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My Ovacome

17,746 members • 19,983 posts

All posts for March 2019

Concerned about symptoms

Hi! New here and have posted in some of the other forums whilst looking at different diagnoses of and ibd or endometriosis. Someone has shared ovarian cancer...

Hi! New here and have posted in some of the other forums whilst looking at diffe...

Loubrown24

•5 years ago

11 Replies

Carboplatin/Caelyx and low neutrophils

I had my first dose of carbon caelyx for my first recurrence on February 1st. It really hit me hard and completely wiped me out. When I had my blood tested a...

I had my first dose of carbon caelyx for my first recurrence on February 1st. It...

Welshandproud

•5 years ago

29 Replies

Cantrixil

Hi There, My Mum has just commenced treatment in the Phase 1B of the Crantrxil Clinical Trail in Australia. Just wondering if anyone else on this forum is...

Hi There, My Mum has just commenced treatment in the Phase 1B of the Crantrxil ...

DMtrailuser

•5 years ago

11 Replies

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Intraperitoneal chemo

Hi ladies Even though this is my first post I have been on this forum since my mum was diagnosed with OC in Nov 2017 and you have no idea how helpful you have...

Hi ladies Even though this is my first post I have been on this forum since my m...

cathylegge

•5 years ago

18 Replies

Home x

mum’s coming home tomorrow !!! Infection has cleared.. weight is coming back on, getting her stronger for chemo no 3!... bossing the family about to get...

mum’s coming home tomorrow !!! Infection has cleared.. weight is coming back on,...

claireRoberts76

•5 years ago

36 Replies

CA125 tests.

I’m having 3 monthly tests and luckily they are only around 10. My question is if they have removed everything eg womb, cervix, ovaries, tubes, appendix does...

I’m having 3 monthly tests and luckily they are only around 10. My question is i...

Lizzie1234

•5 years ago

17 Replies

Anyone considering cold cap

Hi ladies is anyone about to start chemo and having the cold cap? I bought some special shampoo and conditioner that helps with the cold cap from Daniel field...

Hi ladies is anyone about to start chemo and having the cold cap? I bought some ...

Hidden

•5 years ago

8 Replies

Update - not great news

Hi everyone, first of all I just want to say how grateful I am for all of your comments on my previous post, you were all so kind and really put my mind at...

Hi everyone, first of all I just want to say how grateful I am for all of your c...

Small_bump

•5 years ago

39 Replies

Ca-125 level slightly increased.

Hi, I’m new here and I’m basically here to get some insight about ca-125 level. Recently, I’ve been having this feeling like there’s something wrong with me,...

Hi, I’m new here and I’m basically here to get some insight about ca-125 level. ...

CND125

•5 years ago

8 Replies

Fed up but no option

I am fed.up with all treatment, painful n results in progressive disease. Avastin n irrinotcan every week.... Blood work. CT. Chemo. Is this our fate. No...

I am fed.up with all treatment, painful n results in progressive disease. Avasti...

viduanujranu

•5 years ago

12 Replies

Recurrence within one month of surgery

Hi has anyone else had a recurrence within a month of surgery? I am convinced it is back, I have swelling on the left side, the same niggling pain and bleeding...

Hi has anyone else had a recurrence within a month of surgery? I am convinced it...

Sabbyroo

•5 years ago

5 Replies

Advice on diaphragm surgery

Hi all Just wanted to say how much I appreciate everyone’s advice and support when I look through. I don’t post often but it does really help and I feel I...

Hi all Just wanted to say how much I appreciate everyone’s advice and support wh...

NIKKibailie

•5 years ago

15 Replies

Update

Hi just thought i would give an update. After consultant meeting 3 weeks ago they decided not to do anything about the cancer in the vaginal vault as it was...

Hi just thought i would give an update. After consultant meeting 3 weeks ago the...

Angie1412

•5 years ago

17 Replies

Weekly or 3 weekly

Hi Ladies I’ve just been told in clinic that I am too high risk for the trial I was offered so my options now are weekly taxol or 3 weekly carboplatin and...

Hi Ladies I’ve just been told in clinic that I am too high risk for the trial I ...

SuSue

•5 years ago

13 Replies

Not BRCA

The results of the genetic tests have come back and as I suspected I’m not BRCA positive. Will be one year post chemo next month and have everything crossed...

The results of the genetic tests have come back and as I suspected I’m not BRCA ...

JayGeeCee

•5 years ago

3 Replies

Hiya Ladies .. Anyone heard from Kryssy or Suzanne or lilyann? Sad news about Lorraine.. 😥 thanks xx

SuziTench1

•5 years ago

8 Replies

progress xx

Hello ladies... Just an update and a question? Mum is better, still in hosp on fluids and antibiotics but not eating as she says as soon as she swallows theres...

