Posts - My Ovacome | HealthUnlocked

My Ovacome

17,728 members • 19,971 posts

All posts for September 2013

Why won't my Gynecologist let me have Radiotherapy. ... instead of Chemo ( ive decided against Chemo.. long story now) Better than nothing?

ricky23

•11 years ago

10 Replies

Should I consider a private transvaginal ultrasound?

I'm 44 and in the last 6 months my periods have changed, in the main, by becoming more painful. I'm also experiencing menstrual pain throughout the month....

I'm 44 and in the last 6 months my periods have changed, in the main, by becomin...

sharon77

•11 years ago

10 Replies

Getting A Second Opinion

There have been a lot of discussions lately about getting a second opinion. I hope that this posting is helpful. A second opinion is when you see another...

There have been a lot of discussions lately about getting a second opinion. I ho...

SusanOvacome

•11 years ago

16 Replies

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SHOULD I CHANGE MY ONC

Although I hardly ever post on this site I very often read whats going on. Today I could do with some advice please....I've never had a very good rapport with...

Although I hardly ever post on this site I very often read whats going on. Today...

sandy08

•11 years ago

19 Replies

Ovarian Cancer symptoms campaign progress

Dear All, You will remember that at the beginning of the year the Dept. of Health piloted a programme of ovarian cancer symptoms awareness which focussed on...

Dear All, You will remember that at the beginning of the year the Dept. of Heal...

LouiseOvacome

My Ovacome Team•11 years ago

7 Replies

Greybadger

This is Tracey, Viv's daughter. I am really sorry to say that she died early this morning, 3 weeks and 6 days after the Royal Marsden told her there was...

This is Tracey, Viv's daughter. I am really sorry to say that she died early thi...

girliesmum

•11 years ago

74 Replies

What next?

Hi, I do not usually post on this site, but I do read the postings and their wonderful responses. I have stage 4, ovarian cancer. The tumours have now spread...

Hi, I do not usually post on this site, but I do read the postings and their won...

fionai

•11 years ago

42 Replies

surgery date confirmed for debaulking surgery

Hi all sorry I haven't been on of late I have been feeling quite poorly of late. My Rheumatoid arthritis had returned and has left me with painful joints and...

Hi all sorry I haven't been on of late I have been feeling quite poorly of late....

brunette0311

•11 years ago

33 Replies

After completing my treatment in May I am every so often getting stitch like and pinching feelings in my abdomen and wondered if any one

else has experienced this. Also why I am posting has any one used the Ladycare Magnet and di they find it useful Love Pam xx

else has experienced this. Also why I am posting has any one used the Ladycare M...

fluffycloud

•11 years ago

14 Replies

Post-op pain four months after.

After being diagnosed with Stage 3c ovarian cancer in Dec 2013, I had four cycles of Carboplatin(first cycle I also had Taxol but second cycle had extreme...

After being diagnosed with Stage 3c ovarian cancer in Dec 2013, I had four cycle...

kaz14

•11 years ago

15 Replies

Should we be pushing the GP to do more?

Sister aged 47 has had following symptoms for 3-4 weeks: bloating, pelvic pain/ pressure, abdo pain, loss of appetite, fatigue and weight loss. GP has so far...

Sister aged 47 has had following symptoms for 3-4 weeks: bloating, pelvic pain/ ...

Rhoscot

•11 years ago

29 Replies

Just to keep you up to date

Morning Ladies, Just to keep you updated, the MDM did not happen 3 weeks ago am still waiting, fingers crossed it should be today, dont know the reason for...

Morning Ladies, Just to keep you updated, the MDM did not happen 3 weeks ago am ...

nessie1965

•11 years ago

6 Replies

What's going on????

Hi, I am new to this community, diagnosed a few tears ago, subtle symptoms, etc. etc. etc. So, if my CA125 rises, what should I do? Worry, wait for the next...

Hi, I am new to this community, diagnosed a few tears ago, subtle symptoms, etc....

vipervictoria

•11 years ago

17 Replies

Hello all , just to say ime of to oncology tomorrow morning , I had the half way staging scan last Monday .

Ime hoping she will discuss this with me tomorrow .. My PICC line is being changed tomorrow as it flushes but wont give blood . Which they will need to check...

Ime hoping she will discuss this with me tomorrow .. My PICC line is being chan...

Elft63

•11 years ago

8 Replies

How long after M.R.I.scan does it take to get result.

belgasim

•11 years ago

3 Replies

New gene clue to ovarian cancer

This is an interesting article published in Nature about a new gene linked to ovarain cancer. Link below http://www.bbc.co.uk/news/health-23962316

This is an interesting article published in Nature about a new gene linked to ov...

RuthPOvacome

•11 years ago

6 Replies

Nursing in Practice London

On Tuesday 3rd September we had a stand at the Nursing in Practice exhibition at the Business Design Centre London. Susan - our new support line nurse and I...

