Posts - My Ovacome | HealthUnlocked

My Ovacome

17,820 members • 20,057 posts

All posts for January 2018

Can't stop worrying about my mom..

HI all, I've posted here before, but not recently. My mom (Norma) was diagnosed with Stage IV Ovarian cancer July 2015, discovered through a pleural effusion...

HI all, I've posted here before, but not recently. My mom (Norma) was diagnose...

ssjmichael

•6 years ago

7 Replies

Ova to You event in Bath

Dear All Just a reminder that the Ovacome Team will be running a free support and awareness event in Bath next week on Thursday 18 January. It's running 12-4pm...

Dear All Just a reminder that the Ovacome Team will be running a free support an...

OvacomeSupport

Partner•6 years ago

3 Replies

Lymph nodes

Hi ladies and gents, I saw my oncologist last Monday for the results of my scan. I was told that it is now in my lymph nodes in my chest, I wondered if anyone...

Hi ladies and gents, I saw my oncologist last Monday for the results of my scan....

Juliette35

•6 years ago

17 Replies

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When someone has “very bad news...”

Hi Ladies - I just need to vent about this as it has really bothered me. I know we all get consumed by health issues but hell, with what we are all going...

Hi Ladies - I just need to vent about this as it has really bothered me. I know ...

MurielTheActor

•6 years ago

24 Replies

Immunotherapy and Bifidobacteria

Good morning ladies. I am reading Chris Woollam’s book ‘Heal your gut heal your body ‘ and he says how important it is to create a good gut microbiome when...

Good morning ladies. I am reading Chris Woollam’s book ‘Heal your gut heal your...

SCWI

•6 years ago

13 Replies

A poem for us all x

Written by a very thoughtful and talented friend. Sent to me as I'm lying in my hospital bed recovering from my op to remove ovaries and womb ... and annoying...

Written by a very thoughtful and talented friend. Sent to me as I'm lying in my...

Superwomanbeth

•6 years ago

3 Replies

Stage 3C OC high grade--Help for my friend

Hi All, Brand new to the site. My friend has stage 3c high grade OC and recently had a surgery where they were hoping to debulk. However, after they opned...

Hi All, Brand new to the site. My friend has stage 3c high grade OC and recentl...

ladyt53

•6 years ago

12 Replies

Good news!!!

As most of you are aware I have been on a roller coaster of a cancer journey. After being dissatisfied with my care at a nationally renowned cancer centre I...

As most of you are aware I have been on a roller coaster of a cancer journey. Af...

Sarah_t_mvp

•6 years ago

11 Replies

Making sense of scan results

I had a good feeling that my 18 weeks of taxol treatment had done its work and the scan result from last week has confirmed that with much relief. According to...

I had a good feeling that my 18 weeks of taxol treatment had done its work and t...

Janet235

•6 years ago

7 Replies

Your help needed to promote My Ovacome

Hello All You may have seen my post about this before Christmas, apologies for the repetition but we are seeking more volunteers! We need your help to promote...

Hello All You may have seen my post about this before Christmas, apologies for t...

OvacomeSupport

Partner•6 years ago

12 Replies

Ultrasound clear

Hi, I've been experiencing lower right and central Pelvic pain increasingly for nearly a year. Accompanied by bloating, back pain, occasional spotting,...

Hi, I've been experiencing lower right and central Pelvic pain increasingly for ...

Jessiedee

•6 years ago

30 Replies

Rotterdam protocol

Hi anyone been on this and able to describe how tough it is. I faired well during taxol/carboplatin. I’ve been warned I won’t in Rotterdam regimen of etoposide...

Hi anyone been on this and able to describe how tough it is. I faired well durin...

Agility

•6 years ago

9 Replies

Caelyx & carboplatin or Rotterdam proctocol

Hi I hear that the Caelyx/carboplatin has a response rate greater than 50% in platinum sensitive low graders 10-20% if resisting. Anyone know of any stats for...

Hi I hear that the Caelyx/carboplatin has a response rate greater than 50% in pl...

Agility

•6 years ago

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Facebook Groups

I was thinking of joining an Ovarian Cancer Facebook group and was just wondering which one(s) were best to join? Any recommendations please? Paula xxxx

I was thinking of joining an Ovarian Cancer Facebook group and was just wonderin...

Travelmonster

•6 years ago

17 Replies

Up in the air

Just thought I would post an update on life in general. Things have been a bit stressful as mum fell down the stairs in her flat at the beginning of December....

Just thought I would post an update on life in general. Things have been a bit ...

ScardyCat40

•6 years ago

21 Replies

PTSD experiences for the Ovacome newsletter

Dear All We are planning a piece on post-traumatic stress disorder (PTSD) following cancer diagnosis and treatment for our next newsletter. If any of you have...

Dear All We are planning a piece on post-traumatic stress disorder (PTSD) follow...

