Posts - My Ovacome | HealthUnlocked

My Ovacome

17,746 members • 19,983 posts

All posts for November 2018

CT scan results in and not good

well where do I start, I got my ct scan results in yesterday and not good, my mucinous cancer is back in my abdomen, Doctor said I have several pockets of...

well where do I start, I got my ct scan results in yesterday and not good, my mu...

bunnyone

•5 years ago

10 Replies

Another reprieve

Hi all I don’t come in here often lately, but still log in to see how people are doing. I thought hard about posting my news because of the lovely ladies going...

Hi all I don’t come in here often lately, but still log in to see how people are...

MH500

•5 years ago

34 Replies

2nd opinion during wait and see

Hi Last June I found out I had a reoccurrence of low grade OC after 20 years! Uber pecked to say the least! Staged at Roughly 3c (my consultant says they don’t...

Hi Last June I found out I had a reoccurrence of low grade OC after 20 years! Ub...

Jonich

•5 years ago

23 Replies

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Blood clots after chemo

Hi everyone. This site is amazing. When I'm at a low point and my panic is kicking up a notch I usually have a good cry, read some posts and calm down. So...

Hi everyone. This site is amazing. When I'm at a low point and my panic is kick...

Lgottenbos56

•5 years ago

8 Replies

Need help

Hi I’ve just had a blood test results back doctor said it shows something sinister on my ovaries and that he’s not ruling out cysts but a possibility it could...

Hi I’ve just had a blood test results back doctor said it shows something sinist...

Heidimadge

•5 years ago

9 Replies

Scan results

Hello ladies Just had the nurse on from Christie’s with the results of my end of treatment scan . CA 125 down to 15 . Which I thought was still a bit high ,...

Hello ladies Just had the nurse on from Christie’s with the results of my end o...

Manchesterlady

•5 years ago

18 Replies

New diagnosis low grade serous for my sister

My sister was recently diagnosed and had surgery two weeks ago. Surgeon was pleased and said she scored a 0 which I am assuming means NED? She got the official...

My sister was recently diagnosed and had surgery two weeks ago. Surgeon was plea...

Luvmysister

•5 years ago

5 Replies

Huge rise in CA-125

Hi all, it's been a little while since I posted. My mom (Norma) finished her 2nd line back in June, and had been given a PARP inhibitor called Rucaparib...

Hi all, it's been a little while since I posted. My mom (Norma) finished her 2nd...

ssjmichael

•5 years ago

7 Replies

New Clinical trial

News | headlines Clinical trial tests customized treatment for ovarian cancer and peritoneal mesothelioma Email Twitter LinkedIn Google+ Share on Facebook...

News | headlines Clinical trial tests customized treatment for ovarian cancer a...

DanL2017

•5 years ago

1 Reply

Stoma issues

I had a stoma after my second chemo due to a bowel perforation. When I had my TAH my bowel was resected as well but my stoma was not reversed at the same...

I had a stoma after my second chemo due to a bowel perforation. When I had my T...

Eriksendi

•5 years ago

5 Replies

Yikes

Well, I got my bloodwork results today and my CA125 is at 977. Pet scan scheduled for the 29th of November. I was supposed to start the parp on the 3rd of...

Well, I got my bloodwork results today and my CA125 is at 977. Pet scan schedul...

Rlenesue

•5 years ago

4 Replies

12 - 18 months prognosis and 2nd opinion

I posted last week and thank you to every one for your replies about my prognosis been given to me at the QE in B'ham. I have a 2nd opinion at a different...

I posted last week and thank you to every one for your replies about my prognosi...

Blondie75

•5 years ago

12 Replies

Rising CA125

I wondered if anyone has experienced rising CA125 with no symptoms, I have been feeling fine but find it hard not to get anxious when the marker is rising,...

I wondered if anyone has experienced rising CA125 with no symptoms, I have been ...

Ovarianne

•5 years ago

24 Replies

Uterine papillary serous carcinoma UPSC

I'm new here. I was diagnosed with uterine papillary serous carcinoma (UPSC) at Easter this year. It is a rare type of uterine cancer. I had surgery in mid-May...

I'm new here. I was diagnosed with uterine papillary serous carcinoma (UPSC) at ...

Helentess

•5 years ago

8 Replies

uterine papillary serous carcinoma UPSC

I'm new here. I was diagnosed with uterine papillary serous carcinoma (UPSC) at Easter this year. I had surgery in mid-May where I had all "lady parts"...

I'm new here. I was diagnosed with uterine papillary serous carcinoma (UPSC) at ...

Helentess

•5 years ago

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Recovering from Surgery

Hi, Thanks for all the good wishes regarding my surgery! There were no obvious signs of cancer but both ovaries and Fallopian tubes were removed as they were...

Hi, Thanks for all the good wishes regarding my surgery! There were no obvious s...

Mguilfo

•5 years ago

5 Replies

Now terminal and going fir a 2nd opinion

Been given some hope. I posted on here about 1 week ago as I was given 12 - 18 months. Not one to give up the fight as I have to for the sake of my 2 young...

