Posts - My Ovacome | HealthUnlocked

My Ovacome

17,686 members • 19,951 posts

All posts for November 2017

Stable!

Hi all, I saw my consultant yesterday - she tells me that the scan shows that my tumours are still stable, although my CA125 has gone up to 237. I’m to...

Hi all, I saw my consultant yesterday - she tells me that the scan shows that my...

Alifit

•6 years ago

24 Replies

Cycle time

Must a 21day cycle be exactly that no of days? To be done whether its holiday or wkend in hosp? Can it be shorten to 18days? This is since working day rates n...

Must a 21day cycle be exactly that no of days? To be done whether its holiday or...

Joejemain

•6 years ago

2 Replies

Mom with stage 4 ovarian cancer

My mom has advanced metastasized stage 4. Dr's have given her a few weeks to live. Seeking advice on pain, anti-nausea and bloating meds. Currently on zofran...

My mom has advanced metastasized stage 4. Dr's have given her a few weeks to li...

LSREED

•6 years ago

3 Replies

Want to take advantage of all our features? Just log in!

Where (not) to place a port

Hello Ladies, I wanted to share a cautionary tale regarding port placement in hopes that it will help someone else in the future. Prior to my cancer...

Hello Ladies, I wanted to share a cautionary tale regarding port placement in h...

Hidden

•6 years ago

23 Replies

Fluid leaking from belly button... What could this mean

Hello everyone just wpuld like to share what is going on with mom so that it may be of usefull information to someones life.... So abouy a week ago i noticed...

Hello everyone just wpuld like to share what is going on with mom so that it may...

ntapia26

•6 years ago

5 Replies

I'm back

Hi everyone, I'm sorry I haven't answered all my emails yet but I've got hundreds and haven't had time to answer them yet. I'm working my way through but as...

Hi everyone, I'm sorry I haven't answered all my emails yet but I've got hundred...

ZenaJ

•6 years ago

30 Replies

Positive

I met with my consultant today and my scan didn’t show any signs of my cancer ! They do not need to see me for 3 mths I do have some unexplained fluid near my...

I met with my consultant today and my scan didn’t show any signs of my cancer ! ...

Hidden

•6 years ago

12 Replies

Borderline tumor-completion surgery & no HRT

Hi everyone It's been 10 years since I had my ovary & borderline tumor removed ( I was 24) At my annual check yesterday the subject of removing the remaining...

Hi everyone It's been 10 years since I had my ovary & borderline tumor removed (...

DirtyFab

•6 years ago

15 Replies

Please help will a hysteroscopy spread cancer cells if i have that . God forbid

Help I don't have ins. And I am 50 and I have been bleeding for about 1 year nonstop. I was going to the Dr. And my apps were normal. Yesterday the Dr said I...

Help I don't have ins. And I am 50 and I have been bleeding for about 1 year non...

Whymescared

•6 years ago

8 Replies

Endometrial stage 3c.. Anyone else?

Hello everyone. I am here for my mother. She began her battle in oct2016 with a rare form of endometrial cancer. Apprently only 10% if women get this rare and...

Hello everyone. I am here for my mother. She began her battle in oct2016 with a ...

ntapia26

•6 years ago

3 Replies

Some news that has rocked my boat a little today.

Hi there sisters. I'm afraid this is going to be a long and boring post but I hope you can get to the end for me please. I'm usually a half full kinda girl...

Hi there sisters. I'm afraid this is going to be a long and boring post but I h...

Kryssy

•6 years ago

60 Replies

Ellakos - 5 yrs Postmenopause, Menopausal 50 yrs old lady URGRNTLY needs advice...

Feel full, bloated+exhausted, constipation+nausea, but no appetite, have force muself to eat+drink, niggling pain pelvic area, constant need urinate, brown...

Feel full, bloated+exhausted, constipation+nausea, but no appetite, have force m...

Ellakos

•6 years ago

8 Replies

The waiting game

Hi everyone hope you all well I had my ovary and Fallopian tube removed almost three weeks ago had an ovarian cyst removed in August that came back as a...

Hi everyone hope you all well I had my ovary and Fallopian tube removed almost ...

Donnaq

•6 years ago

6 Replies

Turned down for immunotherapy trial

Today I went to the UCLH and signed up for the Patriot trial although I still have some hoops to jump through. However I was devastated to find out the reason...

Today I went to the UCLH and signed up for the Patriot trial although I still ha...

Neona57

•6 years ago

18 Replies

Discharge

It’s been a long journey.

Henry2012

•6 years ago

7 Replies

Wee 1 trial anyone?

Hello ladies. Sorry I haven’t been here lately. Been hunkered down. Sadly the hope I had for the parp inhibitor was short lived. I was on Rubraca for a bit...

Hello ladies. Sorry I haven’t been here lately. Been hunkered down. Sadly the...

Spencer2016

•6 years ago

6 Replies

Thank you from Sunshine

Hello all, I had told you all about a mass that was found in the area to the left of my left ovary earlier in the month. I had a CT scan on 11/24 and just...

