Posts - My Ovacome | HealthUnlocked

My Ovacome

17,746 members • 19,983 posts

All posts for May 2020

Letrozole not working

Hi all, My mums cancer returned after just 3 months remission. She has been put on letrozole, after 4 weeks it has had no affect on CA125 markets, the doctor...

Hi all, My mums cancer returned after just 3 months remission. She has been put...

Muswellblu

•4 years ago

2 Replies

Colic type wind,can you help please

Hello lovely ladies, I hope that you are all enjoying this warmer weather, as even when the sun is out it seems to help. I have absolute chronic wind in my...

Hello lovely ladies, I hope that you are all enjoying this warmer weather, as ev...

Caleda4

•4 years ago

7 Replies

Results from first 2 infusions with Caelex

Just had third infusion of Caelyx yesterday. So went to my oncologist 1st to get blood test results and was a little disappointed. I was told the results would...

Just had third infusion of Caelyx yesterday. So went to my oncologist 1st to get...

Calluv

•4 years ago

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Tips on other halves with a tendency to catastrophise!

My bloods have been rising steadily recently and are now at scan stage , but rising more slowly than they were before I had open surgery followed by six months...

My bloods have been rising steadily recently and are now at scan stage , but ris...

Madmarilyn

•4 years ago

12 Replies

Cycle 3 Chemo Ovarian Cancer

Hello all, hope everyone is well as can be and coping well? I feel bad for writing this post as seems as though I only post when I need to know something and...

Hello all, hope everyone is well as can be and coping well? I feel bad for writi...

Hidden

•4 years ago

15 Replies

Awkward dilemma

Hi ladies. I have been stranded in Portugal since March 14th after coming for a 10 day break to my partners villa. It’s lovely here....but. There’s always a...

Hi ladies. I have been stranded in Portugal since March 14th after coming for a ...

Lockygill

•4 years ago

6 Replies

Fenbendazole and Caelyx

Hi, Start new chemo Friday. Been taking Fenbendazole whilst off treatment. Has anyone continued with it while on treatment. Janet

Hi, Start new chemo Friday. Been taking Fenbendazole whilst off treatment. Has a...

Hidden

•4 years ago

6 Replies

Survey about experiences of gynaecological cancer during COVID-19

Hello The European Society of Gynaecological Oncology (ESGO) is carrying out a survey to find out about the experiences of people with a gynaecological cancer...

Hello The European Society of Gynaecological Oncology (ESGO) is carrying out a ...

OvacomeSupport

Partner•4 years ago

4 Replies

'Staying Connected' - virtual support from Ovacome

Hello everyone Since the beginning of lockdown we have been running a number of online support and information sessions around different topics, to help...

Hello everyone Since the beginning of lockdown we have been running a number o...

OvacomeSupport

Partner•4 years ago

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Is Jacob Moore an imposter in the group

I had a message this morning from someone called Jacob Moore simply saying “Hello dear”. He is being followed by two on this forum so I wanted to find out if...

I had a message this morning from someone called Jacob Moore simply saying “Hell...

Levanah

•4 years ago

9 Replies

Thank you lovely ladys

Dear Ladys, I wanted to thank you all for the information you gave me on CBD and I will certainly let you know how it goes; side-effects and pain and any...

Dear Ladys, I wanted to thank you all for the information you gave me on CBD an...

Shorty864

•4 years ago

2 Replies

Letrozole and Covid and shielding

I was on Niraparib until 6weeks ago but it stopped working so now on letrozole. I knew I had to shield when I was on the parp,inhibitor but not sure if I can...

I was on Niraparib until 6weeks ago but it stopped working so now on letrozole. ...

dryden1

•4 years ago

5 Replies

Pleurx catheter?

I had a pleurodesis just under 3 months ago. It hasn't worked as I had hoped. I am not sure if I am a candidate for a pleurx catheter as it seems the fluid...

I had a pleurodesis just under 3 months ago. It hasn't worked as I had hoped. I ...

Natsmb

•4 years ago

7 Replies

Anyone had experience of CBD oil in the case of ovarian cancer

Dear Ladies, Yet another question - as anyone had experience of CDB oil in helping manage pain in oc? Thanking you all in advance. Anne XXXXX

Dear Ladies, Yet another question - as anyone had experience of CDB oil in help...

Shorty864

•4 years ago

15 Replies

A smile

I’m just leaving this here in case it makes anyone smile. He makes me smile every day, is my little sidekick and I wouldn’t have have got through the last year...

I’m just leaving this here in case it makes anyone smile. He makes me smile ever...

Yorkiepudd

•4 years ago

19 Replies

Finger tips

Thank you to everyone who’s replied to my Fingertips query. I now know my phone is not to blame. What we put up with eh?! Kind thoughts to you all. X

Thank you to everyone who’s replied to my Fingertips query. I now know my phone ...

JustKBO

•4 years ago

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Pain below my armpits. I’m on Rucaparib. I’m worried the cancer could have spread to that area

4th week on Rucaparib and blood tests ok up to last week. CA 125 11 but I’ve having pain below my armpits at both sides For a few days now. I’m worried the...

