Posts - My Ovacome | HealthUnlocked

My Ovacome

17,707 members • 19,962 posts

All posts for May 2019

The merciless wait...

Hi everyone, I'm new here. I guess I'm here because it is hard to talk to my significant other since he is just as scared as I am, and being realistic seems...

Hi everyone, I'm new here. I guess I'm here because it is hard to talk to my sig...

LittleMissNash

•5 years ago

14 Replies

Permanent drain

Morning all, due to have a permanent drain done next week to control my ascites. Anyone else had this and are there any side effects?

Morning all, due to have a permanent drain done next week to control my ascites....

newfoundland

•5 years ago

7 Replies

Blood test.

Hi ladies,not been on for a while l have been stable for 14 months but getting a few grumbles in tummy,i have high grade mucinous carcinoma stage 3c ,and a...

Hi ladies,not been on for a while l have been stable for 14 months but getting a...

Shortie38

•5 years ago

6 Replies

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Stopping Caelyx halfway through

Hi lovely ladies just wondering if anyone else had experienced similar problems with caelyx. I started carbo caelyx in January for my first recurrence and...

Hi lovely ladies just wondering if anyone else had experienced similar problems ...

Welshandproud

•5 years ago

58 Replies

Totally Gutted!!

I asked my CNS nurse to let me know my latest CA125, she rang today and sadly it has risen from 102 in March to 402 today, my CTscan shows a "few...

I asked my CNS nurse to let me know my latest CA125, she rang today and sadly it...

Hidden

•5 years ago

61 Replies

Return to chemo

So, after only 4 months since the last chemo (cisplatin and gemcitabine) and on Avastin, i am back on chemo. It’s cisplatin and caelyx this time. Ca125 at 165,...

So, after only 4 months since the last chemo (cisplatin and gemcitabine) and on ...

Grace-53

•5 years ago

7 Replies

Nearly made it to 5 years

I thought I’d got away with it until my CA125 spiked at my very last 6 monthly appointment. After a CT scan, a PET scan, a biopsy and another CT scan I’ve been...

I thought I’d got away with it until my CA125 spiked at my very last 6 monthly a...

Lockygill

•5 years ago

37 Replies

Hair growth on chemo

I’ve got one more treatment to go and I’ve had 5 already, my hair almost all fell out 2 weeks after the first one. After it really started to come out I had it...

I’ve got one more treatment to go and I’ve had 5 already, my hair almost all fel...

Flower2011

•5 years ago

11 Replies

Has anyone taken Docetaxel

Hello Lovely ladies Thanks for all your advice on cysts, surgeries and weekly paclitaxel. I am still in the middle of it what looks like a right old mess....

Hello Lovely ladies Thanks for all your advice on cysts, surgeries and weekly p...

dieneke

•5 years ago

3 Replies

Cruise Update

Hello Ladies - I promised to let you know how the cruise went, well it was fantastic! I would definitely go on another one in a heart beat. In fact we are...

Hello Ladies - I promised to let you know how the cruise went, well it was fanta...

Hidden

•5 years ago

32 Replies

Before diagnosis did you have cramps and pain in ovaries

I wonder if any of you dear ladies had period like cramps in abdomen womb area and stabbing in ovary / overies before diagnosis .. that varied in level of...

I wonder if any of you dear ladies had period like cramps in abdomen womb area a...

diww1

•5 years ago

43 Replies

Mum started Chemo CarboTaxol what can we expect?

Hi finally my Mum has started Chemo. Been diagnosed as Serous Grade 3C. Next cycle planned for 3 weeks time. She is planning to get her hair cut short. How...

Hi finally my Mum has started Chemo. Been diagnosed as Serous Grade 3C. Next cyc...

LittleMissMerit

•5 years ago

24 Replies

Gemcitabine reaction?

Gemcitabine...ovarian cancer stage 4 12 months ca125 raised so started Gemcide 3 weeks ago Tuesday’s(weekly dose) first week temp raised slightly on Thursday...

Gemcitabine...ovarian cancer stage 4 12 months ca125 raised so started Gemcide 3...

MaureenAlice

•5 years ago

4 Replies

2nd recurrence

Hi Ladies starting chemo again on the 30th May , has anyone had any experience on carboplatin and cyclophosphamide, if so how did you feel, side effects ect...

Hi Ladies starting chemo again on the 30th May , has anyone had any experience o...

Lorent

•5 years ago

8 Replies

pain after surgery in lower pelvis region is making life difficult for me after a debulk operation please help?

pain after surgery in lower pelvis region is making life difficult for me after ...

Moira2019

•5 years ago

5 Replies

Avastin aching joints.

I have Avastin every 3 weeks, and my joints are so sore! I can hardly put my knees and ankles together at bedtime. Can anyone recommend effective pain relief,...

