Posts - My Ovacome | HealthUnlocked

My Ovacome

17,746 members • 19,983 posts

All posts for August 2019

Talk to clinicians - your comments needed

Dear All Our CEO Victoria has been asked to give a talk to a large group of clinicians. One of the questions she's been asked to prepare is: 'How can...

Dear All Our CEO Victoria has been asked to give a talk to a large group of clin...

OvacomeSupport

Partner•5 years ago

40 Replies

TODAY IS THE DAY

So after what feels like a megaa long 10 day wait from my urgent referral today is the day I find out where I stand... Ultrasound... TVS then straight in to...

So after what feels like a megaa long 10 day wait from my urgent referral today ...

linzilou78

•5 years ago

11 Replies

3rd Time Lucky!

Hello, Well I’ve been living my best life trying to wish away this dreadful disease but unfortunately I’m back to earth with a bump and confirmed recurrence!...

Hello, Well I’ve been living my best life trying to wish away this dreadful dis...

Hidden

•5 years ago

55 Replies

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Klorakas

My beloved wife Barbara lost her 19 month battle with bowel and stomach cancer and passed away peacefully early hours Sunday morning. I was at her side till...

My beloved wife Barbara lost her 19 month battle with bowel and stomach cancer a...

Klorakas

•5 years ago

20 Replies

An Angel sent from heaven taken back far too soon

Hi I am Dianesk partner Unfortunately Diane lost her courageous fight on the 9th of August She will be so sadly missed by many many people.

Hi I am Dianesk partner Unfortunately Diane lost her courageous fight on the 9...

DianesK

•5 years ago

34 Replies

A little light relief

I thought you might all have a giggle at this. I am very nervous about my bloods on Thursday. If my neutrophils drop then my holiday next week is off. My...

I thought you might all have a giggle at this. I am very nervous about my bloods...

Welshandproud

•5 years ago

36 Replies

Support Service open until 8pm Tuesdays

Hello All This is just to let you know we are piloting opening the support service until 8pm on Tuesday, so please do get in touch if you'd like to contact us...

Hello All This is just to let you know we are piloting opening the support servi...

OvacomeSupport

Partner•5 years ago

2 Replies

Fighting for better Options

Hello everyone, This is my update from my disappointing realisation that even though I am BRCA 1 positive, Niraparib was not the saviour I had hoped it would...

Hello everyone, This is my update from my disappointing realisation that even th...

Lindaura

•5 years ago

74 Replies

Advice needed please

Hi all, I’m sorry that I’ve not posted for a while. I really could do with your advice. In March 18 I was diagnosed with stage 3c ovarian cancer, I had chemo...

Hi all, I’m sorry that I’ve not posted for a while. I really could do with your ...

Tay100

•5 years ago

8 Replies

Low Grade Serous Ovarian Cancer .. interview with Guru

Hi ladies. My friend set up a site specifically for Low Grade Ovarian Cancer and at the Ovarian Cancer conference in the United States this year she actually...

Hi ladies. My friend set up a site specifically for Low Grade Ovarian Cancer and...

Levanah

•5 years ago

7 Replies

Advice & comment please!

I just really need any comments to help me out of a black hole! I recently completed 6 months of carbo/Caelyx chemo (first recurrence and Caelyx discontinued...

I just really need any comments to help me out of a black hole! I recently comp...

CarolynA

•5 years ago

49 Replies

Health and Wellbeing Day - 28 September 2019

Dear All This is to let you know about our next London Health and Wellbeing Day on 28 September 2019 at Friends House, 173-177 Euston Road, London, NW1 2BJ....

Dear All This is to let you know about our next London Health and Wellbeing Day ...

OvacomeSupport

Partner•5 years ago

5 Replies

Weekly Taxol

Hi I am on weekly Taxol after Carboplatin did not work. I have done 5 infusions but I have lost my appetite and this weekend I had the shakes which was...

Hi I am on weekly Taxol after Carboplatin did not work. I have done 5 infusions ...

Angie1412

•5 years ago

18 Replies

Potential bowel obstruction

I might possibly have a potential bowel obstruction. Can anybody advise what I should be taking orally to prevent. Many thanks. Gwen Xx

I might possibly have a potential bowel obstruction. Can anybody advise what I ...

thomas62

•5 years ago

15 Replies

Any other blogs out here?

Hi All I hope your summers are going ok. I've been enjoying this supportive group and am thankful to have the resources and pleasant people here to turn to....

Hi All I hope your summers are going ok. I've been enjoying this supportive gro...

FighterCW

•5 years ago

9 Replies

SCAN following raised CA125

Anybody had scan results on same day? x

linzilou78

•5 years ago

13 Replies

Olaparib side effects

Hallo, I'm BRCA2 positive and have been on Olaparib for 3 months now. I've had issues with my kidneys due to this, pain in my ankles, calves and extreme...

Hallo, I'm BRCA2 positive and have been on Olaparib for 3 months now. I've had i...

