Posts - My Ovacome | HealthUnlocked

My Ovacome

17,746 members • 19,983 posts

All posts for May 2017

Not good news

Just back from app not good news it's back and because I only finished chemo in Feb can't give me any just now so put me on LETROZOLE said I would be lucky to...

Just back from app not good news it's back and because I only finished chemo in ...

Friscok12

•7 years ago

22 Replies

CA125 static but not good

Hello everyone Having had 4 rounds of carboplatin with caelyx, I was told that it wasn't working in March and since then have been on watch-and-wait with...

Hello everyone Having had 4 rounds of carboplatin with caelyx, I was told that i...

minard

•7 years ago

17 Replies

Chemo went ahead Yesyerday

Hi I had some good news yesterday. I called Oncology as asked if I could have my Chemo as wasn't keen on waiting 3 weeks. They checked my bloods and it went...

Hi I had some good news yesterday. I called Oncology as asked if I could have my...

ricky23

•7 years ago

1 Reply

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Hello everybody.

Diagnosed OV4 Dec 15. I went natural for 6 months but bowel blockage forced chemo on me. Glad now, 10 months later, I feel good. Also on medicinal cannabis....

Diagnosed OV4 Dec 15. I went natural for 6 months but bowel blockage forced che...

breechat

•7 years ago

18 Replies

Reflux

Hi everyone, I'm having a break from chemo, this is my second week off it. I do have a lung drain fitted, this is drained three times a week. I've started...

Hi everyone, I'm having a break from chemo, this is my second week off it. I do...

MyLife1

•7 years ago

4 Replies

Gem / carbo 4th line

Hi to everyone - just a follow up on my post a couple of days ago. I saw the oncologist today - major organs clear but enlarged lymph nodes around abdomen....

Hi to everyone - just a follow up on my post a couple of days ago. I saw the on...

maz54

•7 years ago

26 Replies

Appointment at the care oncology clinic

I went to my appointment on Wednesday last week. The doc was lovely, very informative about all the drugs and the various different studies showing how the...

I went to my appointment on Wednesday last week. The doc was lovely, very inform...

786Asma_believer_

•7 years ago

7 Replies

Me again!!

CA125 gone up again! 3rd time now, 119, 129, 129, 139. Since 14th march. This is POST 1st line chemo, debulking ( with NED ) and one chemo to go............

CA125 gone up again! 3rd time now, 119, 129, 129, 139. Since 14th march. This i...

Jessica-DianeB

•7 years ago

6 Replies

Worried

Oncologist phoned to go see her tomm about scan I had 2 mounths after finishing treatment in Feb for high grade stage 3 ovarian cancer so worried fluid on...

Oncologist phoned to go see her tomm about scan I had 2 mounths after finishing ...

Friscok12

•7 years ago

4 Replies

HATE THIS

how do you said to your family and friends that your oc can't be cured. They all cant understand that I can live with this for ages. Incurable does not mean...

how do you said to your family and friends that your oc can't be cured. They all...

Daniellafriman

•7 years ago

20 Replies

Stomach Cancer and Seconday Peritoneal Cancer

Hi I was told by my Consultant yesterday that my Cancer is incureable. At the moment I just feel like giving up as he said on average without Chemo I have 6...

Hi I was told by my Consultant yesterday that my Cancer is incureable. At the m...

Archieperry

•7 years ago

11 Replies

CT Scan

Hi all you lovely ladies Have any of you been asked to just drink water an hour before your scan and no contrast at all? Apparently this is being trialled and...

Hi all you lovely ladies Have any of you been asked to just drink water an hour ...

Howick01

•7 years ago

9 Replies

ANYONE HAD THIS ON CARBOPLATIN?

Hi Everyone..... Sorry to be posting yet again but need some advice and possibly reassurance. Please don't be scared to give me the truth !! Today at hospital...

Hi Everyone..... Sorry to be posting yet again but need some advice and possibly...

ricky23

•7 years ago

19 Replies

Reminded me of you all!!!

On World OC Day I saw this on FB and it reminded me of you all! Dx

HogwartsDK

•7 years ago

8 Replies

Caylex, the slow burner?

Good evening ladies, Im currently on Caylex and Taxol. I have had my 4th cycle and midway scan was positive showing some reduction and my CA125 has come down...

Good evening ladies, Im currently on Caylex and Taxol. I have had my 4th cycle...

786Asma_believer_

•7 years ago

5 Replies

8th May - World Ovarian Cancer Day

Just wanted to offer all my fellow warriors a whopping big ((hug)) today especially. My thoughts are with all those we've loved and lost to this horrid...

Just wanted to offer all my fellow warriors a whopping big ((hug)) today especia...

Mrs_Atko

•7 years ago

16 Replies

Rucaparib - NICE appraisal

Dear All The National Institute for Health and Care Excellence (NICE) have contacted Ovacome regarding preparation for their appraisal of a PARP inhibitor (a...

Dear All The National Institute for Health and Care Excellence (NICE) have conta...

OvacomeSupport

Partner•7 years ago

15 Replies

Recurrence

Hi I completed chemo in Nov 16. Since Feb 17 my CA-125 has been on the rise. Today it is 434. Apart from some constipation I feel really well. I just wish...

Hi I completed chemo in Nov 16. Since Feb 17 my CA-125 has been on the rise. T...

2mini2

•7 years ago

11 Replies

Uncertainty about ovarian cancer

Hi, I was supposed to be back at work today following a 'problem-free' hysterectomy in January. Fast forward to now and am about to go to GP for another sick...