On Tuesday 3rd September we had a stand at the Nursing in Practice exhibition at...

RuthPOvacome

•11 years ago

2 Replies

Hi everyone ..I don't very often post but I do follow all your posts ... This is not so much a question more a statement of how my journey

Is going .. Ime half way through the chemo .. My energy levels are zero they don't seem to pick up much between sessions . I've just had my half way staging...

Is going .. Ime half way through the chemo .. My energy levels are zero they don...

Elft63

•11 years ago

16 Replies

Poetry book to raise funds for ovacome

Hi everyone, As some of you know I made a poetry book for our dear gwyn. it was a hard back book which was quite expensive so I would now like to create an...

Hi everyone, As some of you know I made a poetry book for our dear gwyn. it was...

Jacks150

•11 years ago

18 Replies

Hola!! Easy fix if you are seeing the forum in Spanish

I was a bit perplexed when you lot started appearing in Spanish... the menus, anyway. If this has happened to you just scroll right down to the black panel at...

I was a bit perplexed when you lot started appearing in Spanish... the menus, an...

Hidden

•11 years ago

3 Replies

Worried!!

Hi everyone! My last post was about a CA125 blood test, which I have been told was okay, although me being a worrier I have read too many horror stories that...

Hi everyone! My last post was about a CA125 blood test, which I have been told w...

Rebecki93

•11 years ago

11 Replies

Huge thankyou for all your support

Had my operation yesterday. Few complications throughout the op though consultant certain nothing sinister going on. its been a very long week can't wait to...

Had my operation yesterday. Few complications throughout the op though consultan...

Smith123

•11 years ago

8 Replies

Timing another drain!

Yesterday I emailed my CNS to let her know I would be needing to be drained, probably next week! I figured its best to give her the warning, I'm not full...

Yesterday I emailed my CNS to let her know I would be needing to be drained, pro...

ChrisH

•11 years ago

9 Replies

Best thing for scar???

Hi every one... I need some advice for what's best to treat my scars to try and reduce them.. I have a belly full of little scars from my previous op and one...

Hi every one... I need some advice for what's best to treat my scars to try and ...

Belle

•11 years ago

27 Replies

I'm out of hospital - thanks for all the good wishes.

My surgery did go ahead on Wednesday, though I did begin to wonder if it would, as I was gowned up for over 6 hours before anything happened. I'm feeling...

My surgery did go ahead on Wednesday, though I did begin to wonder if it would, ...

Zannah

•11 years ago

42 Replies

Scan results encouraging.

Had results of scan after a fraught 2 months of rising CA125. Amazingly very little change to tumours. No treatment till at least after Christmas. So relieved....

Had results of scan after a fraught 2 months of rising CA125. Amazingly very lit...

TillyTiptoe

•11 years ago

12 Replies

what happens when they find something behind the cyst.cancer has been mentioned,not for me for my sister,very scared.

my sister has to have an m.r.i. scan,but they mentioned cancer and said what treatments she would have,They also mentioned a hystorectomy,just need some info...

my sister has to have an m.r.i. scan,but they mentioned cancer and said what tre...

belgasim

•11 years ago

9 Replies

BioMarin has no compassionate use program in place for BMN 673

My friend, Andrea Sloan, is desperately seeking a compassionate use program for BMN 673 from BioMarin- if anyone has any suggestions, connections, or...

My friend, Andrea Sloan, is desperately seeking a compassionate use program for ...

smh88

•11 years ago

27 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for September 2013

Why won't my Gynecologist let me have Radiotherapy. ... instead of Chemo ( ive decided against Chemo.. long story now) Better than nothing?

Should I consider a private transvaginal ultrasound?

Getting A Second Opinion

SHOULD I CHANGE MY ONC

Ovarian Cancer symptoms campaign progress

Greybadger

What next?

surgery date confirmed for debaulking surgery

After completing my treatment in May I am every so often getting stitch like and pinching feelings in my abdomen and wondered if any one

Post-op pain four months after.

Should we be pushing the GP to do more?

Just to keep you up to date

What's going on????

Hello all , just to say ime of to oncology tomorrow morning , I had the half way staging scan last Monday .

How long after M.R.I.scan does it take to get result.

New gene clue to ovarian cancer

Nursing in Practice London

Hi everyone ..I don't very often post but I do follow all your posts ... This is not so much a question more a statement of how my journey

Poetry book to raise funds for ovacome

Hola!! Easy fix if you are seeing the forum in Spanish

Worried!!

Huge thankyou for all your support

Timing another drain!

Best thing for scar???

I'm out of hospital - thanks for all the good wishes.

Scan results encouraging.

what happens when they find something behind the cyst.cancer has been mentioned,not for me for my sister,very scared.

BioMarin has no compassionate use program in place for BMN 673

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