Posts - My Ovacome | HealthUnlocked

My Ovacome

17,707 members • 19,962 posts

All posts for July 2020

Further update on re occurence

Further to my last post. Starting a 4 weekly carbo/caelyx combination on Thursday. Been told I might get to keep my hair this time. Lots of love to everyone...

Further to my last post. Starting a 4 weekly carbo/caelyx combination on Thursda...

Cazbird

•4 years ago

22 Replies

PICC lines

Hi there. Can any of you ladies tell me if you use a pretty cover to conceal you PICC line? Is it ok to cover the dressing or should it be visible at all...

Hi there. Can any of you ladies tell me if you use a pretty cover to conceal you...

BanksiaRose

•4 years ago

11 Replies

Now what do I do?

UPDATE: Today was my follow up with my OB and she said the CT showed nothing. I mentioned to her the bloating and the fact I have gained 8 lbs since we started...

UPDATE: Today was my follow up with my OB and she said the CT showed nothing. I ...

Birdeatcat

•4 years ago

23 Replies

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Platin resistant.

Afternoon Ladies..hope you are all keeping well all things considered 🌸...Second recurrence followed soon after first.. and am now considered as being Platin...

Afternoon Ladies..hope you are all keeping well all things considered 🌸...Secon...

rossnbren

•4 years ago

8 Replies

Immunotherapy

Is immunotherapy worthwhile having for Ovarian/Peritoneal cancer? I have completed 8 rounds of chemo including a year of Avastin. Previously the ca was...

Is immunotherapy worthwhile having for Ovarian/Peritoneal cancer? I have complet...

Jenjill47

•4 years ago

5 Replies

Chance to raise awareness of ovarian cancer by voting for Ovacome member Adele Sewell for a Woman & Home Amazing Women Award by 31 July

Hello This is the last week to vote for one of our members, Adele Sewell, for a Woman & Home Amazing Women Award for her incredible efforts organising the...

Hello This is the last week to vote for one of our members, Adele Sewell, for a...

OvacomeSupport

Partner•4 years ago

4 Replies

Anyone else had such a high ca125 result

My ca125 came back today at 8600. Just wondering if anyone else has had such a high number during paclitaxel treatment ? Thank you in advance 😊

My ca125 came back today at 8600. Just wondering if anyone else has had such a h...

Horsemad50

•4 years ago

19 Replies

Virtual support from Ovacome and Ovarian Cancer Action this week

Hello This is to let you know about the online events on our programme this week. BRCA Circle with Ovarian Cancer Action - Tuesday 28 July 7-8pm...

Hello This is to let you know about the online events on our programme this we...

OvacomeSupport

Partner•4 years ago

Be the first to reply

Hair is back, but too much!

My hair is slowly starting to come back to life after finishing chemo - eyelashes and eyebrows all slowly returning too, so yay! What I cannot say Yay to,...

My hair is slowly starting to come back to life after finishing chemo - eyelashe...

FlowerRose

•4 years ago

28 Replies

Some of you have gone quiet

Laura and Sandra are you OK?

JustKBO

•4 years ago

13 Replies

Intermittent Fasting

I am starting chemo this week, and wondered if anyone has experience of fasting for a few days over this period. I did it last time and believe that it really...

I am starting chemo this week, and wondered if anyone has experience of fasting ...

27-359

•4 years ago

8 Replies

Debulking Update and now will Finish Last Three Rounds

Well Hello..... As of today am on my road to recovery 3.5 week in. For the debulking had my uterus, fallopian and ovaries removed and also my omentum,...

Well Hello..... As of today am on my road to recovery 3.5 week in. For the debu...

PCCDaisy

•4 years ago

14 Replies

Re occurence update

Further to my previous post I found out today that the cancer is back. Caught quite early but I've got to have more chemo Got an appointment with my...

Further to my previous post I found out today that the cancer is back. Caught qu...

Cazbird

•4 years ago

19 Replies

Carbo Gem

Hello ladies, I hope that you are all managing to stay as well as possible. I have had two cycles of Carbo /Gemsar,& my CA 125 has dropped from 485 to 220,...

Hello ladies, I hope that you are all managing to stay as well as possible. I ha...

Caleda4

•4 years ago

11 Replies

No stoma

Hi. First of all I hope you are all feeling well and positive. And to thank you all for the reassurance re the possible stoma. I had my debulking op on...

Hi. First of all I hope you are all feeling well and positive. And to thank you ...

LesleyGB

•4 years ago

3 Replies

Brachytherapy

Hi ladies, have any of you had Brachytherapy? I have my 6th cycle of chemo next week then I will have 3 sessions of Brachytherapy over 8 days as a small tumour...

Hi ladies, have any of you had Brachytherapy? I have my 6th cycle of chemo next ...

Jack1066

•4 years ago

7 Replies

Gnawing pain in stomach

It’s been a month since OC debulking and full hysterectomy. Most of the time I have such a painful gnawing pain in my stomach. Makes it hard to eat. I...

