Posts - My Ovacome | HealthUnlocked

My Ovacome

17,746 members • 19,983 posts

All posts for January 2015

Letter from Cancer 52

I thought I'd share this bit of heartening news. Following the recent announcement regarding the changes to the Cancer Drug Fund (CDF), a coalition of...

I thought I'd share this bit of heartening news. Following the recent announcem...

Whippit

•9 years ago

24 Replies

Positive way forward

Found this site whilst doing my usual search for some hope. I was diagnosed with stage 3 oc in May. I had debulking surgery and removal of omentum in August...

Found this site whilst doing my usual search for some hope. I was diagnosed with...

Taichipat

•9 years ago

16 Replies

Help please

Last march I had a procedure that ruptured an ovarian cyst, it was probably cancerous as was having cancer symptoms I'm now very very poorly bleeding from the...

Last march I had a procedure that ruptured an ovarian cyst, it was probably canc...

Gemkins1978

•9 years ago

12 Replies

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Stage 4 for 8 years, facing 5th Line treatment, welcome any input dear friends

Hi ladies I was diagnosed nearly eight years ago. Had Carbo/Taxol x 3 then surgery then finished another 3. Was blessed with four years remission. Had 2nd line...

Hi ladies I was diagnosed nearly eight years ago. Had Carbo/Taxol x 3 then surge...

nannacarol

•9 years ago

6 Replies

The Cancer Drugs Fund review results

January 2015 The Cancer Drugs fund (CDF) was set up in 2010 to provide funding for cancer drugs which have not been approved for NHS use England by the...

January 2015 The Cancer Drugs fund (CDF) was set up in 2010 to provide funding ...

TheOvacomeTeam

Partner•9 years ago

7 Replies

Apologies

I wrote that Avastin was roughly £25000 for a 10 month course which is £1.56 for every year of life a 50 year old woman has lived. It is actually £1.36. Not...

I wrote that Avastin was roughly £25000 for a 10 month course which is £1.56 for...

Hidden

•9 years ago

23 Replies

A week until my op :/

Hi everybody, hope everyones new year is going well. I was in a bit of a panic last time i got my results from my mri scan - tumour has returned onto my pelvic...

Hi everybody, hope everyones new year is going well. I was in a bit of a panic l...

Jasmine_Rose

•9 years ago

10 Replies

Ringing ears

Hi can anyone help? I have just completed chemo number 8 (of 9) of carboplatin and taxol, with this one including Avastin. Has anyone else suffered with...

Hi can anyone help? I have just completed chemo number 8 (of 9) of carboplatin a...

Emalou71

•9 years ago

6 Replies

Tears water my roses

Laid flowers today whilst the shine of the sun kept them warm Last lot got blown away following a terrible storm, But the thunder and roar was not from the...

Laid flowers today whilst the shine of the sun kept them warm Last lot got blown...

shaun67

•9 years ago

7 Replies

NHS Action Plan

This is what is behind the headlines. It's the new referral pathway into action in 60 areas. It is interesting that Clinical Commissioning Groups will have...

This is what is behind the headlines. It's the new referral pathway into action ...

Frangipani

•9 years ago

5 Replies

Any advice what next for my friend?

Hello ladies, Just wonder if you can help. One of the ladies I had chemo with back in 2012 has been told that her cancer has possibly returned and they may...

Hello ladies, Just wonder if you can help. One of the ladies I had chemo with b...

sammyH

•9 years ago

8 Replies

IS IT BACK AGAIN

I was diagnosed with stage 4 ovarian cancer and i have been in remission for 6 months , and now my ca125 has shot throught the roof the problem is that i have...

I was diagnosed with stage 4 ovarian cancer and i have been in remission for 6 m...

ALEXANDRAJACKSON

•9 years ago

21 Replies

Anxious

Well appointment through for first three monthly check I know from all the other members posts that anxiety is part of this journey but worrying over every...

Well appointment through for first three monthly check I know from all the other...

babsclunn

•9 years ago

8 Replies

Lump in Groin

Hi, I was diagnosed with Clear Cell OC Stage 1c earlier this year, usual debulking followed by 4 cycles of chemo. Have felt very well but just discovered a...

Hi, I was diagnosed with Clear Cell OC Stage 1c earlier this year, usual debulki...

pruns

•9 years ago

6 Replies

Post Chemo/Remission

I may be ahead of my time but does anybody know what is or can be put in place to clean up any possible remaining stray cancer cells to prevent a re-occurrence...

I may be ahead of my time but does anybody know what is or can be put in place t...

giovannabett

•9 years ago

12 Replies

Avastin

Just read in today's telegraph that as part if NHS budget cuts,Avastin is one if the drugs proposed to be withdrawn from funding.Announcement to be made next...

Just read in today's telegraph that as part if NHS budget cuts,Avastin is one if...

