Posts - My Ovacome | HealthUnlocked

My Ovacome

17,746 members • 19,983 posts

All posts for May 2019

Referral

Having a referral tomorrow to see a professor at st Charlotte's hospital in London travel down from Norfolk today five years since diagnosis could not have...

Having a referral tomorrow to see a professor at st Charlotte's hospital in Lond...

Bobbyo1

•5 years ago

10 Replies

Unsure

Hi I’ve had pelvic pain for some time , had endometrial ablation for bleeding , now nil periods , However recently pelvic pain there most of the time , not...

Hi I’ve had pelvic pain for some time , had endometrial ablation for bleeding , ...

Cathhunt

•5 years ago

2 Replies

Pain in upper back

Hello ladies long time since I have posted, but I was wondering if any of you have had a upper back pain more to the right side. My marker are raising again...

Hello ladies long time since I have posted, but I was wondering if any of you ha...

Annr5h

•5 years ago

2 Replies

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Strangers on a Train!

I want to thank all the people I met yesterday at the members day, for a lovely day out - old friends, new friends and inspirational experts. I had a great...

I want to thank all the people I met yesterday at the members day, for a lovely ...

Alifit

•5 years ago

3 Replies

Awaiting hysterectomy for adnexal mass, cat 3 from scan ca125 score 1

I've been told I have a cat3 (high risk) mass on my right ovary and i need it removing . Opted for full hysterectomy as I'm 49 and already had menopause and...

I've been told I have a cat3 (high risk) mass on my right ovary and i need it re...

Gillyd69

•5 years ago

8 Replies

My first post - being brave!

Hello to everyone. I have been following the posts since December when I was diagnosed with ovarian cancer. I had surgery in January and was told afterwards...

Hello to everyone. I have been following the posts since December when I was dia...

Gigicat

•5 years ago

33 Replies

CA-125

I just finished a 6 month series of gemcitabine and carbo. My oncologist was pleased that I could handle 6 sessions. I ended up having to be admitted to the...

I just finished a 6 month series of gemcitabine and carbo. My oncologist was pl...

Deb52

•5 years ago

5 Replies

Fluid in stomach 4.5yrs after diagnose... last chemo topoten/

Hope all you lovely ladies are doing ok I don't post much but check out to see how you warriors are doing.. so my last chemo in april was topoten 4 days on 2...

Hope all you lovely ladies are doing ok I don't post much but check out to see h...

Tracex

•5 years ago

1 Reply

Rising Cat125 levels

Hi All, My wife had blood tests done in February and her Cat125 levels were 49. She had an ultrasound and all was clear. This week she had her bloods done...

Hi All, My wife had blood tests done in February and her Cat125 levels were 49. ...

Sid1979

•5 years ago

8 Replies

Signing a form to agree that the chemo only palliates the disease

Hello Lovely ladies Thanks to those of you that gave me advise on stoma, cyst surgery and pacitaxel. It has been incredibly helpful.. A pity I didn't know...

Hello Lovely ladies Thanks to those of you that gave me advise on stoma, cyst su...

dieneke

•5 years ago

37 Replies

CT Scan update

Hi lovely ladies, just to let you know that I've had my CT scan results and it shows no sign of any cancer. Been clear now since February 2014. It does show...

Hi lovely ladies, just to let you know that I've had my CT scan results and it s...

ZenaJ

•5 years ago

77 Replies

Anybodyo gone through chemo for stage 1C of GCT

I am 43 and has been diagnosed with GCT followed by total hysterectomy. Now the problem is histopathology says it is stage 1A and the surgeon said that there...

I am 43 and has been diagnosed with GCT followed by total hysterectomy. Now the ...

Ruqys

•5 years ago

13 Replies

Anyone has been on Paclitaxel on its own and cyst

Hello lovely ladies It is still quite a bumpy ride,diagnosed last February, Had paclitaxel/carboplatyn last year. CT showed stable, but no surgery and by...

Hello lovely ladies It is still quite a bumpy ride,diagnosed last February, Had ...

dieneke

•5 years ago

13 Replies

Berberine?

Hi All Does anyone know anything about berberine? Just read book by Jane Mclelland and she has such praise for it. (How to starve cancer) Done a lot of...

Hi All Does anyone know anything about berberine? Just read book by Jane Mclella...

Hidden

•5 years ago

33 Replies

Low Grade Serous Ovarian Cancer

Hello Teal Sisters. I’m very keen to connect with others diagnosed with Low Grade Serous Ovarian Cancer. Please would you let me know if you have this rare...

Hello Teal Sisters. I’m very keen to connect with others diagnosed with Low Gra...

Levanah

•5 years ago

55 Replies

Post menopausal .. suspected OC what was your pain like prior to diagnosis

I can’t find out if I have OC due to other heath conditions I can’t have any surgery .. I have history of ovarian cysts prior to menopause. I am now post and...

I can’t find out if I have OC due to other heath conditions I can’t have any sur...

diww1

•5 years ago

17 Replies

Blood in Urine

I’ve been passing blood in my urine since Friday. I came into hospital on Saturday and I’ve been on pain killers and antibiotics since then. Yesterday I had an...

