Posts - My Ovacome | HealthUnlocked

My Ovacome

17,744 members • 19,983 posts

All posts for March 2018

My Mom's CA-125 has risen after first Chemo

Hi all, my mom received her first cycle of Carbo/Taxol for her recurrence on February 23rd. She had her CA-125 checked a week later (March 2nd), and the...

Hi all, my mom received her first cycle of Carbo/Taxol for her recurrence on Feb...

•6 years ago

A few things about Ovacome Membership

Dear All Thank you so much to everyone who was able to make it to Members Day at the weekend, it was lovely to see so many of you there. For those of you who...

Dear All Thank you so much to everyone who was able to make it to Members Day at...

Partner•6 years ago

My sister

My sister passed away at the weekend. It was peaceful and we were all with her. We are all devastated. I’m worried how her girls will cope they are just so...

My sister passed away at the weekend. It was peaceful and we were all with her. ...

•6 years ago

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Mum

Morning Ladies. Just an update to tell you all that my Mum died yesterday after almost a 4 year battle with Ovarian. She fought hard and i'm so proud of her....

Morning Ladies. Just an update to tell you all that my Mum died yesterday after...

•6 years ago

Turmeric

I've seen that lots of people use turmeric to help in the fight against cancers but I don't know which one to buy. Can anyone suggest a specific brand or...

I've seen that lots of people use turmeric to help in the fight against cancers ...

•6 years ago

The waiting is the worst

Just need to talk out loud. Feeling a little anxious. I was diagnosed with stage 3B ovarian cancer in march 2017. It took me almost a yr to get comfortable and...

Just need to talk out loud. Feeling a little anxious. I was diagnosed with stage...

•6 years ago

Feeling Blessed :)

Good evening lovely ladies, Its been a while since i last posed on here, i thought i would come on a share what i have been up to. In November I started to...

Good evening lovely ladies, Its been a while since i last posed on here, i thou...

786Asma_believer_

•6 years ago

Bowel Issues

Hi Everyone, It’s four weeks since my Bilateral Oophorectomy and about five days now I am experiencing severe bowel pain so bad that It burns for the poop to...

Hi Everyone, It’s four weeks since my Bilateral Oophorectomy and about five day...

•6 years ago

An idea for the forum and Ovacome support

Hi All After reading LIlly-Ann’s post re updating profiles and Danforth’s post re long term survivors I thought about what they do on the Inspire forum. Twice...

Hi All After reading LIlly-Ann’s post re updating profiles and Danforth’s post r...

•6 years ago

Long term OC survivor

Hi everyone, I was reading a post online, a lady asking about long-term OC survivors... I was diagnosed with stage 3C Ovarian Cancer, BRCA1 related, in March...

Hi everyone, I was reading a post online, a lady asking about long-term OC survi...

•6 years ago

Any tips on dealing with neuropathy?

Ever since my chemo treatments (ended September 2016) I've had neuropathy in my feet up to my ankles, and have flare ups which can really painful. My GP says...

Ever since my chemo treatments (ended September 2016) I've had neuropathy in my ...

•6 years ago

Frustrated

I was told last week at my appointment that a pet scan was required to look at the liver due to irregularities showing up on ct scan, I was then advised if I...

I was told last week at my appointment that a pet scan was required to look at t...

•6 years ago

Niraparib (Rejula)

Hi ladies, my mom started Niraparib since last Thursday. The side effects seem to kicking now. She feels very tired and nausea. She’s taking nausea med every 6...

Hi ladies, my mom started Niraparib since last Thursday. The side effects seem t...

•6 years ago

Getting ready for surgery

Hi all, I was diagnosed with stage 3c high grade on December 15th. I have been through 3 rounds of carbo/taxol and am scheduled for surgery March 19th. My CA...

Hi all, I was diagnosed with stage 3c high grade on December 15th. I have been t...

•6 years ago

BRCA

Hi all, I hope you're all surviving the snow and your cupboards are well stocked so you don't have to go out. I ventured out this morning at 8.45 to get to my...

Hi all, I hope you're all surviving the snow and your cupboards are well stocked...

•6 years ago

Ovacome Members Day 2018 update

Hello, We are still planning to go ahead with Members Day, with a few changes. We were scheduled to start at 10.30 am but we understand that potential travel...

Hello, We are still planning to go ahead with Members Day, with a few changes. ...

Partner•6 years ago

Coach cancelled

Hi lovely ladies I've just found out that my coach isn't running today to London so I won't be able to make the My ovacome Day tomorrow. If anyone needs a...

Hi lovely ladies I've just found out that my coach isn't running today to London...

•6 years ago

Just need a friendly hug....

Hello I’m sorry this post is not a positive one. My sister is very nearly at the end of her life. She had complications including a stroke and was unable to...

Hello I’m sorry this post is not a positive one. My sister is very nearly at the...

•6 years ago

Should I push for a 7th chemo?

When I was first diagnosed with OV I was told have 3 chemos then a big debulking op followed by 3 chemos to mop up any wayward cells. This then changed to 4...

When I was first diagnosed with OV I was told have 3 chemos then a big debulking...

•6 years ago

How do you deal with Cellulitis and no voice?

Hi. I am a newbie and just finished a chemo course for Angiosarcoma that is in the face/cheek just below left eye. 6 weeks of brutal chemo where every side...

Hi. I am a newbie and just finished a chemo course for Angiosarcoma that is in t...

•6 years ago

Third time UNlucky……..

Third time UNlucky…….. Just been told today that my CA-125 is up again at 235. I have a consultant appointment next week but just wondered if any of you...

Third time UNlucky…….. Just been told today that my CA-125 is up again at 235. ...

•6 years ago

Puppy Love!

I’d like to say this is my adoring Max concerned for how ill I am feeling but I think the ginger biscuit that I am nibbling on is the subject of his doeful...

I’d like to say this is my adoring Max concerned for how ill I am feeling but I ...

•6 years ago

I'm so relieved

My onc gyne himself called to give me liver biopsy results IT'S NOT CA!!! I am so pleased. The surgeon said he was almost certain. I'm so glad he was wrong...

My onc gyne himself called to give me liver biopsy results IT'S NOT CA!!! I am s...

•6 years ago

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