Posts - My Ovacome | HealthUnlocked

My Ovacome

17,705 members • 19,960 posts

All posts for April 2018

Chemotherapy for a stage 1A ovarian cancer?

Hi, I actually live in Montreal and went through surgery one month ago for a massive ovarian cyst on the left ovary. During the surgery, they removed...

Hi, I actually live in Montreal and went through surgery one month ago for a mas...

coconut123

•6 years ago

9 Replies

Niraparib and NICE update

Hello everyone, hope you are doing OK today. You may have seen my previous post about Niraparib (if not you can look it up on my profile). Basically I am on...

Hello everyone, hope you are doing OK today. You may have seen my previous post ...

Elizabethe

•6 years ago

6 Replies

My feet won't wake up

Hi I have neuropathy this was caused by sepsis while I was put in an induced coma for more than 5 months I spent 280 days in ITU due to sepsis which caused me...

Hi I have neuropathy this was caused by sepsis while I was put in an induced com...

Choudreyz

•6 years ago

2 Replies

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The Beast Within

Hello everyone, I am new to this site. I was diagnosed in 2015 with stage 3B grade 1 breast cancer and given a 6-12 death sentence since I was not on board...

Hello everyone, I am new to this site. I was diagnosed in 2015 with stage 3B gra...

Hidden

•6 years ago

3 Replies

Late/delayed effects of taxol and filgrastim (neupogen)?

Hi all. Mum finished her 3rd line of treatment - weekly Taxol - a couple of months ago now. She had regular injections of filgrastim to keep her white cell...

Hi all. Mum finished her 3rd line of treatment - weekly Taxol - a couple of mont...

microferret

•6 years ago

4 Replies

Hi everyone hope your as good as we can be!! Wondering if if anyone has had this ?

I’m 3 months post debulking surgery everything fine apart from diarrhoea which is expected after x3 bowel resection. Yesterday Ellie decided to refuse to move...

I’m 3 months post debulking surgery everything fine apart from diarrhoea which i...

Zena41

•6 years ago

7 Replies

Anyone diagnosed with metastatic carcinoma high grade serous stage 3c survivors?

Hi my fellow teal ladies., I hope you are all well as can be dealing with this horrid disease. I don't post much but I do read all your post and comments....

Hi my fellow teal ladies., I hope you are all well as can be dealing with this h...

Luchie

•6 years ago

16 Replies

Hair Loss

Hi I had Taxol and lost all my hair, all my brows, all my bottom lashes and have a few lashes on top in both eyes, I lost my scalp hair 17 days after the first...

Hi I had Taxol and lost all my hair, all my brows, all my bottom lashes and have...

coksd

•6 years ago

23 Replies

Introduction

Hi, I'm Sue. Diagnosed stage 3c OC in June 2007, have had 3 lines of chemo and 2 surgeries since then, currently in remission with follow up every 3 months.

Hi, I'm Sue. Diagnosed stage 3c OC in June 2007, have had 3 lines of chemo and 2...

Sue-333

•6 years ago

18 Replies

What a year !

What a year ! Updating my Profile. I fell on the ice and required a total hip replacement. My husband has just finished chemo for advanced prostate cancer and...

What a year ! Updating my Profile. I fell on the ice and required a total hip r...

marylondon

•6 years ago

24 Replies

Question for the experts

Hi I have just been reading about a drug called niraparp . Is anyone on this , or has heard about it ?

Hi I have just been reading about a drug called niraparp . Is anyone on this , o...

Manchesterlady

•6 years ago

5 Replies

The coffee enema

This seems controversial and strong views in each camp but anyone out there doing this or have any experience to share. I’m always interested in complementing...

This seems controversial and strong views in each camp but anyone out there doin...

Coolroses

•6 years ago

5 Replies

Advice on caelyx. Questions for consultant.

Hi ladies any one of you been on carboplatin and caelyx for 1st reacurrance ? I was on carboplatin, taxol, avastin for 1st line treatment my last avastin was...

Hi ladies any one of you been on carboplatin and caelyx for 1st reacurrance ? I ...

Mjb49

•6 years ago

26 Replies

Crazy Week

Crazy Week to say the least. Went in for an ultrasound procedure to check issues with bladder. Get phone call Monday they found some kind of lump on my ovary...

Crazy Week to say the least. Went in for an ultrasound procedure to check issues...

Hidden

•6 years ago

6 Replies

Scanxiety is kicking in already!

Hi lovely ladies, got the date for my CT scan after my Ca125 was raised from 18 to 95 on my 3 month check post chemo which ended in Jan. It’s next Friday 4th...

Hi lovely ladies, got the date for my CT scan after my Ca125 was raised from 18 ...

BeeWild

•6 years ago

20 Replies

PARP Inhibitors

Thought this might be of interest to some. https://www.onclive.com/peer-exchange/ovarian-practical-essentials/parp-inhibitor-selection-in-ovarian-cancer

Thought this might be of interest to some. https://www.onclive.com/peer-exchange...

RonLitBer

•6 years ago

6 Replies

The waiting game

Hi, diagnosed mid July with stage 3 ovarian cancer and had 7 months carboplatin and total hysterectomy. Was told there was still some cancer on the lining of...