Tina28

•5 years ago

1 Reply

Kidney stent

Can any teal lady who has required or who has knowledge of stenting tell me why it was required and the procedure. Best wishes to all.

Can any teal lady who has required or who has knowledge of stenting tell me why ...

thomas62

•5 years ago

15 Replies

Brca test

Hi went up to Guys yesterday for the test, spent 40 mins talking to a lovely lady called Sarah. She was explaining about the good results if you do have a...

Hi went up to Guys yesterday for the test, spent 40 mins talking to a lovely lad...

triplets

•5 years ago

18 Replies

Good CA125 result again

Hi everybody. Just to report that my recent CA125 result was very good again, at 6, same as 6 months ago. I am very fortunate that ibuprofen appears to work...

Hi everybody. Just to report that my recent CA125 result was very good again, at...

drdu

•5 years ago

34 Replies

Query - re Diagnosis is 3C high grade serous carcinoma of fallopian tube what are the options for treatment?

Dear all, I wanted to thank you all for the amazing support you offer to this group. I have been reading several posts over the last few weeks. I am after...

Dear all, I wanted to thank you all for the amazing support you offer to this gr...

Brom42

•5 years ago

7 Replies

CA 125

Hi ladies CA 125 has risen from 15 to 24 in 6 weeks Though it’s a different lab this time Should I worry I finished chemo nearly a year ago for early stage...

Hi ladies CA 125 has risen from 15 to 24 in 6 weeks Though it’s a different lab ...

Serengeti

•5 years ago

3 Replies

CA125 result

Hello. I posted on here about a week ago worried that I possibly had symptoms of ovarian cancer. People on here were amazing and I followed their advice and...

Hello. I posted on here about a week ago worried that I possibly had symptoms of...

Pippycat89

•5 years ago

19 Replies

Vit e + Avastin for ovarian cancer

Had anyone here taking Vitamin E delta tocotrienols along with AVASTIN or chemo??? the below study especially for OVC, says annatoo tocotrienols with avastin...

Had anyone here taking Vitamin E delta tocotrienols along with AVASTIN or chemo?...

hopefullykarthik

•5 years ago

2 Replies

Ovarian cancer reoccurred in 3 months of HIPEC surgery

Hi All, My mom 45 yr dx mucinous adenocarcinoma ovarian cancer, undergone 6 cycles of carbo + paclitaxel ,which didnt hep and disease progressed. She had...

Hi All, My mom 45 yr dx mucinous adenocarcinoma ovarian cancer, undergone 6 cycl...

hopefullykarthik

•5 years ago

4 Replies

Low Grade Serous and Braca

Hi Ladies Anyone here have Low Grade serous and is Braca positive? If you do have Low grade ..have you been tested for the Braca defect? If not why? I have...

Hi Ladies Anyone here have Low Grade serous and is Braca positive? If you do hav...

Lizjj

•5 years ago

18 Replies

ICON trial

Hi all, I have been on this trial for 6 years and the results show that the three weekly Pachyarel and Carboplaton is the best way for chemo. Well actually...

Hi all, I have been on this trial for 6 years and the results show that the thre...

ZenaJ

•5 years ago

27 Replies

Home later

Thank you everyone for your kind replies and suggestions re my yet another hospvacation?! Neutrophils are still not playing ball, still at 0.1 although HB and...

Thank you everyone for your kind replies and suggestions re my yet another hospv...

Barmycharm

•5 years ago

21 Replies

Niraparib availability

You probably have already seen this but just in case! https://ovarian.org.uk/news-and-blog/news/ovarian-cancer-drug-niraparib-approved-nhs-use/

You probably have already seen this but just in case! https://ovarian.org.uk/ne...

Hidden

•5 years ago

6 Replies

Is anyone taking NSAIDs with their Taxols? It seems that research indicates that the effectiveness of Taxols may be extended.

Research indicates that where Paclitaxel (one of the taxols) loses effectiveness, or we become resistant to it by building up certain proteins in our system...

Research indicates that where Paclitaxel (one of the taxols) loses effectiveness...

AlaNtO

•5 years ago

3 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for August 2019

Talk to clinicians - your comments needed

TODAY IS THE DAY

3rd Time Lucky!

Klorakas

An Angel sent from heaven taken back far too soon

A little light relief

Support Service open until 8pm Tuesdays

Fighting for better Options

Advice needed please

Low Grade Serous Ovarian Cancer .. interview with Guru

Advice & comment please!

Health and Wellbeing Day - 28 September 2019

Weekly Taxol

Potential bowel obstruction

Any other blogs out here?

SCAN following raised CA125

Olaparib side effects

Kidney stent

Brca test

Good CA125 result again

Query - re Diagnosis is 3C high grade serous carcinoma of fallopian tube what are the options for treatment?

CA 125

CA125 result

Vit e + Avastin for ovarian cancer

Ovarian cancer reoccurred in 3 months of HIPEC surgery

Low Grade Serous and Braca

ICON trial

Home later

Niraparib availability

Is anyone taking NSAIDs with their Taxols? It seems that research indicates that the effectiveness of Taxols may be extended.

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