Posts - My Ovacome | HealthUnlocked

My Ovacome

17,734 members • 19,975 posts

All posts for September 2019

Need advice

Hi I don’t writ very often and only scan from time to time but I did write the other day and here I am again,. 2PET/CT Scans and an MRI showed nothing but my...

Hi I don’t writ very often and only scan from time to time but I did write the o...

Calluv

•5 years ago

12 Replies

CA125 is 40: 7 months after surgery, 3 months after adjuvant chemo for mucinous OC

I'm so disappointed as I thought it would decrease now that the tumour has been removed. Before surgery CA125 was 46, after surgery was 33, after first cycle...

I'm so disappointed as I thought it would decrease now that the tumour has been ...

cbulha

•5 years ago

14 Replies

It has returned

Not in a good place tonight, went to the hospital this morning with the hope of seeing my oncologist or seeing someone who could confirm that the ascites was...

Not in a good place tonight, went to the hospital this morning with the hope of ...

Shorty864

•5 years ago

38 Replies

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Waiting for surgery

Hello lovely ladies. I’ve been to see my consultant today with a view of having a hysterectomy. It hasn’t been confirmed I have OC yet, but I am experiencing...

Hello lovely ladies. I’ve been to see my consultant today with a view of havin...

Sisterstogether

•5 years ago

13 Replies

Ca125 increase on chemo

Hi all. Just had my second carbo/taxol round after my first recurrence and my ca125 increased by 200. No second surgery. Any one have any insight or experience...

Hi all. Just had my second carbo/taxol round after my first recurrence and my ca...

Kmastro

•5 years ago

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Niraparib

Well, despite my ca125 rising to 35 from 15 and my neutrophils dropping again, I luckily still just about fit in the criteria for Niraparib. I swallowed my...

Well, despite my ca125 rising to 35 from 15 and my neutrophils dropping again, ...

Welshandproud

•5 years ago

32 Replies

Ovarian cancer and chronic diarrhoea

Stage 4b high grade serious ovarian cancer recently developed chronic uncontrollable diarrhoea. Any suggestions how to cope and what is causing it.

Stage 4b high grade serious ovarian cancer recently developed chronic uncontrol...

Iwillbeatit

•5 years ago

24 Replies

Health and Wellbeing Day - 28 September 2019

Dear All Just a quick reminder about our next London Health and Wellbeing Day on 28 September 2019 at Friends House, 173-177 Euston Road, London, NW1 2BJ. It...

Dear All Just a quick reminder about our next London Health and Wellbeing Day on...

OvacomeSupport

Partner•5 years ago

4 Replies

Leg Cramps Everyone - a thank you

Dear friends on Ovacome, Thanks so much for your input. As you may have surmised, I still have regular bloods taken. My Magnesium and Potassium levels have...

Dear friends on Ovacome, Thanks so much for your input. As you may have surmised...

Lindaura

•5 years ago

5 Replies

Leg Cramps anyone?

Hi, I hate to bother you all with this simple annoyance, but here I go. As most of you know, I stoped Niraparib just 2 and a half weeks ago in preparation for...

Hi, I hate to bother you all with this simple annoyance, but here I go. As most ...

Lindaura

•5 years ago

16 Replies

Retired

Hello everyone, I just retired from the California Highway Patrol after some 35 years I had a great career. I've been fortunate enough to have survived my...

Hello everyone, I just retired from the California Highway Patrol after some 35 ...

Lizchips

•5 years ago

28 Replies

Cytotron Therapy

One of my friends forwarded this therapy details for cancer. Details are on below websites:-...

One of my friends forwarded this therapy details for cancer. Details are on belo...

amolngp

•5 years ago

19 Replies

Jittery and weak

Lately I've been getting jittery and weak and shaky (and almost anxious) later on in the day- seems to be after activity. I had a long day yesterday- longer...

Lately I've been getting jittery and weak and shaky (and almost anxious) later o...

Natsmb

•5 years ago

12 Replies

AVASTIN (BEVAZIZAMAB)

Good morning ladies. Can anybody give me information on Avastin - availability on NHS, cost if buying it privately, anybody's own experiences. Thanks. Gwen...

Good morning ladies. Can anybody give me information on Avastin - availability ...

thomas62

•5 years ago

75 Replies

What a difference a holiday makes

Thank you so much to everyone for all of your lovely comments on my holiday photo. I had the most wonderful time and feel so much more relaxed and well. I have...

Thank you so much to everyone for all of your lovely comments on my holiday phot...

Welshandproud

•5 years ago

33 Replies

Gutted about Olaparib

Hi ladies. So I went to the Onc today - all seems ok and CA125 still low at 10 so very relieved. However, I hadn't realised how much I'd been pinning my hopes...

Hi ladies. So I went to the Onc today - all seems ok and CA125 still low at 10 ...

Emsymits

•5 years ago

14 Replies

Pleural effusion drain

Has anyone had a pleurex catheter inserted for pleural effusion drainage? I have been drained three times and need it again and so they want to put in a...

