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My Ovacome

17,739 members • 19,979 posts

All posts for June 2020

Abuse reports over the weekend

Dear All Thank you to everyone who made abuse reports over the weekend regarding a reply on one of the threads. The reply has been deleted and the person has...

Dear All Thank you to everyone who made abuse reports over the weekend regarding...

OvacomeSupport

Partner•4 years ago

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Hello new to the group PPC

Hi all I responded to another post I’m Margaret I had a CT SCAN this past week showed signs of PPC . I went to the doc on Tuesday thinking appendix and they...

Hi all I responded to another post I’m Margaret I had a CT SCAN this past week ...

Supermary

•4 years ago

12 Replies

Scared

Hi all, not been on for a few years ,getting on with life after full hysterectomy 6 rounds of chemo and 25 sessions of pelvic radiation therapy ,lately have...

Hi all, not been on for a few years ,getting on with life after full hysterecto...

Harleeboo

•4 years ago

8 Replies

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Hidden

•4 years ago

1 Reply

Kidney issues

Hello everybody can anyone advise? I was taken off my Rucaparib after one course because my cholesterol soared and white platelets were shot. In parallel A...

Hello everybody can anyone advise? I was taken off my Rucaparib after one cours...

JustKBO

•4 years ago

7 Replies

Bladder problems

Hi Ladies Very quick question. Has anyone had a problem with bladder control especially after chemo? Thanks Janet

Hi Ladies Very quick question. Has anyone had a problem with bladder control es...

Hidden

•4 years ago

13 Replies

Update

Hi Ladies Chemo went ahead as planned yesterday. Bloods very good, Lonquex injection seemed to work. All within normal levels except platelets which are high...

Hi Ladies Chemo went ahead as planned yesterday. Bloods very good, Lonquex injec...

Hidden

•4 years ago

2 Replies

Got a great call from the Dr today

Well Hello.... I have PPC 3C with positive PALB2 and high serious, only lesions on the abdomen but no other masses or tumors anywhere and a starting CA 125...

Well Hello.... I have PPC 3C with positive PALB2 and high serious, only lesions...

PCCDaisy

•4 years ago

13 Replies

Feeling a bit wobbly

Hello, I'm new on here. Haven't actually been diagnosed with OC as yet but I have some of the symptoms, CA125 is raised and ultrasound showed up something...

Hello, I'm new on here. Haven't actually been diagnosed with OC as yet but I hav...

Purple2589

•4 years ago

14 Replies

chemo Cycle 4

Restarted Chemo after surgery this week, with Cabo, Taxol and Avastin followed by filgrastim injection 24 hours later. Chemo session 8 hours so a long day on...

Restarted Chemo after surgery this week, with Cabo, Taxol and Avastin followed b...

Jack1066

•4 years ago

2 Replies

Histology report showed synchronous Stage1 endometrioid adenocarcinoma of the endometruim. May need radiotheraphy after chemo. Any advice

Histology Report

Jack1066

•4 years ago

2 Replies

Congrartullations

💯%👌

Madmolly

•4 years ago

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Laura Update today- Good News!

I had the all important blood test on Tuesday to see how much I had recovered from my Chemo induced bone marrow crash, plus a CA-125 test to see if my Chemo...

I had the all important blood test on Tuesday to see how much I had recovered fr...

Lindaura

•4 years ago

74 Replies

Stage 3 cancer ovarian

Hi friends I an newly diagnoised with ovarian cancer stage 3 with cancer on bits of bowel and diaphram i am geting chemo starting on tuesday morning. The dont...

Hi friends I an newly diagnoised with ovarian cancer stage 3 with cancer on bits...

Anamcara63

•4 years ago

29 Replies

Stage cancer ovarian

Hi friends I an newly diagnoised with ovarian cancer stage 3 with cancer on bits of bowel and diaphram i am geting chemo starting on tuesday morning. The dont...

Hi friends I an newly diagnoised with ovarian cancer stage 3 with cancer on bits...

Anamcara63

•4 years ago

3 Replies

Pleural effusion

Hi I'm Andy I'm 46 uk I've been diagnosed with pleural effusion about 2 months ago I'm worried about it and scared I'm waiting to here from the hospital for...

Hi I'm Andy I'm 46 uk I've been diagnosed with pleural effusion about 2 months...

Hidden

•4 years ago

7 Replies

Appalling bedside manner

This is a rant and call for advice My Mum has been admitted with a bowel blockage, 2nd time in 8 days. She was an emergency admission to her local hosp. She...

This is a rant and call for advice My Mum has been admitted with a bowel blockag...

Sazzaroon

•4 years ago

18 Replies

Earlier than I thought

Hello Ladies, I received a letter this morning saying that my chemo carbo/gem will start in Friday 26 June, which is good news,although I am feeling a little...

