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My Ovacome

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All posts for October 2015

Catching up

It has been a while since I last wrote, been away again in our Caravan. My first whole session of Caelyx went well, but the side effects were horrid. My...

It has been a while since I last wrote, been away again in our Caravan. My firs...

Gillian80

•9 years ago

12 Replies

Another first post

Hello, this is my first post. I hope you don't mind if I summarise my cancer history, starting with breast cancer (lumpectomy + radiotherapy) in 1985,...

Hello, this is my first post. I hope you don't mind if I summarise my cancer hi...

steff5

•9 years ago

26 Replies

Your bloating experiences

Hi ladies, I was wondering what experience you had with bloating? Where abouts in your abdomen did you feel bloated? And was it persistent? If so (or not)...

Hi ladies, I was wondering what experience you had with bloating? Where abouts...

feathers89

•9 years ago

7 Replies

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OC symptoms?

Hi, I'm looking for a little advice on how to move forward with my symtoms? I am 26 and three months ago, completely out of the blue my periods started to...

Hi, I'm looking for a little advice on how to move forward with my symtoms? I ...

Kate_123

•9 years ago

3 Replies

CA125

Good Morning, Does anyone here know if CA125 is raised in stable disease or whether it only rises if cancer is active? Surely if cancer is present it would...

Good Morning, Does anyone here know if CA125 is raised in stable disease or whet...

lisarm5

•9 years ago

16 Replies

Antheamary

this is my first post. I have ovarian cancer stage 4. I have had 2 sessions of chemo, now things have settled, I take anastrozole. I have just been told i need...

this is my first post. I have ovarian cancer stage 4. I have had 2 sessions of c...

antheamary

•9 years ago

10 Replies

Caelyx

Need some advise, have just been to oncologist to be told cancer spots are growing again so need chemo, they've suggested Caelyx every 4 weeks for an hour, onc...

Need some advise, have just been to oncologist to be told cancer spots are growi...

Hidden

•9 years ago

9 Replies

Results!

So despite my fears it looks like there is no evidence of disease left!! Mdt have looked at the scan of the lump that we originally thought was an abscess and...

So despite my fears it looks like there is no evidence of disease left!! Mdt hav...

Beckyjh

•9 years ago

8 Replies

HELP

have any of ye good ladies ever been on Topotecan my oncologist putting me on it Caelyx notworkin I would appreciate as m uch info as possible, not looking...

have any of ye good ladies ever been on Topotecan my oncologist putting me on i...

EilyEire

•9 years ago

10 Replies

OC Symptoms?

Hi, My sincere apologies if I am posting in the wrong place. I have not been diagnosed with ovarian cancer but seem to have a lot of the symptoms. I have been...

Hi, My sincere apologies if I am posting in the wrong place. I have not been dia...

SarahN675

•9 years ago

26 Replies

Back to hospital next week

Hi Thank you to all who replied last time I posted. I go in to hospital next Wednesday for a second total hip replacement. It was due to be done before I was...

Hi Thank you to all who replied last time I posted. I go in to hospital next Wed...

Deesales

•9 years ago

3 Replies

CA125 still low, hopefully due to ibuprofen

Hi all. Just a quick update on how things are going with me. Last CA125 was 5 when checked 13 days ago. It has not been above 5 since December last year....

Hi all. Just a quick update on how things are going with me. Last CA125 was ...

drdu

•9 years ago

15 Replies

This is it!!

Getting ready for a sleepless night as tomorrow I see oncologist to find out whether surgery and chemo have worked and cancer is gone!! I'll also find out what...

Getting ready for a sleepless night as tomorrow I see oncologist to find out whe...

Beckyjh

•9 years ago

6 Replies

Temperature

Hello ladies just looking for some advice been checking temp as halfway through chemo cycle was not feeling great today so took it earlier it was 37.6...

Hello ladies just looking for some advice been checking temp as halfway through...

vonny1960

•9 years ago

7 Replies

Caelyx

Hi, Has anyone had taxol and avast in and it hasn't worked well and did they go onto Caelyx and did it work. Getting slightly worried we can't find a therapy...

Hi, Has anyone had taxol and avast in and it hasn't worked well and did they go ...

Fuffyfrost

•9 years ago

10 Replies

2nd Taxol/Carbo completed

Stage IIIa - complete removal of cancer 10/8/15 - adjuvant chemo Taxol/Carbo. Completed my 2nd session last Monday 5th Ocober. The pain in my legs has not...

Stage IIIa - complete removal of cancer 10/8/15 - adjuvant chemo Taxol/Carbo. Co...