Hi, diagnosed mid July with stage 3 ovarian cancer and had 7 months carboplatin ...

juliamillen

•6 years ago

19 Replies

Help .. I’m starting carboplatin and gemzbar tomorrow

I’m starting the chemo tomorrow for recurrence of Stage 3c Ovarian Cancer. I just ended maintenance drug only 4 weeks ago and found out today I had a...

I’m starting the chemo tomorrow for recurrence of Stage 3c Ovarian Cancer. I...

buzz2016

•6 years ago

7 Replies

Anyone else using a vaginal moisturiser for vaginal health after surgery?

Following my first surgery in 2011, the gynae oncologist recommended I use a moisturiser to keep my vagina healthy.....it wasn't one for sex. I've been using a...

Following my first surgery in 2011, the gynae oncologist recommended I use a moi...

Eleni

•6 years ago

11 Replies

In Focus: Menopause - Non-hormonal medication

Dear All I'm sorry the In Focus posts have reduced lately, I will be back on track in May and we'll be looking at diet, do let me know any topics you would...

Dear All I'm sorry the In Focus posts have reduced lately, I will be back on tra...

OvacomeSupport

Partner•6 years ago

8 Replies

Attended nhs complaints resolution meeting

Sorry this is really long! So I went along to a local complaints resolution meeting today with my local emergency department. They had sent me home in October...

Sorry this is really long! So I went along to a local complaints resolution meet...

ShazD

•6 years ago

12 Replies

Good News

Hope you are all in good spirit. Just back from a 3 week break to South Africa to visit all my family. Fantastic time there. On my return had my 3 month check...

Hope you are all in good spirit. Just back from a 3 week break to South Africa t...

Mumtazbegum

•6 years ago

11 Replies

Appointment at the christie

Hi , had my first appointment with oncologist yesterday , have to go back next week for kidney test then start carboplatin for 3 sessions before surgery. I got...

Hi , had my first appointment with oncologist yesterday , have to go back next w...

Manchesterlady

•6 years ago

5 Replies

Devastated all over again!

Hi lovely ladies not been on here for quite a while! Was so ill after my debulking surgery Stage 3 c last July and had a very rocky time! Thought I was going...

Hi lovely ladies not been on here for quite a while! Was so ill after my debulki...

BeeWild

•6 years ago

22 Replies

Mucinous diagnosis

Well, have been back for post op follow up and told I have Stage 1c. Wasn't told the cell type but I asked for a copy of the pathology report and it says Stage...

Well, have been back for post op follow up and told I have Stage 1c. Wasn't told...

lynn6156

•6 years ago

24 Replies

Expert patient for NICE Olaparib appraisal

Dear All The National Institute for Health and Care Excellence (NICE) are reviewing olaparib for non-BRCA women. The name of the appraisal is: Olaparib for...

Dear All The National Institute for Health and Care Excellence (NICE) are review...

OvacomeSupport

Partner•6 years ago

4 Replies

“Lymphvascular invasion present” If any body has this in her pathology report?

Hello, Hope all is doing well. My mom had a surgery last week and in the pathology report I saw the above sentence. We have not seen the oncologist yet to ask...

Hello, Hope all is doing well. My mom had a surgery last week and in the patholo...

sara_mamani96

•6 years ago

2 Replies

Advice re gynae onc in london

Hi. Just wondering if anyone can recommend a good gynae oncologist. I do not have my private gynae onc anymore due to personal reasons and have asked to be...

Hi. Just wondering if anyone can recommend a good gynae oncologist. I do not hav...

ShazD

•6 years ago

1 Reply

Oncology Appointment

We made it to oncology today, after finding out the cancer is back on Friday. Recent CA125 came back at 288 (3 months ago it was 15) - so it gave us a good...

We made it to oncology today, after finding out the cancer is back on Friday. R...

kristinaapril

•6 years ago

12 Replies

staying strong

I had surgery to remove a tumor March 29, 2017. My ovaries and tubes were removed. Stage II invasive serious borderline of the left ovary . No lymph nodes or...

I had surgery to remove a tumor March 29, 2017. My ovaries and tubes were remov...

Hidden

•6 years ago

4 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for April 2018

Chemotherapy for a stage 1A ovarian cancer?

Niraparib and NICE update

My feet won't wake up

The Beast Within

Late/delayed effects of taxol and filgrastim (neupogen)?

Hi everyone hope your as good as we can be!! Wondering if if anyone has had this ?

Anyone diagnosed with metastatic carcinoma high grade serous stage 3c survivors?

Hair Loss

Introduction

What a year !

Question for the experts

The coffee enema

Advice on caelyx. Questions for consultant.

Crazy Week

Scanxiety is kicking in already!

PARP Inhibitors

The waiting game

Help .. I’m starting carboplatin and gemzbar tomorrow

Anyone else using a vaginal moisturiser for vaginal health after surgery?

In Focus: Menopause - Non-hormonal medication

Attended nhs complaints resolution meeting

Good News

Appointment at the christie

Devastated all over again!

Mucinous diagnosis

Expert patient for NICE Olaparib appraisal

“Lymphvascular invasion present” If any body has this in her pathology report?

Advice re gynae onc in london

Oncology Appointment

staying strong

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