Hi, I was supposed to be back at work today following a 'problem-free' hysterect...

GillianWright

•7 years ago

13 Replies

Nice little break

Morning all I am 11 Taxols down and 7 to go and on Thursday till yesterday I went on a girly break to Spain ☀️ Thoroughly enjoyed it and got a nice starter tan...

Morning all I am 11 Taxols down and 7 to go and on Thursday till yesterday I wen...

Jo2305

•7 years ago

4 Replies

Chemo... the gift that just keeps on giving 😩

So here I am, over three months since I finished chemotherapy and my hair is now about 1.5" long and I'm starting to look like Dennis the bloody menace!! And...

So here I am, over three months since I finished chemotherapy and my hair is now...

Carole666

•7 years ago

18 Replies

I'm new to all this. A question about abdominal pain.

Hello everyone, I am so glad I found this wonderful community as you all seem so helpful. I was diagnosed at the beginning of March 2017 with probable stage 4B...

Hello everyone, I am so glad I found this wonderful community as you all seem so...

midcanada

•7 years ago

13 Replies

Diagnosis update!!

After 16 +weeks since surgery there have been many complications which meant the discussions regarding my biopsies: pathology report post surgery were the...

After 16 +weeks since surgery there have been many complications which meant the...

Jessica-DianeB

•7 years ago

24 Replies

Enlarged lymph nodes - what next? ?

Good morning ladies and happy Sunday to everyone - have just been scrolling through and reading everyone's posts; I don't tend to post much myself as so many...

Good morning ladies and happy Sunday to everyone - have just been scrolling thro...

maz54

•7 years ago

15 Replies

It's back

Finished chemo in Feb just been told today fluid in my lungs and nodule in tummy bigger anybody had before 3 mouth check is this the end cause its came back to...

Finished chemo in Feb just been told today fluid in my lungs and nodule in tummy...

Friscok12

•7 years ago

20 Replies

The life after chemo isn't what I thought it would be.

Hello everyone. Finished chemo on February 15th this year... I had hoped of old me just bouncing back. But I don't believe the ol me is left in me anymore. Got...

Hello everyone. Finished chemo on February 15th this year... I had hoped of old ...

Veronica08

•7 years ago

15 Replies

We did it!.......l did it!

We got away! Sunny sunshine for a whole week, thanks to you ladies for your encouraging us to go. It's certainly been a great tonic to spend time together....

We got away! Sunny sunshine for a whole week, thanks to you ladies for your enco...

Chezp

•7 years ago

10 Replies

When the world is great because you get good news

Mums had her MRI after the last chemo of the first round and the results are back. We were pleased to here that the cancer in her liver (which noone had told...

Mums had her MRI after the last chemo of the first round and the results are bac...

nandeb21

•7 years ago

9 Replies

Thankyou

Thankyou for all of your encouraging words and welcome. I actually feel less lonely as I have been throughout this journey. It's so reassuring knowing I can...

Thankyou for all of your encouraging words and welcome. I actually feel less lo...

MyLife1

•7 years ago

3 Replies

My fellow warriors...help for my Dad please - Prostate Cancer

Hello lovely ones My OC journey aside, some of you may know we lost my darling Mum to primary metastatic liver cancer 4 years ago. It seems the big C has now...

Hello lovely ones My OC journey aside, some of you may know we lost my darling M...

Mrs_Atko

•7 years ago

66 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for May 2017

Not good news

CA125 static but not good

Chemo went ahead Yesyerday

Hello everybody.

Reflux

Gem / carbo 4th line

Appointment at the care oncology clinic

Me again!!

Worried

HATE THIS

Stomach Cancer and Seconday Peritoneal Cancer

CT Scan

ANYONE HAD THIS ON CARBOPLATIN?

Reminded me of you all!!!

Caylex, the slow burner?

8th May - World Ovarian Cancer Day

Rucaparib - NICE appraisal

Recurrence

Uncertainty about ovarian cancer

Nice little break

Chemo... the gift that just keeps on giving 😩

I'm new to all this. A question about abdominal pain.

Diagnosis update!!

Enlarged lymph nodes - what next? ?

It's back

The life after chemo isn't what I thought it would be.

We did it!.......l did it!

When the world is great because you get good news

Thankyou

My fellow warriors...help for my Dad please - Prostate Cancer

Search posts

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Which of these have you found helpful or would have liked to have been offered as part of your ovarian cancer care? (Please comment below)

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Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for May 2017

Not good news

CA125 static but not good

Chemo went ahead Yesyerday

Hello everybody.

Reflux

Gem / carbo 4th line

Appointment at the care oncology clinic

Me again!!

Worried

HATE THIS

Stomach Cancer and Seconday Peritoneal Cancer

CT Scan

ANYONE HAD THIS ON CARBOPLATIN?

Reminded me of you all!!!

Caylex, the slow burner?

8th May - World Ovarian Cancer Day

Rucaparib - NICE appraisal

Recurrence

Uncertainty about ovarian cancer

Nice little break

Chemo... the gift that just keeps on giving 😩

I'm new to all this. A question about abdominal pain.

Diagnosis update!!

Enlarged lymph nodes - what next? ?

It's back

The life after chemo isn't what I thought it would be.

We did it!.......l did it!

When the world is great because you get good news

Thankyou

My fellow warriors...help for my Dad please - *Prostate Cancer*

Search posts

Pinned Posts

Latest poll

Which of these have you found helpful or would have liked to have been offered as part of your ovarian cancer care? (Please comment below)

Topics

Archive

My fellow warriors...help for my Dad please - Prostate Cancer