Posts - My Ovacome | HealthUnlocked

My Ovacome

17,708 members • 19,963 posts

All posts for May 2020

Thanks for best wishes for surgery

Thanks to everyone who sent their best wishes. Surgery went better than expected Had surgery at 09.30 in recovery by 13.30 even had an evening meal. Out of bed...

Thanks to everyone who sent their best wishes. Surgery went better than expected...

Jack1066

•4 years ago

8 Replies

Rising CA125

Rising CA125 Gone from 13 to 43 since January does that mean back to chemo after scan. Stage 4b inoperable.

Rising CA125 Gone from 13 to 43 since January does that mean back to chemo after...

Iwillbeatit

•4 years ago

3 Replies

No appetite

I have had no appetite since going solo on avastin feel yucky all the time with no desire to eat. Any suggestions would be greatful. That's 5 weeks now

I have had no appetite since going solo on avastin feel yucky all the time with ...

Madmolly

•4 years ago

8 Replies

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Possibly No Surgery :)

Hello Everyone!!!!!! Am on my third chemo treatment and the plan is 3 treatments, surgery and then 3 treatments. Treatments are Paz/Carb. I have PPC 3C and...

Hello Everyone!!!!!! Am on my third chemo treatment and the plan is 3 treatment...

PCCDaisy

•4 years ago

11 Replies

Tummy swelling

Hi all I hope you are all ok and are coping somehow with lockdown. I had some great news this week. On the 4th anniversary of my operation (3b) I had a ct...

Hi all I hope you are all ok and are coping somehow with lockdown. I had some g...

Hidden

•4 years ago

20 Replies

Question about Pluerex catheter part 2

OC weeks back someone give me some information on getting a pleurx catheter. I now have the pleurx catheter which was put in yesterday morning. It hurts like...

OC weeks back someone give me some information on getting a pleurx catheter. I n...

Natsmb

•4 years ago

1 Reply

The news I have been waiting for

Hello ladies,I hope that you are all taking advantage of this lovely weather. Yesterday I received a call from my Oncologist,to say the second biopsy has shown...

Hello ladies,I hope that you are all taking advantage of this lovely weather. Ye...

Caleda4

•4 years ago

9 Replies

Some light at the end of the tunnel....

Hi ladies Hope you are all well and enjoying the recent glorious sunshine we have been blessed with here in the UK. In my last post I mentioned that I felt bad...

Hi ladies Hope you are all well and enjoying the recent glorious sunshine we hav...

Hidden

•4 years ago

10 Replies

Post Debulking Surgery Experiences

I'd be grateful to hear/learn from those of you who have already done the debulking surgery. Once you are out of hospital and have fully recovered what are...

I'd be grateful to hear/learn from those of you who have already done the debulk...

Newbie_2020

•4 years ago

14 Replies

Reports of abuse

Hello Thank you to the people who made the recent reports of abuse. The post has been removed and the poster has been reported. Best wishes The Ovacome...

Hello Thank you to the people who made the recent reports of abuse. The post ha...

TheOvacomeTeam

Partner•4 years ago

2 Replies

Removal of omentum

Hi. I had extensive surgery a couple of years ago which included the removal of the omentum and lympth modes in the groin. Has anyone had any side effects...

Hi. I had extensive surgery a couple of years ago which included the removal of...

Mrsdoubtfire

•4 years ago

30 Replies

Diagnosed with Fibroma... Anyone else have these?

I was diagnosed in 2018 with fibroma on an ovary. (I had the uterus removed in 1985). I had some ultra sounds to watch it and was wondering if anyone had...

I was diagnosed in 2018 with fibroma on an ovary. (I had the uterus removed in ...

seiderbuggy52

•4 years ago

2 Replies

"How to Starve Cancer" and Care Oncology Center

I have finished 6 rounds of chemo for stage IIIc ovarian cancer and am slated to receive Avastin/Oliparib (Lynparza) for the next two years while being scanned...

I have finished 6 rounds of chemo for stage IIIc ovarian cancer and am slated to...

FlowerRose

•4 years ago

20 Replies

Currently on Avastin. Hands seizing up badly and Painful stiff shoulders. Anyone had the same?

Hello ladies, I hope you are all managing to keep safe during this time, and all have your grocery and medication deliveries sorted! I had 6 x taxol and carbo...

Hello ladies, I hope you are all managing to keep safe during this time, and al...

Meridian14

•4 years ago

16 Replies

'Staying Connected' - virtual support from Ovacome this week

Hello everyone Since the beginning of lockdown we have been running a number of online support and information sessions around different topics, to help...

Hello everyone Since the beginning of lockdown we have been running a number o...

OvacomeSupport

Partner•4 years ago

Be the first to reply

Sun sensitivity

Hi everyone , whatever stage you are at dealing with this foul disease I hope you can enjoy some of this sunny day. Unfortunately I find I can not. I have had...

Hi everyone , whatever stage you are at dealing with this foul disease I hope yo...