Been given some hope. I posted on here about 1 week ago as I was given 12 - 18 m...

Blondie75

•5 years ago

37 Replies

Complex adnexal mass with solid areas and septae

Hello All, I had my pelvis UV 2 days ago and it identified complex adnexal mass with solid areas with fluid and septae. The report says there is no doppler...

Hello All, I had my pelvis UV 2 days ago and it identified complex adnexal mass ...

Nora82

•5 years ago

8 Replies

Ca125 level & pap test and tooth extraction

Hello ladies, hope all is well and you are doing fine. I was wondering if anyone has experince of increasing Ca125 after pap test or tooth extraction( with its...

Hello ladies, hope all is well and you are doing fine. I was wondering if anyone...

sara_mamani96

•5 years ago

4 Replies

“Area of MIXED DENSITY” ?

On recent ct post-operative scan imaging report radiologist found a 1.6 cm area of mixed density in upper left vaginal vault. It may be a haematoma or NOT ?...

On recent ct post-operative scan imaging report radiologist found a 1.6 cm area ...

RachelFaye

•5 years ago

11 Replies

Poorly differentiated endometrial cancer with bowel and nodal involvement

Hi- my first real post. Mom (age 80) has poorly differentiated high grade endometrial cancer diagnosed in August 2018 with several lymph nodes involved. 3...

Hi- my first real post. Mom (age 80) has poorly differentiated high grade endome...

tiger9

•5 years ago

3 Replies

Niraparib

Hi everyone I just wanted peoples honest opinions. I have been on Niraparib for 12 weeks and found it very tough headaches breathlessness palpitations fatique...

Hi everyone I just wanted peoples honest opinions. I have been on Niraparib for ...

Bettyxxx

•5 years ago

14 Replies

Savings Eggs for BRCA Positive young women before BSO.

Okay, here is my problem: I have a beautiful 41 year old daughter, who is not in a relationship now and doesn’t see one in the near future, but, like me, she...

Okay, here is my problem: I have a beautiful 41 year old daughter, who is not in...

Lindaura

•5 years ago

16 Replies

Breakthrough pain

I have read many posts which write about breakthrough pain. However until the MacMillan nurse who visited me at home yesterday mentioned this I hadn't really...

I have read many posts which write about breakthrough pain. However until the M...

Janet235

•5 years ago

10 Replies

BSO Surgery tomorrow for complex cyst

Hi, I Having surgery tomorrow for a complex septated cyst and elevated CA-125. Having both ovaries and tubes out and if there is signs of malignancy he is...

Hi, I Having surgery tomorrow for a complex septated cyst and elevated CA-125. ...

Mguilfo

•5 years ago

19 Replies

🌻Stable, and Well!🌻

Hi all you Lovely Ladies! I saw my Oncologist on Wednesday and although cancer had previously shrunk 88% on carbo/caelyx, there was still a bit of tumour left,...

Hi all you Lovely Ladies! I saw my Oncologist on Wednesday and although cancer h...

babyboy1

•5 years ago

13 Replies

Good news

Hesitating as always before posting as I am so very aware that lots of ladies are having a rough time. I went for my 12 weekly check up yesterday for SOLO2...

Hesitating as always before posting as I am so very aware that lots of ladies ar...

Katmal-UK

•5 years ago

77 Replies

BRCA TEST?

Hello again - Is the BRCA test available on the NHS? my insurance company say they will not cover it because my specialist has not recommended Olaparib for...

Hello again - Is the BRCA test available on the NHS? my insurance company say th...

Hidden

•5 years ago

29 Replies

Olaparib experiences - your comments needed

Hello All I've two submissions to make to NICE this month regarding Olaparib availability. If any of you have experiences with it that you'd be willing to...

Hello All I've two submissions to make to NICE this month regarding Olaparib av...

OvacomeSupport

Partner•5 years ago

10 Replies

Britain Against Cancer conference - free place available

Dear All There is a free place for a patient/carer/family member at the All Party Parliamentary Group for Cancer (APPGC) conference available. It's taking...

Dear All There is a free place for a patient/carer/family member at the All Part...

OvacomeSupport

Partner•5 years ago

6 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for November 2018

CT scan results in and not good

Another reprieve

2nd opinion during wait and see

Blood clots after chemo

Need help

Scan results

New diagnosis low grade serous for my sister

Huge rise in CA-125

New Clinical trial

Stoma issues

Yikes

12 - 18 months prognosis and 2nd opinion

Rising CA125

Uterine papillary serous carcinoma UPSC

uterine papillary serous carcinoma UPSC

Recovering from Surgery

Now terminal and going fir a 2nd opinion

Complex adnexal mass with solid areas and septae

Ca125 level & pap test and tooth extraction

“Area of MIXED DENSITY” ?

Poorly differentiated endometrial cancer with bowel and nodal involvement

Niraparib

Savings Eggs for BRCA Positive young women before BSO.

Breakthrough pain

BSO Surgery tomorrow for complex cyst

🌻Stable, and Well!🌻

Good news

BRCA TEST?

Olaparib experiences - your comments needed

Britain Against Cancer conference - free place available

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