Hello ladies... Just an update and a question? Mum is better, still in hosp on f...

claireRoberts76

•5 years ago

13 Replies

Olaparib

hello I got the diagnosis in 2015 Brca1. I have been using olaparib for 3 weeks, but ca 125 increased rapidly doktors says its possible early used olaparib...

hello I got the diagnosis in 2015 Brca1. I have been using olaparib for 3 weeks,...

Serefraz

•5 years ago

5 Replies

Olaparib

merhaba 2017'den beri kemoterapi alıyorum, son kemoterapist 2015'ten sonra ca125 yükselmeye başladıktan sonra olaparib kullanmaya başladım. durum? CA 125'im ne...

merhaba 2017'den beri kemoterapi alıyorum, son kemoterapist 2015'ten sonra ca125...

Serefraz

•5 years ago

1 Reply

Olaparib and erythromycin

Has anybody come across the issue of erythromycin making the effect of Olaparib stronger? I’ve been put on a tiny dose of the antibiotic to protect my gut but...

Has anybody come across the issue of erythromycin making the effect of Olaparib ...

Hidden

•5 years ago

8 Replies

Back on treatment- Hey ho

Well once again everything moved very quickly. Within 2 weeks l'd had my ct scan and re started chemo. This time Carbo/Gem for recurrence after only 9 months....

Well once again everything moved very quickly. Within 2 weeks l'd had my ct scan...

Birdsong222

•5 years ago

21 Replies

Bubbles-1 Sad News - I wrote to Michelle to find out any news about her and this is what I received:

Bubbles-1 Hi Laura it's Bubbles husband Martin, I have some very sad news Laura, my Beautiful Michelle has passed away peacefully on the 19 of Feb. As a lot of...

Bubbles-1 Hi Laura it's Bubbles husband Martin, I have some very sad news Laura,...

Lindaura

•5 years ago

38 Replies

Remission from Calexy

Hei , In 2017 I born one boy,after one year I find al 36 year I have ovarian cancer stadium 4 I don’t have symptoms,just little big stomach,and I was thinking...

Hei , In 2017 I born one boy,after one year I find al 36 year I have ovarian can...

Serbov

•5 years ago

5 Replies

Wellbeing and support session in Birmingham on 7 March

Ovacome will be holding a wellbeing and support session in Birmingham next Thursday 7 March, from 10 am to 2 pm, in the hospitality suite of Birmingham...

Ovacome will be holding a wellbeing and support session in Birmingham next Thurs...

TheOvacomeTeam

Partner•5 years ago

2 Replies

Feeling lost and so alone

Hi ladies, I have been lurking and reading your stories for the last few weeks and in total admiration of your personal battles through this horrible journey....

Hi ladies, I have been lurking and reading your stories for the last few weeks a...

TeamTerrier

•5 years ago

45 Replies

Blue badge?

Has anyone applied for a blue badge after cancer diagnosis (not on benefits), don’t want a mobility car just a blue badge for the days when you have low energy...

Has anyone applied for a blue badge after cancer diagnosis (not on benefits), do...

Flower2011

•5 years ago

18 Replies

Cisplatin bone hip pain

Day 9 cisplatin! Ok🙏 But pain

jools53

•5 years ago

2 Replies

Nails!!

What’s going on underneath I’ll know next time I get them done but here’s a pic for what it’s wirth of my acrylics ( and Rowenas tiny baby ones!) for 16...

What’s going on underneath I’ll know next time I get them done but here’s a pic ...

Chick44nzrn

•5 years ago

2 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for March 2019

Concerned about symptoms

Carboplatin/Caelyx and low neutrophils

Cantrixil

Intraperitoneal chemo

Home x

CA125 tests.

Anyone considering cold cap

Update - not great news

Ca-125 level slightly increased.

Fed up but no option

Recurrence within one month of surgery

Advice on diaphragm surgery

Update

Weekly or 3 weekly

Not BRCA

Hiya Ladies .. Anyone heard from Kryssy or Suzanne or lilyann? Sad news about Lorraine.. 😥 thanks xx

progress xx

Olaparib

Olaparib

Olaparib and erythromycin

Back on treatment- Hey ho

Bubbles-1 Sad News - I wrote to Michelle to find out any news about her and this is what I received:

Remission from Calexy

Wellbeing and support session in Birmingham on 7 March

Feeling lost and so alone

Blue badge?

Cisplatin bone hip pain

Nails!!

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