I have Avastin every 3 weeks, and my joints are so sore! I can hardly put my kne...

Georgiatec

•5 years ago

8 Replies

Ovarian cyst

I got my ultrasound results back today this is what it says uterus is antereverted, Trilaminar endometium appears homogeneous an regular measuring 0.8cm, 2cm...

I got my ultrasound results back today this is what it says uterus is anterevert...

Lotty75

•5 years ago

4 Replies

Steroids and Weight Gain

Hello fellow survivors. I had OC last year, ascites twice, drains, chemo, major debulking and total hysterectomy then more chemo. Now on Avastin, have...

Hello fellow survivors. I had OC last year, ascites twice, drains, chemo, major ...

TudorPurr68

•5 years ago

7 Replies

10th Bowel Obstruction

Just wanted to post a fed up message. I came away for a little break with my daughter and grandchildren and have ended up in Bangor hospital miles away from...

Just wanted to post a fed up message. I came away for a little break with my dau...

DianesK

•5 years ago

36 Replies

Heaven gained another teal angel.

My mom, 57, passed peacefully surrounded by family on Sunday, May 19th, after a two and a half year diagnosis with ovarian cancer. She primarily browsed this...

My mom, 57, passed peacefully surrounded by family on Sunday, May 19th, after a ...

kristinaapril

•5 years ago

38 Replies

1 Month Down - all good on Niraparib/Zejula

Good news everyone! Just finished with Oncology appointment after my first month on. My dosage was 200mgs per day, which I take in the morning. Saw assistant...

Good news everyone! Just finished with Oncology appointment after my first month...

Lindaura

•5 years ago

61 Replies

Borderline Mucinous Tumour

Hi, I'm new here, I've recently been diagnosed with a borderline mucinous tumour, after a removal of a cyst that was thought to be an endometrioma. We had been...

Hi, I'm new here, I've recently been diagnosed with a borderline mucinous tumour...

summer86

•5 years ago

9 Replies

What happens after trial?

Hi all, My mum is on ONX at RM. She has another 2 of 6 left. I just wondered what happens after a trial usually? Are you just left to get on with it?

Hi all, My mum is on ONX at RM. She has another 2 of 6 left. I just wondered wha...

MissEd

•5 years ago

3 Replies

Scam

And this one xx

Samjane

•5 years ago

7 Replies

Scam

Reported these two private messages as scams, be aware of them please xx

Samjane

•5 years ago

3 Replies

Prioritising

Why are we lagging behind other Countries in screening/treating this killer disease

Why are we lagging behind other Countries in screening/treating this killer dise...

Sailor666

•5 years ago

5 Replies

Info request on Non Brca - Parp inhibitors Olaparib, Niraparib etc trials?

Hello, As I seem to be coming up to a recurrence I wondered if any of you any info on non BRCA use of PARP INHIBITORS: Olaparib, Niraparib etc. Which...

Hello, As I seem to be coming up to a recurrence I wondered if any of you any i...

Hidden

•5 years ago

14 Replies

mum feeling better x

Hello everybody... Mum had her appointment on thursday last week to discuss how her operation went, Mum was told there is no visable disease left and her ca125...

Hello everybody... Mum had her appointment on thursday last week to discuss how ...

claireRoberts76

•5 years ago

24 Replies

First post - Stage 3? High grade OC

Hi all I’ve been reading posts occasionally in here since I was diagnosed with OC in March. I’m 44 yrs old and to this point actively healthy. I’m happily...

Hi all I’ve been reading posts occasionally in here since I was diagnosed with O...

FighterCW

•5 years ago

15 Replies

Spam private messaging

Hi lovelies, Just to make you aware that someone with the username Mitchel01 is privately messaging people I have reported the person as I’ve had a message...

Hi lovelies, Just to make you aware that someone with the username Mitchel01 is ...

CallmeMum

•5 years ago

10 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for May 2019

The merciless wait...

Permanent drain

Blood test.

Stopping Caelyx halfway through

Totally Gutted!!

Return to chemo

Nearly made it to 5 years

Hair growth on chemo

Has anyone taken Docetaxel

Cruise Update

Before diagnosis did you have cramps and pain in ovaries

Mum started Chemo CarboTaxol what can we expect?

Gemcitabine reaction?

2nd recurrence

pain after surgery in lower pelvis region is making life difficult for me after a debulk operation please help?

Avastin aching joints.

Ovarian cyst

Steroids and Weight Gain

10th Bowel Obstruction

Heaven gained another teal angel.

1 Month Down - all good on Niraparib/Zejula

Borderline Mucinous Tumour

What happens after trial?

Scam

Scam

Prioritising

Info request on Non Brca - Parp inhibitors Olaparib, Niraparib etc trials?

mum feeling better x

First post - Stage 3? High grade OC

Spam private messaging

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