Posts - My Ovacome | HealthUnlocked

My Ovacome

17,687 members • 19,952 posts

All posts for September 2017

CA125

Hi, I've had this blood test twice (month apart) with raised results each time. I've had 2 scans. First one showed 3 cysts on my ovary, second showed nothing....

Hi, I've had this blood test twice (month apart) with raised results each time....

MamaMac69

•7 years ago

15 Replies

Private Tumour profiling

Worth asking your hospital if they fund Tumour profiling under NHS. If not this company were very helpful.

Worth asking your hospital if they fund Tumour profiling under NHS. If not this ...

Jessica-DianeB

•7 years ago

2 Replies

Nausea and angels

It's been a week since my chemo and feeling both hopped up on the steroids and exhausted. And nausea. And burning feet. And have a bladder infection. Is this...

It's been a week since my chemo and feeling both hopped up on the steroids and e...

Melongirl

•7 years ago

14 Replies

Want to take advantage of all our features? Just log in!

News on Tumour profiling

This is now available on the NHS!!!!! 🎉 Not sure if it's across the U.K. But my hospital are offering it now. Hope this can assist many woman in finding...

This is now available on the NHS!!!!! 🎉 Not sure if it's across the U.K. But my...

Jessica-DianeB

•7 years ago

44 Replies

Scan

I'm having my scan tomorrow evening so will let you know the results when I know them. Hope everyone is okay today. Weather's not up to much so will make a...

I'm having my scan tomorrow evening so will let you know the results when I know...

ZenaJ

•7 years ago

40 Replies

Anybody else just have carboplatin as a single agent for ppc ?

I'm on my first line

Zena41

•7 years ago

18 Replies

Clinical trial? Niraparib?

Hello all. My mom just finished her 3rd session of caelyx, had a CT scan, went to oncologist who told her treatment is not working, CA125 is up to 700 ftom...

Hello all. My mom just finished her 3rd session of caelyx, had a CT scan, went ...

Hidden

•7 years ago

25 Replies

Another trip to the ER

Went today for a STAT CT of chest Abdomen and Pelvis. Nothing new as far as the tumor goes in the uterus and on the ovary but have nodule in liver and multiple...

Went today for a STAT CT of chest Abdomen and Pelvis. Nothing new as far as the ...

Jessfrogg

•7 years ago

14 Replies

Medical retirement

Has anyone had any experience of going through medical retirement. I work for the DWP and as part of their attendance policy medical retirement was brought up...

Has anyone had any experience of going through medical retirement. I work for th...

Corribrae

•7 years ago

9 Replies

A blip.

After being so full of beans and positive, I’m having a blip. Saw my new consultant today. He’s lovely. Very informative and softly spoken. He told me though...

After being so full of beans and positive, I’m having a blip. Saw my new consul...

Suzanne333

•7 years ago

65 Replies

Freaking out again..... so they have tried new chemo caelyx with carbo and im having another reaction 🤷‍♀️😩

Starting to feel my options are limited But the nurse reassures me there is plenty of chemo/options ???

Starting to feel my options are limited But the nurse reassures me there is ple...

Zena41

•7 years ago

21 Replies

Rising CA125

Hi all, hope you're as well as you can be. I've got PPC 3C, diagnosed in August 2016. I had 3 Carbo/taxol followed by sub-optimal debulking then another 3...

Hi all, hope you're as well as you can be. I've got PPC 3C, diagnosed in August...

Alifit

•7 years ago

17 Replies

Carcionsarcoma

March 2014 Carcinosarcoma. Bleeding found it. Bled a month before total hysterectomy and 19 lymph nodes out. Invasion from uterus to myometrium only 0.3....

March 2014 Carcinosarcoma. Bleeding found it. Bled a month before total hysterec...

amygene

•7 years ago

1 Reply

Does this sound weird?

Well, I already know it's going to sound weird! This second go 'round with chemo has hit me differently than the first one a year ago. My question is....and...

Well, I already know it's going to sound weird! This second go 'round with chem...

Minniemay

•7 years ago

15 Replies

Canula help

Hi everyone I had my first cycle of second line chemo today 😒. It took them 5 attempts at getting the canula in. I've not long taken my plasters and dressing...

Hi everyone I had my first cycle of second line chemo today 😒. It took them 5 a...

Leianne7

•7 years ago

17 Replies

Oral mucositis

For all of you lovely ladies like me suffering with mouth sores - these lollies from Aldi are the best !

For all of you lovely ladies like me suffering with mouth sores - these lollies ...

2mini2

•7 years ago

1 Reply

Oncology

Hi all. I went for my oncology appointment today and my oncologist told me I'm marvelous. My CA125 is 7 and has been for at least three years now. No signs of...

Hi all. I went for my oncology appointment today and my oncologist told me I'm ...