Jackie0

•9 years ago

9 Replies

Scan results all good.

Been for scan results Today. Saw my surgeon lady, she walked in, asked me how I was and I nearly burst out crying and told her I was feeling very anxious. She...

Been for scan results Today. Saw my surgeon lady, she walked in, asked me how I...

kazrazmataz

•9 years ago

33 Replies

Fluid in legs

I'm on my third line of chemo - weekly Paclitaxel! For over a month now my right leg has been swollen, in fact very puffy if I don't lie down with my leg up....

I'm on my third line of chemo - weekly Paclitaxel! For over a month now my right...

Tricia12

•9 years ago

4 Replies

Cachexia....

Please help ...any suggestions to reduce my cachexia symptoms ....with my best wishes to all of you & thanks in advance Eyman

Please help ...any suggestions to reduce my cachexia symptoms ....with my best w...

Eyman1

•9 years ago

5 Replies

Excercise??

Hi everyone, any advice about post surgery excercise. The only advice I received from the hospital was breathing deeply to avoid pneumonia which I got......

Hi everyone, any advice about post surgery excercise. The only advice I received...

Jackie0

•9 years ago

21 Replies

Colostomy problems - parastomal hernia?

Don't know why I never asked advice from you lovely ladies before. I am sure someone out there has an answer or can give me some advice. I have a permanent...

Don't know why I never asked advice from you lovely ladies before. I am sure so...

Izzystep

•9 years ago

2 Replies

Peritoneal cancer

I finished 6 months of chemo in May 2014 after having debunking surgery for peritoneal cancer. I was stage 3 and my ca125 level was 3000. It's been a rough...

I finished 6 months of chemo in May 2014 after having debunking surgery for peri...

Hidden

•9 years ago

36 Replies

Good News from ONC - It worked!!!!!

I'm so high on adrenaline I'm not able to sit down and don't know whether to start cleaning or baking or what... My ONC Just called me FIVE DAYS AHEAD OF...

I'm so high on adrenaline I'm not able to sit down and don't know whether to sta...

ninawithOC

•9 years ago

50 Replies

Posts/messages cut short

Hello there! Has anyone noticed any glitches with the messaging/ posting? Just observed that the system only sent the first/ second paragraphs of the messages...

Hello there! Has anyone noticed any glitches with the messaging/ posting? Just ...

ninawithOC

•9 years ago

8 Replies

Chesty cough

Just a quick question, had TAH July 13 diagnosed with borderline stage 2c, have any ladies since surgery found they struggle to get rid of chesty and...

Just a quick question, had TAH July 13 diagnosed with borderline stage 2c, have ...

Ladyone1

•9 years ago

7 Replies

Just to post a link....

http://aftercc.blogspot.co.uk/2015/01/bad-luck-and-hope-for-better.html

Horse2

•9 years ago

Be the first to reply

Advice Please

Hello Everyone, I haven't posted for a while as I haven't had anything to report, but I do read most posts on here, and am really sad that we have lost two...

Hello Everyone, I haven't posted for a while as I haven't had anything to repor...

doodoolatrice

•9 years ago

17 Replies

CHEMO HAIR

Over the past ten years , I have lost my hair 3 times. Each time to come back curly. But alas, it always straighten out after several months.

Over the past ten years , I have lost my hair 3 times. Each time to come back c...

hannakat

•9 years ago

8 Replies

PPC cancer and considering risk reducing surgery for BRCA1 gene, help please.

Happy New Year everyone. I'm not a regular contributor to this site but do read often and take great confort and inspiration from it so thank you all. I...

Happy New Year everyone. I'm not a regular contributor to this site but do rea...

Julie40

•9 years ago

8 Replies

Happy Belated New Year

This is now my fourth year on ovacome and I am sad to read about the passing away of familiar names. A couple of months ago I moved up to East Lancashire I...

This is now my fourth year on ovacome and I am sad to read about the passing awa...

ScardyCat40

•9 years ago

8 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for January 2015

Letter from Cancer 52

Positive way forward

Help please

Stage 4 for 8 years, facing 5th Line treatment, welcome any input dear friends

The Cancer Drugs Fund review results

Apologies

A week until my op :/

Ringing ears

Tears water my roses

NHS Action Plan

Any advice what next for my friend?

IS IT BACK AGAIN

Anxious

Lump in Groin

Post Chemo/Remission

Avastin

Scan results all good.

Fluid in legs

Cachexia....

Excercise??

Colostomy problems - parastomal hernia?

Peritoneal cancer

Good News from ONC - It worked!!!!!

Posts/messages cut short

Chesty cough

Just to post a link....

Advice Please

CHEMO HAIR

PPC cancer and considering risk reducing surgery for BRCA1 gene, help please.

Happy Belated New Year

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