OvacomeSupport

Partner•6 years ago

Be the first to reply

Good news - results after last chemo

Well, last year was a bit of a long haul, after my debulking op in March I ended up having 11 cycles of chemo instead of the intended 6 - last chemo was on...

Well, last year was a bit of a long haul, after my debulking op in March I ended...

Travelmonster

•6 years ago

29 Replies

Terrible day at the hospital

Arrived at UCLH for my weekly check-up for my clinical trial. 3 cannulas refused to work-trouble even getting blood. Low magnesium again -apparently permanent...

Arrived at UCLH for my weekly check-up for my clinical trial. 3 cannulas refused...

Neona57

•6 years ago

16 Replies

UCL Clinical Trials Discussion Group

Hello All The clinical trials unit at UCL have asked me to let you know again about the discussion group they are running to help them find out what women with...

Hello All The clinical trials unit at UCL have asked me to let you know again ab...

OvacomeSupport

Partner•6 years ago

4 Replies

Update - CT scan today, continuing Olaparib and 30 days in, of cannabis oil!

Hello lovelies, Seen some of you over on FB and have even rejoined some of the OC groups & seen you on there. Left them previously as it seemed all doom and...

Hello lovelies, Seen some of you over on FB and have even rejoined some of the ...

SarahsJourney

•6 years ago

30 Replies

Surgery time 😄

Hi girls hope ur all good!!! I’m just letting u all know I went to London to see the surgeon yesterday and she is going to operate on me on 30th jan. Xx

Hi girls hope ur all good!!! I’m just letting u all know I went to London to se...

Zena41

•6 years ago

53 Replies

Return from Uganda

Ladies, I,m back and OMG what an experience, please all of you for whom it's possible please go and do something you've always wanted to, the sense of...

Ladies, I,m back and OMG what an experience, please all of you for whom it's pos...

Kayp

•6 years ago

11 Replies

Six month checkup

I am off to my first six month checkup today. Feeling positive about it but have been feeling tired recently and still have a little pain from time to time...

I am off to my first six month checkup today. Feeling positive about it but have...

pishi1

•6 years ago

2 Replies

jburt1020

hi, breast cancer stage 3, surgery 2005, chemo , radiation, and hormone therapy, i was reading on the site earlier and did a little venting. after all these...

hi, breast cancer stage 3, surgery 2005, chemo , radiation, and hormone therapy...

jburt1020

•6 years ago

5 Replies

ABDOMEN PAIN DEVELOPING VERY QUICKLY

HI. I am getting tummy and back pain and has come on very quickly over the weekend. It feels very much like last year dec 17 the month before my op. I am 3c...

HI. I am getting tummy and back pain and has come on very quickly over the week...

Colman

•6 years ago

15 Replies

Fearful

Hello lovely ladies, I wondered if anyone on this site has had a long remission after recurrence to peritoneum and who are not BRCA positive. As I understand I...

Hello lovely ladies, I wondered if anyone on this site has had a long remission ...

rosieb7

•6 years ago

42 Replies

Advice on anti depressants after treatment

Hi Ladies I haven’t posted here in a while but still follow everyone’s posts. I finished treatment in June and am lucky enough to be NED (from stage 3c HGSC)....

Hi Ladies I haven’t posted here in a while but still follow everyone’s posts. I ...

Andrea63

•6 years ago

39 Replies

Teal Scarf

My new Xmas scarf - a lovely pressie and its even Teal (ish) in colour x

Eriksendi

•6 years ago

8 Replies

Pain in my right side

Hi everyone and happy new year. I have not posted in a while as I have left work and desperately trying to open a new business. I have had a pain in my side...

Hi everyone and happy new year. I have not posted in a while as I have left work...

Shellygirl

•6 years ago

17 Replies

Changing e-mail address

I am trying to change my e-mail address but it says cannot update when I press change. Does anyone know how I can update my e-mail.

I am trying to change my e-mail address but it says cannot update when I press c...

Hidden

•6 years ago

2 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for January 2018

Can't stop worrying about my mom..

Ova to You event in Bath

Lymph nodes

When someone has “very bad news...”

Immunotherapy and Bifidobacteria

A poem for us all x

Stage 3C OC high grade--Help for my friend

Good news!!!

Making sense of scan results

Your help needed to promote My Ovacome

Ultrasound clear

Rotterdam protocol

Caelyx & carboplatin or Rotterdam proctocol

Facebook Groups

Up in the air

PTSD experiences for the Ovacome newsletter

Good news - results after last chemo

Terrible day at the hospital

UCL Clinical Trials Discussion Group

Update - CT scan today, continuing Olaparib and 30 days in, of cannabis oil!

Surgery time 😄

Return from Uganda

Six month checkup

jburt1020

ABDOMEN PAIN DEVELOPING VERY QUICKLY

Fearful

Advice on anti depressants after treatment

Teal Scarf

Pain in my right side

Changing e-mail address

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Pinned Posts

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Which of these have you found helpful or would have liked to have been offered as part of your ovarian cancer care? (Please comment below)

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