Posts - My Ovacome | HealthUnlocked

My Ovacome

17,743 members • 19,981 posts

All posts for April 2020

What is my lump

I have had a lump ovary area for a while now its hard and growing. It gives me a dull pain especially more after touching it. I also have pain in back the same...

I have had a lump ovary area for a while now its hard and growing. It gives me a...

Hidden

•4 years ago

13 Replies

Advice please

I'm new here any help appreciated, missing contact with the outside world After cycle 3 I have become very emotional, just bursting into tears for no apparent...

I'm new here any help appreciated, missing contact with the outside world After ...

Jack1066

•4 years ago

13 Replies

Cyclophosphamide

Hi, I’ve just finished my 4th line of chemo with mixed results. My oncologist wants me to go on clcyophosphamide. It’s not one I’ve heard of before. Any advise...

Hi, I’ve just finished my 4th line of chemo with mixed results. My oncologist wa...

Elfed

•4 years ago

6 Replies

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First line treatment and Avastin - advice please

Hi Ladies, I hope everybody is staying safe, and coping ok in these difficult times. I’m really aware that some people are having a desperately hard time...

Hi Ladies, I hope everybody is staying safe, and coping ok in these difficult t...

Emmacrispins

•4 years ago

24 Replies

This is adorable!

When its all over! https://www.youtube.com/watch?v=t-Mm9KbtYfE

Hidden

•4 years ago

1 Reply

It's back

Well I finally got a telephone consultation with my oncologist yesterday, and as I suspected the cancer is back. Several lymph nodes in the pelvis and some...

Well I finally got a telephone consultation with my oncologist yesterday, and as...

27-359

•4 years ago

40 Replies

Panic!

Please can anyone give me some advice? I’m very anxious and panicky at the moment. I started Olaparib on January 3rd with a CA125 of 18, ( I’m BRCA negative...

Please can anyone give me some advice? I’m very anxious and panicky at the momen...

Frenchhouse3

•4 years ago

8 Replies

Latest News - what a difference a day makes

Dear All, Went to have my stomach drain fitted today and they drained nearly 4 litres - feel has if I have given birth to my son again and to top it all my...

Dear All, Went to have my stomach drain fitted today and they drained nearly 4 l...

Shorty864

•4 years ago

41 Replies

Covid 19

I am thinking about volunteering for the NHS but a few people have said I shouldn’t do it because I have had ovarian cancer but that was 10 years ago. Anyone...

I am thinking about volunteering for the NHS but a few people have said I should...

Gladysfriday

•4 years ago

4 Replies

Surgery done

Had my surgery last Thursday ,full total hysterectomy ,appendix ,gallbladder & lots of surrounding tissue 😢small spot left On spleen as she didn’t want to...

Had my surgery last Thursday ,full total hysterectomy ,appendix ,gallbladder & ...

Beachesinsummer

•4 years ago

12 Replies

FENBENDAZOLE

Hi Ladies Hope everyone keeping as well as possible. Is anyone taking the above medication? Bought some but not used yet. Just coming to end of three months...

Hi Ladies Hope everyone keeping as well as possible. Is anyone taking the above ...

Hidden

•4 years ago

6 Replies

A healthy diet, etc....

I would like to compile a diet and supplement list, (for my personal use) which is aimed at ovarian cancer only. I am doing a lot or research, but it is very...

I would like to compile a diet and supplement list, (for my personal use) which ...

dexta2005

•4 years ago

2 Replies

Lockdown!

What are you doing to keep occupied and stay sane during self isolation? Is your partner/children driving you insane? ! I live with my husband who is wonderful...

What are you doing to keep occupied and stay sane during self isolation? Is your...

Hidden

•4 years ago

32 Replies

The Heart Attack Symptoms and Covid-19

Hi everyone. I'm getting better each day but wanted to let you know that coronavirus is a very tricky bug. I started feeling headaches and fatigue since early...

Hi everyone. I'm getting better each day but wanted to let you know that coronav...

Liba1234

•4 years ago

4 Replies

Happy Easter 🐣🐤🐥

Happy Easter 🐣 🐤 🐥 to all of you wonderful ladies ❤️❤️❤️

CallmeMum

•4 years ago

5 Replies

Endometrial Cancer- 8 months remission-after 4 years trying

Hi friends, As we all worry and deal with covid-19 pandemic, I thought it would be good to share some success I have been having, mostly because I never...

Hi friends, As we all worry and deal with covid-19 pandemic, I thought it would ...

carolleigh

•4 years ago

12 Replies

2nd opinion.