Bev155

•9 years ago

28 Replies

Olaparib and Cediranib

I've just read a really interesting paper on the use of these two drugs in combination. It was an American report, but when I searched it on UK sites, despite...

I've just read a really interesting paper on the use of these two drugs in combi...

Lily-Anne

•9 years ago

21 Replies

Penny Brohn

Went on a two day living well course put on by Penny Brohn to be honest was a little sceptical at first but found it thoroughly interesting and was glad I went...

Went on a two day living well course put on by Penny Brohn to be honest was a li...

babsclunn

•9 years ago

6 Replies

difficult decision

Hi folks, I'm feeling well and in Spain this week but been told there is a phase 1 clinical trial of new antiangiogenic drug (cuts off blood supply to tumours)...

Hi folks, I'm feeling well and in Spain this week but been told there is a phase...

francescahannah

•9 years ago

27 Replies

HE4

Did anyone have the HE4 blood test? Did you have it along with the 125 blood test for ovarian cancer? Did you find it helpful? Another question, should I be...

Did anyone have the HE4 blood test? Did you have it along with the 125 blood tes...

Bluehen

•9 years ago

6 Replies

MRI vs CT scan

i see many of you are getting MRI's. I would prefer this over CT Scan. Why is your oncologist agreeing to MRI's?

i see many of you are getting MRI's. I would prefer this over CT Scan. Why is y...

Bluehen

•9 years ago

4 Replies

Mri results

Results came back good, nothing outside. Have now got to have another ultrasound on the 5th November, to see if it's grown again etc, (4x4inches was big...

Results came back good, nothing outside. Have now got to have another ultrasoun...

Hidden

•9 years ago

4 Replies

Disappointed

Hi ladies well iv had my first three weeks of docetaxol without to many problems.i was told on Tuesday I would now have a week off which is very nice.but when...

Hi ladies well iv had my first three weeks of docetaxol without to many problems...

Strawberryfield

•9 years ago

2 Replies

On the treadmill again

Hi all. My last round of chemo ended on 7 May 2015 and I have had a great 5 months of freedom enjoying my garden and some holidays. Saw my oncologist...

Hi all. My last round of chemo ended on 7 May 2015 and I have had a great 5 mont...

EnaC

•9 years ago

11 Replies

Topetecan and hair loss

Hello. This is likely to be my next chemo regime. Has anyone used a cold cap and kept their hair ok? Lovis x

Hello. This is likely to be my next chemo regime. Has anyone used a cold cap and...

Lovis

•9 years ago

6 Replies

Can you help with a study looking at the impact of recurrence of ovarian cancer?

Hello, Dr Emily Arden- Close is looking for women with a recurrence of ovarian cancer to take part in a study which would involve a telephone interview about...

Hello, Dr Emily Arden- Close is looking for women with a recurrence of ovarian...

TheOvacomeTeam

Partner•9 years ago

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Straight back into limbo!

So, I had my last chemo yesterday which I already had mixed feelings about. When I left I had to go straight away to get an abscess sorted which has been at...

So, I had my last chemo yesterday which I already had mixed feelings about. When...

Beckyjh

•9 years ago

5 Replies

Sinus problems

Hi I am on Carboplatyn and Caelyx and have had 8 lots so far this year, I am having awful headaches and my sinuses are very sore above my eyes and my neck and...

Hi I am on Carboplatyn and Caelyx and have had 8 lots so far this year, I am ha...

Barb4145

•9 years ago

4 Replies

Mri results

Get the results today, just a pain having to wait till 4pm...feeling very jittery. ..Has it spread I hope not...but then it's just another waiting game to...

Get the results today, just a pain having to wait till 4pm...feeling very jitte...

Hidden

•9 years ago

4 Replies

Up-date on DD

Hi everyone, I haven't posted in a good nine months about DD and it has been a good nine months! She was supposed to see her consultant in June but we missed...

Hi everyone, I haven't posted in a good nine months about DD and it has been a g...

Honey3

•9 years ago

6 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for October 2015

Catching up

Another first post

Your bloating experiences

OC symptoms?

CA125

Antheamary

Caelyx

Results!

HELP

OC Symptoms?

Back to hospital next week

CA125 still low, hopefully due to ibuprofen

This is it!!

Temperature

Caelyx

2nd Taxol/Carbo completed

Olaparib and Cediranib

Penny Brohn

difficult decision

HE4

MRI vs CT scan

Mri results

Disappointed

On the treadmill again

Topetecan and hair loss

Can you help with a study looking at the impact of recurrence of ovarian cancer?

Straight back into limbo!

Sinus problems

Mri results

Up-date on DD

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Which of these have you found helpful or would have liked to have been offered as part of your ovarian cancer care? (Please comment below)

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