Posts - My Ovacome | HealthUnlocked

My Ovacome

17,726 members • 19,971 posts

All posts for January 2018

Anyone else’s CA125 an ineffective tumor marker?

Doc says mine is not a good one. PPC LG 3C diag. 1/17. Highest ever CA125 was 43. Last check 9. How are you followed?

Doc says mine is not a good one. PPC LG 3C diag. 1/17. Highest ever CA125 was ...

SuzanneKau

•6 years ago

24 Replies

NOT any better

My sister Is still not any better after 1st carbo/caelyx and drain. She is still in bed not eating and so weak and tired. We are all scared and no one seems to...

My sister Is still not any better after 1st carbo/caelyx and drain. She is still...

Stephgrey

•6 years ago

15 Replies

Macmillan research - your help needed

Dear All We have received the following request from a research company working on behalf of Macmillan. If you are interested in taking part, please contact...

Dear All We have received the following request from a research company working...

OvacomeSupport

Partner•6 years ago

3 Replies

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second surgery

Where do I find Autumn n ewsletter

Nwji

•6 years ago

13 Replies

Clinical trial

I am still waiting for the RM to confirm whether I have the tumour marker P53. They had said it would be a couple of days but now nearly a week later it's not...

I am still waiting for the RM to confirm whether I have the tumour marker P53. T...

Carpag

•6 years ago

3 Replies

Caelyx not worked

Found out on Friday that my two rounds of Caelyx have not worked. My CA125 is now a little over 23,000. So glad I pushed for a review before I had the 3rd...

Found out on Friday that my two rounds of Caelyx have not worked. My CA125 is n...

Teresa_K

•6 years ago

12 Replies

Tired of being in pain with NO answers

Hi everyone, Where to even start...I guess I’ll start from the beginning of this whole mess! I’ve always had very irregular and very painful periods. They...

Hi everyone, Where to even start...I guess I’ll start from the beginning of th...

Louisemostl

•6 years ago

6 Replies

Update

I went to the doctor and found out with the tumor pressing against my colon , right now surgery isn't an option. She did say that if it ruptures then they will...

I went to the doctor and found out with the tumor pressing against my colon , ri...

LDBottoms

•6 years ago

4 Replies

Biopsy appointment

Hello all. I went to gyne onc for what was supposed to be a biopsy of lesions on my liver. Gynecologist informs me the newest lesion is in a difficult spot...

Hello all. I went to gyne onc for what was supposed to be a biopsy of lesions o...

Unlockes

•6 years ago

3 Replies

1st post

Hello All This is my first post. I joined the group on the advice of my friend - she has been a member for a while. I have just started my 2nd line chemo after...

Hello All This is my first post. I joined the group on the advice of my friend -...

Ruthie62

•6 years ago

14 Replies

Mixed low and high grade cells

I did not have a good visit at RM today. After 3 cycles of carbo/caelyx my chemo has been stopped as it is not working and the reason being is I have mixed...

I did not have a good visit at RM today. After 3 cycles of carbo/caelyx my chem...

Gleedy

•6 years ago

47 Replies

Hi Everyone!

I’ve just joined this group to hear the stories of and to give/get support for low grade primary peritoneal cancer. It is very difficult to get information...

I’ve just joined this group to hear the stories of and to give/get support for l...

SuzanneKau

•6 years ago

3 Replies

"You are stable" - well, I never expected to hear that today.

Added after post: Above are some of the images from my PET Scans for last July and October. I haven't got last week's to show unfortunately. I wanted to...

Added after post: Above are some of the images from my PET Scans for last July...

Kryssy

•6 years ago

67 Replies

Surgery

Just been admitted. Thank you for all your wishes means a lot. 🙏🙏🙏🙏🙏

Zena41

•6 years ago

32 Replies

Stage 3c ovarian cancer Nov 2016

Hey everyone. Good to get on this forum & hear of other people going through the same experiences. I had debulking surgery Dec 2016. The cancer had spread...

Hey everyone. Good to get on this forum & hear of other people going through the...

Kayto77

•6 years ago

8 Replies

Snowdrops For Lily Anne

(And of course, for all you other beautiful ladies)! As you can see, we have quite a carpet here in Scotland. (Sadly Hubby couldn't get photo's under the tree...

(And of course, for all you other beautiful ladies)! As you can see, we have qu...

Tempestteapot

•6 years ago

12 Replies

Any advice on Carboplatin and Caelyx?

Morning Warriors, Due to start six cycles of Caelyx this Thursday ☹️. Any advice on possible side effects? Have previously been on Carbo/Taxol, Avastin and...