ZenaJ

•7 years ago

56 Replies

Blood Thinning and Taxol. Anyone else have this experience?

Hi Lovely Ladies. Hope you are all doing well and have an abundance of energy, support, perseverance and love and in your lives. I am in my final weeks of...

Hi Lovely Ladies. Hope you are all doing well and have an abundance of energy, s...

Hidden

•7 years ago

7 Replies

Sciatica and Taxol

Hi everyone, Has anyone had any problems with sciatica? About 4 weeks ago I suddenly lost all feeling down the back of my left thigh and buttock. I looked it...

Hi everyone, Has anyone had any problems with sciatica? About 4 weeks ago I sudd...

Hectoria

•7 years ago

28 Replies

Frequency of CT scans

Hi lovely ladies I have a question. How often do you have routine scans when in remission? I'm coming up to 6 months post chemo and my Oncologist has ordered a...

Hi lovely ladies I have a question. How often do you have routine scans when in ...

MH500

•7 years ago

29 Replies

Mucinous Cystadencarcinoma

Hi, I'm Catherine diagnosed with stage 1 Mucinous Cystadenacarcimoma in 1988. Massive tumour, so debulking followed by check ups for 5 years. Thankfully and...

Hi, I'm Catherine diagnosed with stage 1 Mucinous Cystadenacarcimoma in 1988. M...

Marieloiuse

•7 years ago

4 Replies

Good results but we don’t feel it.....

Hi lovelies, So after 5 Carbo/Caelyx my special person has had a fantastic response the biggest nodule was 11mm and is now 5mm and her CA125 is now 6 the...

Hi lovelies, So after 5 Carbo/Caelyx my special person has had a fantastic respo...

CallmeMum

•7 years ago

4 Replies

Enough is Enough

So tired of complaining but got to get stuff off my chest and don't want to burden my family so I just type it away so here goes. Finally got home from the...

So tired of complaining but got to get stuff off my chest and don't want to burd...

Jessfrogg

•7 years ago

23 Replies

Nodules!

Just had scan after all debulking chemo and radiotherapy ! Say a couple of nodules need to be watched and I'm really scared ,but they want to follow up in...

Just had scan after all debulking chemo and radiotherapy ! Say a couple of nodu...

Harleeboo

•7 years ago

4 Replies

i ve done my first chemo

i would like to say to all you wonderful courageous ladies who supported and encouraged me to be strong a huge big thankyou .i could not believe how easy it...

i would like to say to all you wonderful courageous ladies who supported and enc...

choconut56

•7 years ago

16 Replies

Starting Avastin

Hello All, Starting this Saturday, my mother will be administered Avastin (bevacizumab) 550mg every three weeks for maintenance. Her chemo regimen was over on...

Hello All, Starting this Saturday, my mother will be administered Avastin (bevac...

Arvind-2

•7 years ago

18 Replies

GE adenocarcinoma gastrotomy cancer

Done surgery during December 2016.chemo completed May 2017.All cleaned reports received evennow why am I getting loose motion after lunch and dinner besides...

Done surgery during December 2016.chemo completed May 2017.All cleaned reports r...

Cncr

•7 years ago

3 Replies

Hats off

Thank you everyone, you made me feel so good. Ann Nora 🍀

Hidden

•7 years ago

Be the first to reply

starting chemo tomorrow

tomorrow is the day i have been dreading ,the start of chemo .im having 6 three week cycles of carboplatin .today i went to the chemo unit at the hospital and...

tomorrow is the day i have been dreading ,the start of chemo .im having 6 three ...

choconut56

•7 years ago

17 Replies

Hernia

Hello ladies. I hope today finds you all in good fighting mode!! I have a question which I hope someone can answer.When I last saw my Oncologist and explained...

Hello ladies. I hope today finds you all in good fighting mode!! I have a questi...

Welshandproud

•7 years ago

17 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for September 2017

CA125

Private Tumour profiling

Nausea and angels

News on Tumour profiling

Scan

Anybody else just have carboplatin as a single agent for ppc ?

Clinical trial? Niraparib?

Another trip to the ER

Medical retirement

A blip.

Freaking out again..... so they have tried new chemo caelyx with carbo and im having another reaction 🤷‍♀️😩

Rising CA125

Carcionsarcoma

Does this sound weird?

Canula help

Oral mucositis

Oncology

Blood Thinning and Taxol. Anyone else have this experience?

Sciatica and Taxol

Frequency of CT scans

Mucinous Cystadencarcinoma

Good results but we don’t feel it.....

Enough is Enough

Nodules!

i ve done my first chemo

Starting Avastin

GE adenocarcinoma gastrotomy cancer

Hats off

starting chemo tomorrow

Hernia

Search posts

Pinned Posts

Latest poll

Which of these have you found helpful or would have liked to have been offered as part of your ovarian cancer care? (Please comment below)

Topics

Archive