Posts - My Ovacome | HealthUnlocked

My Ovacome

17,735 members • 19,979 posts

All posts for December 2019

Low neutrophils - hopefully helpful advice!

Good morning ladies. I hope this may be helpful advice for the many of us who have low neutrophils which often delays treatment. I'm on Carbo/caelyx for first...

Good morning ladies. I hope this may be helpful advice for the many of us who ha...

sticky3006

•4 years ago

11 Replies

LYNPARZA EXPERIENCES

HI- JUST RECEIVED LYNPARZA PILLS A FEW DAYS AGO. THEY COST A FORTUNE. I'M STILL LOOKING AT THEM BUT RESISTING TAKING THEM. JUST STARTING TO FEEL BETTER AFTER...

HI- JUST RECEIVED LYNPARZA PILLS A FEW DAYS AGO. THEY COST A FORTUNE. I'M STILL ...

mupash

•4 years ago

28 Replies

Pain in remaining ovary

Hi all. I'm 10 weeks post op from left ovary and both tubes being removed . I've had one period 3weeks after op and feel like one is due .having awful pain in...

Hi all. I'm 10 weeks post op from left ovary and both tubes being removed . I've...

Jacqui1737

•4 years ago

2 Replies

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Asities

Evening lovely ladies. Just an update had my drain on Tue they removed 7 litres pew . Tummy is still swollen how long does it take to go down? Apart from that...

Evening lovely ladies. Just an update had my drain on Tue they removed 7 litres ...

1916

•4 years ago

12 Replies

Itching .

Ladies has anyone experienced bad itching after carboplatin , had carbo Tuesday, yesterday I started itching , continued today ,really bad at times ,want to...

Ladies has anyone experienced bad itching after carboplatin , had carbo Tuesday...

fendweller

•4 years ago

10 Replies

Cyst on kidney

Good morning. I have just had my six monthly check up, and my CA125 has increased from 9 to 13. Not a lot, I know, but I recently had a kidney scan, due to the...

Good morning. I have just had my six monthly check up, and my CA125 has increase...

27-359

•4 years ago

3 Replies

BLOODY NOSE

I have just finished 16 infusions of taxol. Coped with it very well but; a day or so after treatment my nose would start to bleed very slightly, not pouring...

I have just finished 16 infusions of taxol. Coped with it very well but; a day...

Katiebairdie

•4 years ago

13 Replies

5 years (update)

In a quandary. As per my previous post, saw consultant for 5th year checkup (borderline serous) expected to be discharged, was sent for CT. which I had 2 days...

In a quandary. As per my previous post, saw consultant for 5th year checkup (bor...

Hidden

•4 years ago

32 Replies

Feeling very lucky

Good afternoon lovely ladies I hope you are all doing well. I have just returned from an appointment with my oncologist to discuss my PET scan results. There...

Good afternoon lovely ladies I hope you are all doing well. I have just returned...

JayGeeCee

•4 years ago

55 Replies

In focus: travel - insurance

Hello This week, we're continuing our posts on the theme of travel by looking at travel insurance. Travel insurance is a topic that frequently comes up on the...

Hello This week, we're continuing our posts on the theme of travel by looking at...

OvacomeSupport

Partner•4 years ago

Be the first to reply

Update from previous post; 2 months on..

Good Morning :) I hope everyone is doing as well as possible with treatments/recoveries and generally mentally and Physically at the moment. So I had some...

Good Morning :) I hope everyone is doing as well as possible with treatments/re...

Jasmine_Rose

•4 years ago

4 Replies

Borderline Ovarian Tumour

Hi Everyone, I’m new here so a little nervous... in the last 2 months I’ve been diagnosed and had a very large borderline ovarian tumour removed, along with...

Hi Everyone, I’m new here so a little nervous... in the last 2 months I’ve been...

BAH2507

•4 years ago

4 Replies

Update on mum

Hi I hope you are all doing as well as can be. I have posted a few times but briefly my mum finished front line chemo for hgs 3c last Dec and carried on with...

Hi I hope you are all doing as well as can be. I have posted a few times but br...

sjg81

•4 years ago

8 Replies

Uncle Jack and Lady Cancer

While at a family gathering this weekend, my dear Uncle Jack was explaining my “illness” to a new friend, another elderly gentlemen, and I overheard him...

While at a family gathering this weekend, my dear Uncle Jack was explaining my “...

Hidden

•4 years ago

18 Replies

Last chemo coming up!

Just got back from my pre chemo oncology appointment. Apparently the MRI on my liver showed no conclusive results so they are going to monitor me from now on...

Just got back from my pre chemo oncology appointment. Apparently the MRI on my l...

Lockygill

•4 years ago

5 Replies

Olaparib available first line in Scotland for BRCA+ women

Hello All This is just to let you know that the Scottish Medicines Consortium (SMC) has today announced that olaparib will be available as first line...

Hello All This is just to let you know that the Scottish Medicines Consortium (...

OvacomeSupport

Partner•4 years ago

Be the first to reply

New mum 🥰🥰🥰🥰

Hello ladies.... today we said a massive thank you and good bye to mum’s wig... her saviour... here is a pic of her as i’ve just finished work ( hairdressers...