Litchick

•4 years ago

16 Replies

Stage 4 Ovarian cancer and Caelyx

Just coming up to 3 rd chemo with Caelyx after having 6 treatments with Paclitaxel/ Carboplatin. I’m so tired, worried about losing strength and have a mouth...

Just coming up to 3 rd chemo with Caelyx after having 6 treatments with Paclitax...

jtlynton

•4 years ago

19 Replies

About to have my third chemo of Caelyx

Caelyx seems to be much harder than my previous 6 treatments of Paclitaxol and Carboplatin. Mouth full of ulcers, very sore, hard to eat. Very tired and...

Caelyx seems to be much harder than my previous 6 treatments of Paclitaxol and ...

jtlynton

•4 years ago

2 Replies

Reoccurance

Good evening ladies, I have not posted for years, why, firstly I joined this forum when my mum got diagnosed stage 3 C ovarian, 2 huge tumours and spots on the...

Good evening ladies, I have not posted for years, why, firstly I joined this for...

Holdingontohope

•4 years ago

8 Replies

Tamoxifen versus Letrozole

Hello Ladies I have not been on here a lot since lockdown as I have been busy making scrubs for the NHS, together with sewing folk up and down the country . I...

Hello Ladies I have not been on here a lot since lockdown as I have been busy ma...

Spirit22

•4 years ago

13 Replies

Thank you for dental advice.

Thank you for your help to the seven ladies who gave me dental advice. I have clove oil now and I will battle for an appointment when the time comes. Pauline,...

Thank you for your help to the seven ladies who gave me dental advice. I have cl...

standeasy

•4 years ago

1 Reply

Lonquex injection

Hi Has anyone been given the above injection to take after caelyx? Apparently to boost immune system.Had first Caelyx Friday after three previous lines of...

Hi Has anyone been given the above injection to take after caelyx? Apparently to...

Hidden

•4 years ago

12 Replies

I was diagnosed April 2019 with PPC stage 2b at age 70 and was told the older you are the less likely you will make 5 yr survival.

Survival for ladies 70 or older when diagnosed.

TNkit

•4 years ago

44 Replies

Laura is on Chemo Finally!

Today, after dosing myself with Paracetamol, my husband drove me to my new hospital, The Circle, just outside Bath. Just took 15 minutes to get there. My...

Today, after dosing myself with Paracetamol, my husband drove me to my new hospi...

Lindaura

•4 years ago

61 Replies

'Staying Connected' virtual support from Ovacome next week

Hello everyone Since the beginning of lockdown we have been running a number of online support and information sessions around different topics, to help...

Hello everyone Since the beginning of lockdown we have been running a number o...

OvacomeSupport

Partner•4 years ago

Be the first to reply

Ozzys

Ozzys new haircut after finally going to groomers

Bobbyo1

•4 years ago

8 Replies

private health insurance

Hi Can anyone tell me if they have managed to get private health insurance after having cancer ?? I had ovarian cancer nearly seven years ago 1c . If so what...

Hi Can anyone tell me if they have managed to get private health insurance after...

janeroe

•4 years ago

Be the first to reply

Back on the chemo

Hello lovely ladies I hope you are all keeping as well as possible at this very strange time. I haven't posted for a whole because basically nothing was going...

Hello lovely ladies I hope you are all keeping as well as possible at this very ...

Welshandproud

•4 years ago

53 Replies

CA125 fluctuations on avastin

Hi all, i hope everyone is keeping well during this difficult time. i was just wondering what kind of fluctuations in CA125 did people with high grave serous...

Hi all, i hope everyone is keeping well during this difficult time. i was just ...

Dollie22

•4 years ago

31 Replies

NOT ASCITES

Hi ladies Went for ultrasound Monday to see if ascites could be drained. Not enough to warrant drain apparently the swelling is down to disease and any attempt...

Hi ladies Went for ultrasound Monday to see if ascites could be drained. Not eno...

Hidden

•4 years ago

19 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for May 2020

Thanks for best wishes for surgery

Rising CA125

No appetite

Possibly No Surgery :)

Tummy swelling

Question about Pluerex catheter part 2

The news I have been waiting for

Some light at the end of the tunnel....

Post Debulking Surgery Experiences

Reports of abuse

Removal of omentum

Diagnosed with Fibroma... Anyone else have these?

"How to Starve Cancer" and Care Oncology Center

Currently on Avastin. Hands seizing up badly and Painful stiff shoulders. Anyone had the same?

'Staying Connected' - virtual support from Ovacome this week

Sun sensitivity

Stage 4 Ovarian cancer and Caelyx

About to have my third chemo of Caelyx

Reoccurance

Tamoxifen versus Letrozole

Thank you for dental advice.

Lonquex injection

I was diagnosed April 2019 with PPC stage 2b at age 70 and was told the older you are the less likely you will make 5 yr survival.

Laura is on Chemo Finally!

'Staying Connected' virtual support from Ovacome next week

Ozzys

private health insurance

Back on the chemo

CA125 fluctuations on avastin

NOT ASCITES

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