Hello all, I had told you all about a mass that was found in the area to the lef...

Sunshine53

•6 years ago

26 Replies

From 'Inception' to diagnosis

Hi A quick question to you ladies if I may. My wife died of OC in Aug 2013, and was diagnosed a few weeks after going to A&E with terrible stomach pains in...

Hi A quick question to you ladies if I may. My wife died of OC in Aug 2013, and...

thehusband

•6 years ago

18 Replies

Total fatigue!!! Help

Well ladies I've just finished my 6th carbo/taxol with avastin added in. My ca has tumbled from 2700 to 11 which obviously I am delighted with and in have...

Well ladies I've just finished my 6th carbo/taxol with avastin added in. My ca ...

Joanie12

•6 years ago

32 Replies

Worth a read

Hi lovelies Just thought this was worth a read...

CallmeMum

•6 years ago

3 Replies

So tired

I’m due to have my 4th dose of carboplatin tomorrow.im am so tired still from the last dose is this normal .had bloods done on Friday and they are ok .

I’m due to have my 4th dose of carboplatin tomorrow.im am so tired still from th...

choconut56

•6 years ago

13 Replies

Anyone else had Anxiety attacks long after chemo?

Hi Finished 1st line chemo in January - throughout the journey from illness to waiting list to big op to diagnosis to chemo I never had any problems with...

Hi Finished 1st line chemo in January - throughout the journey from illness to w...

Alibee2

•6 years ago

10 Replies

Itchy legs

Anyone awake?? This last few days my lower legs and ankles have started itching. I am on Avastin anyone else had this? Maybe because I have been wearing long...

Anyone awake?? This last few days my lower legs and ankles have started itching....

antifer1234

•6 years ago

6 Replies

SUMMER OF LOVE

Just wanted to tell you what a fantastic night we have had just been to a show called THE SUMMER OF 65 and it was absolutely fantastic I WAS 13 TGAT YEAR.but I...

Just wanted to tell you what a fantastic night we have had just been to a show c...

dryden1

•6 years ago

3 Replies

Newly diagnosed stage 3

Hi, My name is Sharon. I turned 50 in June.I have recently been diagnosed with stage 3 high grade serous ovarian cancer. I have had a radical hysterectomy and...

Hi, My name is Sharon. I turned 50 in June.I have recently been diagnosed with s...

ShazD

•6 years ago

43 Replies

Stop hiding

I have been cancer free for a year my last treatment was October 2016..... I still have moments when I cannot connect things in my head .... for example I...

I have been cancer free for a year my last treatment was October 2016..... I st...

Shellygirl

•6 years ago

41 Replies

Clinical Trial

Hey everyone, I hope you are doing well. For the last two weeks, my mom and I have been anxiously waiting the results from her CA125 and her CT scan. Today, we...

Hey everyone, I hope you are doing well. For the last two weeks, my mom and I ha...

kristinaapril

•6 years ago

9 Replies

Parul

I was diagnosed with seromucinous ovarian cancer in 2015. Had a surgery and then chemo with carboplatin and paclitaxol. The chemo didn’t work as I got...

I was diagnosed with seromucinous ovarian cancer in 2015. Had a surgery and the...

Parul33

•6 years ago

4 Replies

Second line treatment - advice please!

Morning all, My diagnosis of PPC Stage 3c was treated with six rounds of carbo/taxol with sub optimal debulking in the middle. I’ve got two treatments of...

Morning all, My diagnosis of PPC Stage 3c was treated with six rounds of carbo/t...

Alifit

•6 years ago

23 Replies

CA125 fluctuations

Thanks to everyone who took the time to reply previously . Much appreciated. Any more stories of slight fluctuations in CA125 without recurrences. Stage 3 c...

Thanks to everyone who took the time to reply previously . Much appreciated. Any...

Dollie22

•6 years ago

4 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for November 2017

Stable!

Cycle time

Mom with stage 4 ovarian cancer

Where (not) to place a port

Fluid leaking from belly button... What could this mean

I'm back

Positive

Borderline tumor-completion surgery & no HRT

Please help will a hysteroscopy spread cancer cells if i have that . God forbid

Endometrial stage 3c.. Anyone else?

Some news that has rocked my boat a little today.

Ellakos - 5 yrs Postmenopause, Menopausal 50 yrs old lady URGRNTLY needs advice...

The waiting game

Turned down for immunotherapy trial

Discharge

Wee 1 trial anyone?

Thank you from Sunshine

From 'Inception' to diagnosis

Total fatigue!!! Help

Worth a read

So tired

Anyone else had Anxiety attacks long after chemo?

Itchy legs

SUMMER OF LOVE

Newly diagnosed stage 3

Stop hiding

Clinical Trial

Parul

Second line treatment - advice please!

CA125 fluctuations

Search posts

Pinned Posts

Latest poll

Which of these have you found helpful or would have liked to have been offered as part of your ovarian cancer care? (Please comment below)

Topics

Archive