Hello ladies.... today we said a massive thank you and good bye to mum’s wig... ...

claireRoberts76

•4 years ago

20 Replies

Financial aid from Macmillan’s

Does anyone have any experience of financial aid from Macmillan’s? I have a friend who is a cleaner who has had a hysterectomy and is about to start chemo so...

Does anyone have any experience of financial aid from Macmillan’s? I have a frie...

juliamillen

•4 years ago

6 Replies

Part 3: Some observations about my hospital stay - not in any particular order

A couple of us have already eluded to the lack of joined-up-ness of the whole thing. And the lack of detail where it would really help - like specific...

A couple of us have already eluded to the lack of joined-up-ness of the whole th...

BellmoreBelle

•4 years ago

13 Replies

Any thoughts or advice

I’ve just finished 4 infusions of carboplatin for recurrence stage 3 serous carcinoma The 3rd one I had an allergic reaction and they stopped and gave me...

I’ve just finished 4 infusions of carboplatin for recurrence stage 3 serous carc...

Calluv

•4 years ago

2 Replies

Chemo starts

So after 4 weeks delay I’m back on at a slightly reduced dose every 4 weeks just carbo anyone else have an experience like this my CA125 after surgery was 19...

So after 4 weeks delay I’m back on at a slightly reduced dose every 4 weeks just...

Lavender2016

•4 years ago

5 Replies

Christmas before chemo

Hi everyone thank you so much for your replies to my last post. I've had a difficult few weeks coming off the steroids and Niraparib including a suspected...

Hi everyone thank you so much for your replies to my last post. I've had a diffi...

Welshandproud

•4 years ago

30 Replies

Part 2: Some observations about my hospital stay - not in any particular order

The leaflet given out about surgery is hideously stereotypical. e.g. "Avoid lifting anything heavy (including children and shopping)" - really? Is that ALL a...

The leaflet given out about surgery is hideously stereotypical. e.g. "Avoid lift...

BellmoreBelle

•4 years ago

9 Replies

In focus: travel - practicalities of travel

Hello This month our series of posts around a particular topic is going to be focused on travel. We're starting today by looking at some of the practical...

Hello This month our series of posts around a particular topic is going to be fo...

OvacomeSupport

Partner•4 years ago

2 Replies

Part 1: Some observations about my hospital stay - not in any particular order

This is my second full day home from hospital, and an attempt to get my thoughts together about what was good and bad about my recent hospital stay and...

This is my second full day home from hospital, and an attempt to get my thoughts...

BellmoreBelle

•4 years ago

3 Replies

Back from London, tired, but hopeful

Dear All, When to the London Clinic yesterday, saw RK, what a difference from the last consultation in London. She started off with the fact that there are...

Dear All, When to the London Clinic yesterday, saw RK, what a difference from t...

Shorty864

•4 years ago

19 Replies

JANE MCCLELLAND - HOW TO STARVE CANCER

I have just acquired and briefly read the above named book. Jane is a long term cancer survivor. (not ovarian). I am interested in her "Metro Map". Has...

I have just acquired and briefly read the above named book. Jane is a long term...

thomas62

•4 years ago

25 Replies

Chemo only once

Hello all, does anyone know if its possible or known for a person, to have chemo only once, then be treated with hormone blockers. X

Hello all, does anyone know if its possible or known for a person, to have chemo...

Terrileeloughlin

•4 years ago

14 Replies

Update on my surgery - p.s. I'm home, 9 days post-surgery!

For those who wanted to know, here's the full list: "SECONDARY OVARIAN DEBULKING, ILEO-CAECAL RESECTION WITH SIDE-TO-SIDE ANASTOMOSIS, PELVIC PERITONECTOMY...

For those who wanted to know, here's the full list: "SECONDARY OVARIAN DEBULKING...

BellmoreBelle

•4 years ago

26 Replies

Our lovely Kryssy....

Hi lovelies, I'm sorry to let you all know but I just had a message from Tony (Kryssy's husband) and have just found out that our lovely Kryssy gained her...

Hi lovelies, I'm sorry to let you all know but I just had a message from Tony (...

CallmeMum

•4 years ago

37 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for December 2019

Low neutrophils - hopefully helpful advice!

LYNPARZA EXPERIENCES

Pain in remaining ovary

Asities

Itching .

Cyst on kidney

BLOODY NOSE

5 years (update)

Feeling very lucky

In focus: travel - insurance

Update from previous post; 2 months on..

Borderline Ovarian Tumour

Update on mum

Uncle Jack and Lady Cancer

Last chemo coming up!

Olaparib available first line in Scotland for BRCA+ women

New mum 🥰🥰🥰🥰

Financial aid from Macmillan’s

Part 3: Some observations about my hospital stay - not in any particular order

Any thoughts or advice

Chemo starts

Christmas before chemo

Part 2: Some observations about my hospital stay - not in any particular order

In focus: travel - practicalities of travel

Part 1: Some observations about my hospital stay - not in any particular order

Back from London, tired, but hopeful

JANE MCCLELLAND - HOW TO STARVE CANCER

Chemo only once

Update on my surgery - p.s. I'm home, 9 days post-surgery!

Our lovely Kryssy....

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