It’s been a month since OC debulking and full hysterectomy. Most of the time I ...

Sashay2020

•4 years ago

8 Replies

Dendritic Cell Therepy

Has anyone had any Dendritic Cell Therapy I have just started second line chemo therapy and wanted to find out what else is available for us as there only...

Has anyone had any Dendritic Cell Therapy I have just started second line chemo ...

Lassie12

•4 years ago

4 Replies

Rechallenging with Parp Inhibitors

Hi This is the first time I've posted on here. I'd just like to know if anyone has been prescribed a parp inhibitor for a second time. I was put on Niraparib...

Hi This is the first time I've posted on here. I'd just like to know if anyone h...

Divine21

•4 years ago

9 Replies

Weight loss

Hi lovely girls. I start my Avastin in January.Lost 10 pounds .Anybody have experience like this?.When I had chemo I gain now I lost. Thanks and have a nice...

Hi lovely girls. I start my Avastin in January.Lost 10 pounds .Anybody have expe...

Erebuni

•4 years ago

11 Replies

Summer Socials with Ovacome and Ovarian Cancer Action

Hello All This summer, as part of our joint Staying Connected programme with Ovarian Cancer Action, we'd like to run some "Summer Socials". These virtual...

Hello All This summer, as part of our joint Staying Connected programme with Ova...

OvacomeSupport

Partner•4 years ago

Be the first to reply

Caelyx

Hi All. I am just about to start Carly's, and am asking for recommendations for things you found helpful. I have ordered some Cowgoo moisturiser and am going...

Hi All. I am just about to start Carly's, and am asking for recommendations for ...

27-359

•4 years ago

29 Replies

Can a CT miss early stage ovarian cancer?

Just curious if an ER visit CT scan can miss ovarian cancer.

16hands

•4 years ago

13 Replies

Avast is and hair loss

Does Avastin cause hair loss? Thanks for letting me know

Supermary

•4 years ago

8 Replies

Skin metastasis? UPDATE

So, GP and CT scan confirm that the skin nodule at laparoscopy port site is metastasis and with other ‘small changes’ my oncologist has given me the option of...

So, GP and CT scan confirm that the skin nodule at laparoscopy port site is meta...

BanksiaRose

•4 years ago

10 Replies

Ovacome member Adele Sewell nominated for a Woman & Home Amazing Women Award

Hello We posted recently about the nomination of one of our members, Adele Sewell, for a Woman & Home Amazing Women Award for her incredible efforts organising...

Hello We posted recently about the nomination of one of our members, Adele Sewel...

OvacomeSupport

Partner•4 years ago

1 Reply

Super clumsy

Is it only me that finds the doors, particularly handles and things leap out and bruise. I am on dexamethasone every three days so prone to bruises anyway but...

Is it only me that finds the doors, particularly handles and things leap out and...

PhillipandBettykid

•4 years ago

2 Replies

Discharge

I was diagnosed with Stage 3 OC in October 2017. I had a recurrence September 2019. Two weeks ago my ÇA 125 was stable at 10 but this last week I am...

I was diagnosed with Stage 3 OC in October 2017. I had a recurrence September 2...

JustKBO

•4 years ago

10 Replies

Tamoxifen

Hi ladies, I wanted to come on and let you all know how my mums appointment went last week. I use this forum a lot and it’s good to have information available...

Hi ladies, I wanted to come on and let you all know how my mums appointment went...

N-A-58

•4 years ago

2 Replies

Virtual support from Ovacome this week

Hello This is to let you know about the online events on our programme this week. Mastectomy Chatter with Ovarian Cancer Action - Monday 20 July 7-8pm...

Hello This is to let you know about the online events on our programme this we...

OvacomeSupport

Partner•4 years ago

Be the first to reply

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for July 2020

Further update on re occurence

PICC lines

Now what do I do?

Platin resistant.

Immunotherapy

Chance to raise awareness of ovarian cancer by voting for Ovacome member Adele Sewell for a Woman & Home Amazing Women Award by 31 July

Anyone else had such a high ca125 result

Virtual support from Ovacome and Ovarian Cancer Action this week

Hair is back, but too much!

Some of you have gone quiet

Intermittent Fasting

Debulking Update and now will Finish Last Three Rounds

Re occurence update

Carbo Gem

No stoma

Brachytherapy

Gnawing pain in stomach

Dendritic Cell Therepy

Rechallenging with Parp Inhibitors

Weight loss

Summer Socials with Ovacome and Ovarian Cancer Action

Caelyx

Can a CT miss early stage ovarian cancer?

Avast is and hair loss

Skin metastasis? UPDATE

Ovacome member Adele Sewell nominated for a Woman & Home Amazing Women Award

Super clumsy

Discharge

Tamoxifen

Virtual support from Ovacome this week

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