Posts - My Ovacome | HealthUnlocked

My Ovacome

17,739 members • 19,979 posts

All posts for June 2020

Tamoxifen

Hi Ladies my pharmacy informed me today they are out of stock of all brands of Tamoxifen apart from one brand which I can not tolerate. Apparently Uk...

Hi Ladies my pharmacy informed me today they are out of stock of all brands of T...

Spirit22

•4 years ago

8 Replies

Fentanyl patches

Hi Ladies, I've been taking Niraparib for three months now, but getting very bad abdominal pain. Have never liked taking painkillers so, up to now, have only...

Hi Ladies, I've been taking Niraparib for three months now, but getting very bad...

Ovarianne

•4 years ago

22 Replies

Saw this and Loved It

Was a little down yesterday but saw this and lifted my spirits.

PCCDaisy

•4 years ago

4 Replies

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£1,000 grant

Hello At the end of May, we asked you to nominate us for a grant from the specialist insurer, Ecclesiastical. We are delighted to announce that, thanks to your...

Hello At the end of May, we asked you to nominate us for a grant from the specia...

OvacomeSupport

Partner•4 years ago

8 Replies

Up keep of hygiene on stomach drain

Anyone any ideas on the above problem? Sorry guyys. Anne XXX

Shorty864

•4 years ago

1 Reply

Pills

How do people manage to take so many pills at one time without vomiting. Anne XXX

How do people manage to take so many pills at one time without vomiting. Anne X...

Shorty864

•4 years ago

9 Replies

Taxol ovarian cancer

So the back of my throat is bleeding through! On taxol! Had this on other treatments! Anyone experienced this! Gargling with all sorts! Could it be low...

So the back of my throat is bleeding through! On taxol! Had this on other treatm...

jools53

•4 years ago

11 Replies

U T I

Since having my last chemo in December last year I've had four uti infections , I had complete hysterectomy plus omementum and lymph nodes removed, ,has...

Since having my last chemo in December last year I've had four uti infections ,...

fendweller

•4 years ago

24 Replies

Can steroids lower your CA125?

Not sure if the doxy or steroids lowered CA125?

nursem

•4 years ago

4 Replies

Starting a Southampton support group

Hello All One of our members is looking at setting up an ovarian cancer support group in the Southamption area. The Virtual Southampton Ovarian Cancer Support...

Hello All One of our members is looking at setting up an ovarian cancer support ...

OvacomeSupport

Partner•4 years ago

1 Reply

Blotchy legs

I was wondering if anyone is suffering blotchy patches on both legs and ankles. I’m currently on olaparib and Cediranib. I have been taking them since June...

I was wondering if anyone is suffering blotchy patches on both legs and ankles. ...

Cheryl4677

•4 years ago

4 Replies

1 year on from last chemo x

Well our lovely mum has made it to a whole year.... I begged our local doctor to give her a blood test last month as we were coming up to 16 weeks.... the...

Well our lovely mum has made it to a whole year.... I begged our local doctor to...

claireRoberts76

•4 years ago

12 Replies

Reoccurrence from Stage 1?

Hi all I hope you are well during this strange and weird time! I am writing on behalf of my mum who in feb this year was diagnosed with stage 1C1 cancer. She...

Hi all I hope you are well during this strange and weird time! I am writing on ...

Hidden

•4 years ago

16 Replies

Virtual support from Ovacome this week

Hello everyone Since the beginning of lockdown we have been running a number of online support and information sessions around different topics, to help...

Hello everyone Since the beginning of lockdown we have been running a number o...

OvacomeSupport

Partner•4 years ago

Be the first to reply

Carbo, Gem, Covid and Laura

Hello Ladies, I have just returned home after a seven day stay in my beloved local hospital, the RUH. I only just started my long awaited Chemo treatment of...

Hello Ladies, I have just returned home after a seven day stay in my beloved loc...

Lindaura

•4 years ago

63 Replies

Bowel blockage 6 months post chemo

My Mum was admitted by ambulance to hosp 30 hours ago. I cannot see her. She was too sick to speak. Through texting I understand she is no longer vomiting...