Hi. I’ve posted a couple of questions on here over the last 2 days but have more to ask. Sorry My sister is needing to get a second opinion as she has been...

Hi. I’ve posted a couple of questions on here over the last 2 days but have mor...

Hidden

•4 years ago

6 Replies

Shielding Update

Well I contacted my MP last night, got a reply within 2 hours saying he would contact local council covid helpline, got a phone call just now and Ive been...

Well I contacted my MP last night, got a reply within 2 hours saying he would co...

Katmal-UK

•4 years ago

24 Replies

Alternative treatment

Hello I’m really hoping someone can help My sister has been told there are no more options for treatment for her ovarian cancer. She has had 4 lots of...

Hello I’m really hoping someone can help My sister has been told there are no m...

Hidden

•4 years ago

18 Replies

Carboplatin and sun exposure

I had my first infusion on Thursday - I asked the nurse whether I needed to stay out of the sun, but all she said was to keep the arm where the infusion was...

I had my first infusion on Thursday - I asked the nurse whether I needed to stay...

bamboo89

•4 years ago

16 Replies

Paying for Avastin

Hi there. The Parp isn’t working and it’s sadly chemo time again so soon. I will be given weekly taxol and I plan to pay privately for Avastin. Can anyone...

Hi there. The Parp isn’t working and it’s sadly chemo time again so soon. I will...

dramaredgerbil

•4 years ago

10 Replies

Shielding

Hi, anyone else having issues trying to get on the list of vulnerable patients? I was nearly removed from the Olaparib trial because my Oncologist said I at...

Hi, anyone else having issues trying to get on the list of vulnerable patients? ...

Katmal-UK

•4 years ago

81 Replies

NICE guidelines

Hello There have been some conversations in the forum recently about the new NICE guidelines on systemic cancer treatment during the COVID-19 pandemic. We can...

Hello There have been some conversations in the forum recently about the new NIC...

TheOvacomeTeam

Partner•4 years ago

2 Replies

An update... advice/reassurance needed please :-(

I posted on here 7 months ago and had some really helpful responses, thank you! I found the old thread lastnight and posted an update at the bottom, thinking...

I posted on here 7 months ago and had some really helpful responses, thank you! ...

MemmaJ

•4 years ago

1 Reply

Off label drugs

Hello I was wondering peoples thoughts please. I am post op 8 weeks, had debulking surgery & all removed , have clear cell 2b ovarian cancer. Plan is 6 Chemo’s...

Hello I was wondering peoples thoughts please. I am post op 8 weeks, had debulki...

Lilymay9

•4 years ago

10 Replies

When did you start losing your hair?

Hello, I have had my first chemo treatment about a week and a half ago. I have VERY THICK hair. I have noticed today that my body hair has stopped growing and...

Hello, I have had my first chemo treatment about a week and a half ago. I have V...

abby1043

•4 years ago

9 Replies

Shorty864 - any news

Good morning. I was just wondering if anybody had heard from Shorty864? She posted a couple of weeks ago and was having a very tough time. I hope she's...

Good morning. I was just wondering if anybody had heard from Shorty864? She post...

sticky3006

•4 years ago

2 Replies

Tinnitus

Hi I have just started Carbo/Caelyx as second line treatment and 7 days in experiencing high pitched whistling and rushing in my ears. Has anyone experienced...

Hi I have just started Carbo/Caelyx as second line treatment and 7 days in exper...

janet53

•4 years ago

10 Replies

Laura ?

Has anyone heard from Laura recently, she seems to have gone awol. ??

TarbonNZ

•4 years ago

29 Replies

Update on my status

Hi. Having just finished six months of carbo caelyx aka doxil, I had a scan last week and am going to start Olaparib next Sunday. The scan showed that my main...

Hi. Having just finished six months of carbo caelyx aka doxil, I had a scan last...

delia2

•4 years ago

20 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for April 2020

What is my lump

Advice please

Cyclophosphamide

First line treatment and Avastin - advice please

This is adorable!

It's back

Panic!

Latest News - what a difference a day makes

Covid 19

Surgery done

FENBENDAZOLE

A healthy diet, etc....

Lockdown!

The Heart Attack Symptoms and Covid-19

Happy Easter 🐣🐤🐥

Endometrial Cancer- 8 months remission-after 4 years trying

2nd opinion.

Shielding Update

Alternative treatment

Carboplatin and sun exposure

Paying for Avastin

Shielding

NICE guidelines

An update... advice/reassurance needed please :-(

Off label drugs

When did you start losing your hair?

Shorty864 - any news

Tinnitus

Laura ?

Update on my status

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