temps after two out of three infusions. Scan showed...

Hi Ladies Just a quick catch-up. Unfortunately Caelyx did not work for me. Ended...

Hidden

•4 years ago

19 Replies

Avastin infusion

Hi beautiful ladies.Have question.I have red dots in my legs ,like Miskito bits .Is anybody have sid effect from Avastin ? It’s get mor red 2 days,den gone....

Hi beautiful ladies.Have question.I have red dots in my legs ,like Miskito bits ...

Erebuni

•4 years ago

4 Replies

Lymph node removal side effects

Hi ladies, I have just had some lymph nodes removed in my groin as there was a tumour, today i received hospital letter from surgeon listing many unpleasant...

Hi ladies, I have just had some lymph nodes removed in my groin as there was a ...

megb246

•4 years ago

9 Replies

ZenaJ

I'm so sorry to hear that Zena has gained her teal wings. I'm sorry I posted my good news at an inappropriate moment, meaning the two Zena J posts were one...

I'm so sorry to hear that Zena has gained her teal wings. I'm sorry I posted my...

ZenaJ

•4 years ago

16 Replies

What's this book called?

Hello everyone, I am looking for a book written by an American doctor (costing around $17.00) in the book she describes how to combat ovarian cancer through...

Hello everyone, I am looking for a book written by an American doctor (costing a...

Snowleopard62

•4 years ago

3 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for September 2020

Disappointed

Avastin with carboplatin.

STILL CLEAR

Mastized to brain

Solicitation from marrieannshahid

Alternative to Niraparib

Has anyone asked their oncologist not to give them a prognosis? I am leery of the statistics and wondering if it would be helpful to hear.

In focus: targeted therapies - PARP inhibitors

Olaparib - its official!

Olaparib

1st chemo

Really upset

Teal Ladies

Update on Lumpy 2

New bruise [picture]

Virtual support from Ovacome and Ovarian Cancer Action this week

Rucaparib

Carbo/caelyx chemo pain

A&E and so on

Etoposide

Almost certain recurrence

Lindaura

Gemzar side effects

Ordered My Cake!!!!

Phase one trials

Taxol

Avastin infusion

Lymph node removal side effects

ZenaJ

What's this book called?

Search posts

Pinned Posts

Latest poll

Which of these have you found helpful or would have liked to have been offered as part of your ovarian cancer care? (Please comment below)

Topics

Archive