I’ve been passing blood in my urine since Friday. I came into hospital on Saturd...

jane2014

•5 years ago

7 Replies

Ca125& fever infection

Hello, hope everyone is doing fine. I wanted to understand if any fever and infection can cause an increase in CA125. My mom had fever due to a mild infection...

Hello, hope everyone is doing fine. I wanted to understand if any fever and infe...

sara_mamani96

•5 years ago

10 Replies

3 month check ....

With everything else going on (bladder growth) a worrying time. Have biopsy planned for Sunday. Anyhow had my normal 3 month check today and fearing...

With everything else going on (bladder growth) a worrying time. Have biopsy plan...

Eriksendi

•5 years ago

10 Replies

Newbie mucinous carcinoma anybody else with this please ?

Hi everyone I am newly diagnosed Last year I noticed that I kept needing to go to the toilet more often and I was experiencing sharp pains around my left over...

Hi everyone I am newly diagnosed Last year I noticed that I kept needing to go t...

Stephywephywoo

•5 years ago

21 Replies

Athena Trial - anyone signing up?

Hello all I was diagnosed 3c in January and my last (6th) chemo should be in June. I’m hoping to then go on the Athena trial if my tests/scan don’t show...

Hello all I was diagnosed 3c in January and my last (6th) chemo should be in Jun...

DouglasPouch

•5 years ago

2 Replies

Genetics testing.

Hello everybody from sunny north wales.. Mum finally got her genetics result and it’s negative so me and my sister wont need to be tested! This is a big relief...

Hello everybody from sunny north wales.. Mum finally got her genetics result and...

claireRoberts76

•5 years ago

10 Replies

Feeder tube question

This is pre Chemo to build up strength. Anyone know how long it can take to administer? And if it tends to be just one session or a few.

This is pre Chemo to build up strength. Anyone know how long it can take to admi...

LittleMissMerit

•5 years ago

1 Reply

Blood results

I had my blood results back but don't really understand them the only things that are marked as abnormal are progesterone is <1 nmol/L Monocyte count is 1.09...

I had my blood results back but don't really understand them the only things tha...

Lotty75

•5 years ago

3 Replies

Incisional Hernia .... any happy repair stories?

Hello All, So my weird shaped belly that has becoming more pronounced these last 3 months turns out to be another incisional hernia from July 2018 surgery....

Hello All, So my weird shaped belly that has becoming more pronounced these last...

ruthg55

•5 years ago

19 Replies

Update on ICON8 trial

Hope everyone is feeling as well as possible. The results for the trial have arrived and are for figures up to 2018. It shows that having chemo weekly makes no...

Hope everyone is feeling as well as possible. The results for the trial have arr...

ZenaJ

•5 years ago

12 Replies

Here we go again!!

First post for a while - I stepped back for a while to concentrate on family, friends and me! I managed skiing, riding, dancing, modelling in the Touch of Teal...

First post for a while - I stepped back for a while to concentrate on family, fr...

Alifit

•5 years ago

45 Replies

My first Post

I was diagnosed with Primary peritoneal cancer in late Dec 2018. My primary care doctor couldn't figure out what was going on with my sore abdomen. Finally...

I was diagnosed with Primary peritoneal cancer in late Dec 2018. My primary care...

Bostonmom

•5 years ago

6 Replies

Biopsy And Ascites drain.

My Mum just had her Biopsy and Ascites drain yesterday and she is in a lot of pain. The nurses told her she would be and gave her some pain killers, Is this...

My Mum just had her Biopsy and Ascites drain yesterday and she is in a lot of pa...

LittleMissMerit

•5 years ago

9 Replies

Riddled with anxiety

My mother was diagnosed about 3 1/2 years ago with high grade stage 3 ovarian cancer. She had optimal debulking done by Dr. Chi at Memorial Sloan Kettering in...

My mother was diagnosed about 3 1/2 years ago with high grade stage 3 ovarian ca...

mgrae456

•5 years ago

13 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for May 2019

Referral

Unsure

Pain in upper back

Strangers on a Train!

Awaiting hysterectomy for adnexal mass, cat 3 from scan ca125 score 1

My first post - being brave!

CA-125

Fluid in stomach 4.5yrs after diagnose... last chemo topoten/

Rising Cat125 levels

Signing a form to agree that the chemo only palliates the disease

CT Scan update

Anybodyo gone through chemo for stage 1C of GCT

Anyone has been on Paclitaxel on its own and cyst

Berberine?

Low Grade Serous Ovarian Cancer

Post menopausal .. suspected OC what was your pain like prior to diagnosis

Blood in Urine

Ca125& fever infection

3 month check ....

Newbie mucinous carcinoma anybody else with this please ?

Athena Trial - anyone signing up?

Genetics testing.

Feeder tube question

Blood results

Incisional Hernia .... any happy repair stories?

Update on ICON8 trial

Here we go again!!

My first Post

Biopsy And Ascites drain.

Riddled with anxiety

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