4th week on Rucaparib and blood tests ok up to last week. CA 125 11 but I’ve hav...

Gemimablackvelvet

•4 years ago

14 Replies

Julie from Bridgnorth

It is with great sadness that I report to you all that Julie was taken by this terrible disease on 10th Dec last year. She had struggled to keep up a semblance...

It is with great sadness that I report to you all that Julie was taken by this t...

lizzie3bee

•4 years ago

15 Replies

Newly Diagnosed

Well hello.... My name is Shelly and am 43 yrs old. Earlier in April got diagnosed with PPC 3C with hardly any symptoms. All I had was a side ache which I...

Well hello.... My name is Shelly and am 43 yrs old. Earlier in April got diagno...

PCCDaisy

•4 years ago

18 Replies

Dental treatment

Is anyone else suffering from a rotten tooth while halfway through chemo? I would welcome any advice. I am surviving at the moment, trying to stay on...

Is anyone else suffering from a rotten tooth while halfway through chemo? I woul...

standeasy

•4 years ago

7 Replies

COVID & CARBO - 1 DOWN 5 TO GO..........

all went well today, am back home with tea and cake. I was concerned about having an allergic reaction to Carbo as this will be my 3rd time, I appear to have...

all went well today, am back home with tea and cake. I was concerned about havin...

Hidden

•4 years ago

9 Replies

Support Ovacome by nominating us for a grant

Hello As part of their 'Movement for Good' scheme, The specialist insurer Ecclesiastical is inviting people to enter their favourite charities into a prize...

Hello As part of their 'Movement for Good' scheme, The specialist insurer Eccles...

OvacomeSupport

Partner•4 years ago

18 Replies

Is surgery a second time an option?

Hello, Mum has just been given the news that her scan shows thickening of some small nodules indicative of a return of cancer. This will be her third lot of...

Hello, Mum has just been given the news that her scan shows thickening of some s...

Tulip15

•4 years ago

11 Replies

Not Good News

Hi ladies Just had phone consultation with Oncologist with scan results after 3 months watch and wait. Cancer increased in peritoneum and enlarged lymph...

Hi ladies Just had phone consultation with Oncologist with scan results after 3 ...

Hidden

•4 years ago

12 Replies

Fingerprints

I use touch fingerprint to open all my apps accounts etc. Since I started my last lot of treatment I’ve noticed it becoming unpredictable. Today I can’t open...

I use touch fingerprint to open all my apps accounts etc. Since I started my las...

JustKBO

•4 years ago

16 Replies

Stage 1 Check Ups and Reoccurences?

I was diagnosed with stage 1b in October and had 18 weekly chemo sessions. I'm 12 weeks pfc and the anxiety of a reoccurence is really high. My doctor is...

I was diagnosed with stage 1b in October and had 18 weekly chemo sessions. I'm 1...

tangran123

•4 years ago

18 Replies

CA125 results high again

Hi I haven’t been on here for a while. But you ladies were so supportive last time that I knew I could come back and ask. My Mum was diagnosed with OC last...

Hi I haven’t been on here for a while. But you ladies were so supportive last ti...

LittleMissMerit

•4 years ago

11 Replies

First recurrence

Hi all - i finished chemo 11/18 - Carbo and taxol. My CA125 has been under 8 until a few months ago. It’s been doubling monthly since and now is at 84. Had...

Hi all - i finished chemo 11/18 - Carbo and taxol. My CA125 has been under 8 u...

ElayneZ

•4 years ago

28 Replies

Has anyone tried Liposomal Vitamin C ?

During a maintenance phase and after treatment, has anyone tried to take this or IV vitamin C? Lipsomal or Lypospheric vitamin C is paired or embedded in fat...

During a maintenance phase and after treatment, has anyone tried to take this or...

Luci22

•4 years ago

5 Replies

Experience with morphine oral solution?

As anyone has experience with Oramorf - started taking it to break the pain barrier when I was in hospital and was wondering if anyone has taken it or is...

As anyone has experience with Oramorf - started taking it to break the pain barr...

Shorty864

•4 years ago

11 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for May 2020

Letrozole not working

Colic type wind,can you help please

Results from first 2 infusions with Caelex

Tips on other halves with a tendency to catastrophise!

Cycle 3 Chemo Ovarian Cancer

Awkward dilemma

Fenbendazole and Caelyx

Survey about experiences of gynaecological cancer during COVID-19

'Staying Connected' - virtual support from Ovacome

Is Jacob Moore an imposter in the group

Thank you lovely ladys

Letrozole and Covid and shielding

Pleurx catheter?

Anyone had experience of CBD oil in the case of ovarian cancer

A smile

Finger tips

Pain below my armpits. I’m on Rucaparib. I’m worried the cancer could have spread to that area

Julie from Bridgnorth

Newly Diagnosed

Dental treatment

COVID & CARBO - 1 DOWN 5 TO GO..........

Support Ovacome by nominating us for a grant

Is surgery a second time an option?

Not Good News

Fingerprints

Stage 1 Check Ups and Reoccurences?

CA125 results high again

First recurrence

Has anyone tried Liposomal Vitamin C ?

Experience with morphine oral solution?

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