Morning Warriors, Due to start six cycles of Caelyx this Thursday ☹️. Any advice...

Supergran38

•6 years ago

30 Replies

Chemo option surprise.

Hello all you lovely ladies, What a rollercoaster ride this damn disease is. We've had some very sad posts lately, but there's also so much hope. I feel so...

Hello all you lovely ladies, What a rollercoaster ride this damn disease is. We'...

Irisisme

•6 years ago

7 Replies

Popping in.

Hi lovely ladies. Sending the biggest hug to all of you. Keep strong and positive. I’ve been reading your posts. Some really really sadden me. Damn this...

Hi lovely ladies. Sending the biggest hug to all of you. Keep strong and positi...

Suzanne333

•6 years ago

33 Replies

Depressed

Hi everyone, there is no need to reply to this message but I just want to write how I am feeling. I booked a holiday ten days ago, two weeks in Turkey 5* all...

Hi everyone, there is no need to reply to this message but I just want to write ...

Maggiemo19

•6 years ago

26 Replies

Being outdoors makes such a difference!

Some musings for a Sunday afternoon. I haven’t posted in a while but I read regularly how everyone is getting on and although sad by a lot of the news we’ve...

Some musings for a Sunday afternoon. I haven’t posted in a while but I read regu...

Beckyjh

•6 years ago

9 Replies

Being outdoors makes such a difference!

Some musings for a Sunday afternoon. I haven’t posted in a while but I read regularly how everyone is getting on and although sad by a lot of the news we’ve...

Some musings for a Sunday afternoon. I haven’t posted in a while but I read regu...

Beckyjh

•6 years ago

1 Reply

6.5 weeks

In 6 and a half weeks my special person will be 3 😊. 3 years we thought we wouldn’t see and she’s done so much in that time I’m very proud of her! Yeah she’s...

In 6 and a half weeks my special person will be 3 😊. 3 years we thought we woul...

CallmeMum

•6 years ago

14 Replies

Yesterday

Evening all, I warned you that I would post this! I was very sensible at Burns night, mostly because we had to go to Cheshire for a retirement party - home now...

Evening all, I warned you that I would post this! I was very sensible at Burns n...

Alifit

•6 years ago

18 Replies

Hair

A bit of information please ladies. I have recently had an op for a blocked bowel, caused by adhesions from my OC op. Recently, my hair, which was growing...

A bit of information please ladies. I have recently had an op for a blocked bowe...

27-359

•6 years ago

10 Replies

Have you ever seen a grumpy Snowdrop?

A little bit of nonsense for you. We went to a friend's today to see their collection of Snowdrops which look wonderful at this time of year. This was our...

A little bit of nonsense for you. We went to a friend's today to see their coll...

Kryssy

•6 years ago

11 Replies

What happens when you ask a friend to take a photo....

We actually went out today - and it wasn't to a hospital. The sun shone and it was lovely. Asked our friend to take our photo - a rare event for me to be in...

We actually went out today - and it wasn't to a hospital. The sun shone and it ...

Kryssy

•6 years ago

18 Replies

Adhesions

Hello all, I got into a bit of a state last June due to adhesions following surgery the June before. Luckily three weeks of nil by mouth followed by surgery...

Hello all, I got into a bit of a state last June due to adhesions following sur...

Hidden

•6 years ago

4 Replies

NuCana PRO-105 trials

Anyone participating in the NuCana Pro-105 clinical trials? My oncologist just signed me up.

Anyone participating in the NuCana Pro-105 clinical trials? My oncologist just s...

SmileySig

•6 years ago

2 Replies

Anxious

Thank you all for your advice especially some of my teal sisters that having a hard time at the moment , I have contacted hospital today, my appointment has...

Thank you all for your advice especially some of my teal sisters that having a h...

ellseybellsey

•6 years ago

5 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for January 2018

Anyone else’s CA125 an ineffective tumor marker?

NOT any better

Macmillan research - your help needed

second surgery

Clinical trial

Caelyx not worked

Tired of being in pain with NO answers

Update

Biopsy appointment

1st post

Mixed low and high grade cells

Hi Everyone!

"You are stable" - well, I never expected to hear that today.

Surgery

Stage 3c ovarian cancer Nov 2016

Snowdrops For Lily Anne

Any advice on Carboplatin and Caelyx?

Chemo option surprise.

Popping in.

Depressed

Being outdoors makes such a difference!

Being outdoors makes such a difference!

6.5 weeks

Yesterday

Hair

Have you ever seen a grumpy Snowdrop?

What happens when you ask a friend to take a photo....

Adhesions

NuCana PRO-105 trials

Anxious

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