Has anyone had a pleurex catheter inserted for pleural effusion drainage? I hav...

Aspin

•5 years ago

8 Replies

Just checking in

Hi lovelies, Just checking in with you all to see how you all are? Lots of love Xxxx

Hi lovelies, Just checking in with you all to see how you all are? Lots of lov...

CallmeMum

•5 years ago

36 Replies

St. Barts meeting tonight - looking to get support for my mum who's just about to start chemotherapy this week

Hello! It's a lovely soggy morning where I am! My mum is starting chemotherapy this week and I want her to come to the support group tonight at Maggie's (st....

Hello! It's a lovely soggy morning where I am! My mum is starting chemotherapy t...

Brom42

•5 years ago

10 Replies

Australian TV Program "Australian Story" airs 9 Sept at 8pm on Jill Emberson advocating for more awareness & funding of ovarian cancer

Hi all, Not sure if this can only be viewed in Australia, but thought I'd share anyway. Jill Emberson is an ABC radio broadcaster diagnosed with OC about...

Hi all, Not sure if this can only be viewed in Australia, but thought I'd share ...

ruthg55

•5 years ago

4 Replies

Mums latest scan update 🤔

Hi everyone Its been a while but I thought I would update on my mums latest scan. A little bit of history. My mum was diagnosed with 3C in June 2018. She had...

Hi everyone Its been a while but I thought I would update on my mums latest sca...

sjg81

•5 years ago

17 Replies

2 years on ......

2 years ago and today. I won’t say it’s been easy but I’m still here and grateful for every single day I have. Here to many more!!

2 years ago and today. I won’t say it’s been easy but I’m still here and gratefu...

Eriksendi

•5 years ago

12 Replies

Hormone patches

I am 26 and had to start hormones after finishing chemo because, I am in menopause. They told me that my ovary function could come back. Has any one...

I am 26 and had to start hormones after finishing chemo because, I am in menopau...

Super-kay

•5 years ago

2 Replies

Mucinous Borderline Ovarian Tumour

Hi everyone This is my first post on this site. I am 42 years old, and have 2 teenage children. In middle of July this year I went to my GP with what I...

Hi everyone This is my first post on this site. I am 42 years old, and have 2 t...

Emm77

•5 years ago

13 Replies

Possible bowel obstruction

Possible bowel obstruction Hello to all you amazing ladies my sister may have a bowel obstruction due to the beast. Nurse told her to take muralax and call...

Possible bowel obstruction Hello to all you amazing ladies my sister may have a ...

Nstober

•5 years ago

9 Replies

News on last CT scan and scars on lung

Saw my oncologist on Thursday after having finishing my last cycle (6th) of chemo and was told that the scan shows I still have a very small lymph node in my...

Saw my oncologist on Thursday after having finishing my last cycle (6th) of chem...

Shorty864

•5 years ago

12 Replies

Rolling the Dice After All

Hi everyone, Here is my update after a really thorough appointment with my Oncologist in Bath, with lots of input from my husband and daughter. We all...

Hi everyone, Here is my update after a really thorough appointment with my Oncol...

Lindaura

•5 years ago

72 Replies

peritoneal cancer

Hello I am looking for some advise please. Two years ago my mum was diagnosed with peritoneal cancer it was not any where else. She had six rounds of chemo and...

Hello I am looking for some advise please. Two years ago my mum was diagnosed wi...

Aliollie

•5 years ago

21 Replies

Journalist request

Hello, All We have been approached by a journalist writing for a national newspaper, who is in the process of putting together an article on the latest...

Hello, All We have been approached by a journalist writing for a national newspa...

OvacomeSupport

Partner•5 years ago

6 Replies

Surgery

So tomorrow I head for Nottingham where I'll stay in the hospital hotel overnight ,then hysterectomy and removal of anything suspicious . This is what I've...

So tomorrow I head for Nottingham where I'll stay in the hospital hotel overnigh...

fendweller

•5 years ago

28 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for September 2019

Need advice

CA125 is 40: 7 months after surgery, 3 months after adjuvant chemo for mucinous OC

It has returned

Waiting for surgery

Ca125 increase on chemo

Niraparib

Ovarian cancer and chronic diarrhoea

Health and Wellbeing Day - 28 September 2019

Leg Cramps Everyone - a thank you

Leg Cramps anyone?

Retired

Cytotron Therapy

Jittery and weak

AVASTIN (BEVAZIZAMAB)

What a difference a holiday makes

Gutted about Olaparib

Pleural effusion drain

Just checking in

St. Barts meeting tonight - looking to get support for my mum who's just about to start chemotherapy this week

Australian TV Program "Australian Story" airs 9 Sept at 8pm on Jill Emberson advocating for more awareness & funding of ovarian cancer

Mums latest scan update 🤔

2 years on ......

Hormone patches

Mucinous Borderline Ovarian Tumour

Possible bowel obstruction

News on last CT scan and scars on lung

Rolling the Dice After All

peritoneal cancer

Journalist request

Surgery

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