My Mum was admitted by ambulance to hosp 30 hours ago. I cannot see her. She w...

Sazzaroon

•4 years ago

14 Replies

Confuse

Hi just got an ultrasound done Today found out I have a complex ovarian cyst , fibroids and nematodes am scared to hear if the complex cyst is cancerous

Hi just got an ultrasound done Today found out I have a complex ovarian cyst , f...

Hidden

•4 years ago

6 Replies

Poll about shielding closing on Monday morning

Hello Thank you to all of you who have taken part in our poll about your experiences of shielding. Your responses will help us to reflect the patient...

Hello Thank you to all of you who have taken part in our poll about your experie...

OvacomeSupport

Partner•4 years ago

Be the first to reply

Belching

I’m awaiting a scan. Hopefully I expressed my concerns enough that it won’t be too long, I am worried.,I’m lying in bed now with a pain in my side, I get pain...

I’m awaiting a scan. Hopefully I expressed my concerns enough that it won’t be t...

Flamingogo

•4 years ago

5 Replies

Ca125 slight increase

Hi All, I hope you’re keeping as well as you can. My mum was diagnosed with OC 3A HGS in Jan 2019. Chemo till July 19 with ca125 at 13. Ca125 Jan 20 was 10...

Hi All, I hope you’re keeping as well as you can. My mum was diagnosed with OC ...

N-A-58

•4 years ago

9 Replies

Poll on your experiences of shielding

Hello We're giving a presentation to a large group of clinicians to represent the patient experience. It would really help us to have your views on shielding,...

Hello We're giving a presentation to a large group of clinicians to represent th...

OvacomeSupport

Partner•4 years ago

1 Reply

Hearing problem

Hi ladies.I am on Avastin 5 months.Is ani body have a hearing problem?

Erebuni

•4 years ago

7 Replies

Experience w gemzar

Wondering if anyone else thinks its not worth it. Dont know anyone who took it w platinum based that had strong positive results including me who had 6...

Wondering if anyone else thinks its not worth it. Dont know anyone who took it w...

Ruebacelle

•4 years ago

21 Replies

Who can see your posts

Hello Following some recent feedback, we thought it would be helpful to post a reminder about who can see your posts on the forum and your options for...

Hello Following some recent feedback, we thought it would be helpful to post a r...

TheOvacomeTeam

Partner•4 years ago

3 Replies

Surgery now taking place.

After 6 chemo's and now on Avastin, my postponed (debulking) surgery is to take place on Monday 8th June. I'm not looking forward to it, but will be glad to...

After 6 chemo's and now on Avastin, my postponed (debulking) surgery is to take ...

dexta2005

•4 years ago

33 Replies

'Staying Connected' - virtual support from Ovacome this week

Hello everyone Since the beginning of lockdown we have been running a number of online support and information sessions around different topics, to help...

Hello everyone Since the beginning of lockdown we have been running a number o...

OvacomeSupport

Partner•4 years ago

Be the first to reply

Long term survival

Dear ladies, At a time of questioning in my journey with this disease. What I really wish to determine is how many ladies with advanced disease (Stage 1V )...

Dear ladies, At a time of questioning in my journey with this disease. What I r...

Rankij11

•4 years ago

22 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for June 2020

Tamoxifen

Fentanyl patches

Saw this and Loved It

£1,000 grant

Up keep of hygiene on stomach drain

Pills

Taxol ovarian cancer

U T I

Can steroids lower your CA125?

Starting a Southampton support group

Blotchy legs

1 year on from last chemo x

Reoccurrence from Stage 1?

Virtual support from Ovacome this week

Carbo, Gem, Covid and Laura

Bowel blockage 6 months post chemo

Confuse

Poll about shielding closing on Monday morning

Belching

Ca125 slight increase

Poll on your experiences of shielding

Hearing problem

Experience w gemzar

Who can see your posts

Surgery now taking place.

'Staying Connected' - virtual support from Ovacome this week

Long term survival

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Pinned Posts

Latest poll

Which of these have you found helpful or would have liked to have been offered as part of your ovarian cancer care? (Please comment below)

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