Hello Ladies, I received a letter this morning saying that my chemo carbo/gem wi...

Caleda4

•4 years ago

7 Replies

Journalist request - BBC Northern Ireland

Dear All We have been asked to put out a request from BBC Northern Ireland who are hoping to interview someone as part of a piece about the impact coronavirus...

Dear All We have been asked to put out a request from BBC Northern Ireland who a...

OvacomeSupport

Partner•4 years ago

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What qualifies for Solid Tumours in Ovarian Cancer?

Dear ladies, This probably seems like a stupid question, but I have only heard my cancer described as “lesions “ and “nodules” never as tumours. I am...

Dear ladies, This probably seems like a stupid question, but I have only heard m...

Lindaura

•4 years ago

14 Replies

Topics for 'In focus' and suncare

Hello As many of you will remember, we've posted weekly 'In focus' posts with a different theme each month. Previous themes have included lymphoedema,...

Hello As many of you will remember, we've posted weekly 'In focus' posts with a ...

OvacomeSupport

Partner•4 years ago

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Surprising CA125

Hi all. I had a blood test on 16/3 which recorded 92, up from 13 in December.I had a scan, which confirmed that the dreaded C was back. As I was feeling well,...

Hi all. I had a blood test on 16/3 which recorded 92, up from 13 in December.I h...

27-359

•4 years ago

5 Replies

Virtual support from Ovacome this week

Hello This is to let you know about the online events on our programme this week. Exercising at home Q&A with cancer exercise specialist Lizzy Davis - Tuesday...

Hello This is to let you know about the online events on our programme this week...

OvacomeSupport

Partner•4 years ago

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Loss of hair on Avastin.

Good evening ladies.. hope all going as well as can be expected.. was wondering if anyone else has slowly lost their hair on Avastin?

Good evening ladies.. hope all going as well as can be expected.. was wondering ...

rossnbren

•4 years ago

9 Replies

Oncologist

Meeting this morning with the oncologist at 11am then treatment of avastin at 1pm. It's madness when you look forward to a hospital appointment but it's a...

Meeting this morning with the oncologist at 11am then treatment of avastin at 1p...

Madmolly

•4 years ago

8 Replies

Enlarged precardinal nodes

Has anyone else had this diagnosis and if so how was it treated? I am having chemo but this bit of information has scared me a bit, just want to know others...

Has anyone else had this diagnosis and if so how was it treated? I am having che...

Farawla

•4 years ago

5 Replies

Asking about Cancer Care in Spain

Hi there, I'm posting on some of these forums today for my parents who want to spend some time in Spain (once travel opens up), while my mom is feeling well....

Hi there, I'm posting on some of these forums today for my parents who want to s...

Luci22

•4 years ago

8 Replies

Caelyx?

Hi Ladies Just started 4th Line chemo with Caelyx only as now considered platinum resistant. Has anyone had this and managed good results. Many thanks Janet

Hi Ladies Just started 4th Line chemo with Caelyx only as now considered platinu...

Hidden

•4 years ago

19 Replies

Back Home!

I would like to thank all the lovely ladies who gave me support (when I most needed it) and best wishes for my up coming surgery. Well the operation was done...

I would like to thank all the lovely ladies who gave me support (when I most nee...

dexta2005

•4 years ago

9 Replies

Struggling

Laid in bed unable to sleep, in little discomfort due to the xxxxxxx inside. The Letrazole haven’t done any good CA125 now just over 130. No surprise I knew...

Laid in bed unable to sleep, in little discomfort due to the xxxxxxx inside. Th...

Samjane

•4 years ago

14 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for June 2020

Abuse reports over the weekend

Hello new to the group PPC

Scared

Unsubscribe

Kidney issues

Bladder problems

Update

Got a great call from the Dr today

Feeling a bit wobbly

chemo Cycle 4

Histology report showed synchronous Stage1 endometrioid adenocarcinoma of the endometruim. May need radiotheraphy after chemo. Any advice

Congrartullations

Laura Update today- Good News!

Stage 3 cancer ovarian

Stage cancer ovarian

Pleural effusion

Appalling bedside manner

Earlier than I thought

Journalist request - BBC Northern Ireland

What qualifies for Solid Tumours in Ovarian Cancer?

Topics for 'In focus' and suncare

Surprising CA125

Virtual support from Ovacome this week

Loss of hair on Avastin.

Oncologist

Enlarged precardinal nodes

Asking about Cancer Care in Spain

Caelyx?

Back Home!

Struggling

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Pinned Posts

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Which of these have you found helpful or would have liked to have been offered as part of your ovarian cancer care? (Please comment below)

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