i was diagnosed with Grade 3, and i have the braca gene...i have just finished my second cycle of chemo, at end of feb..(my cancer came back 6 months afta my first round of chemo)
i am so stressed out, i am due back to see my oncologist for blood tests, i am worried that it will have come back... what do u ladies think shd be the best chemo combination to ask for... what abt trials.... shd i go for a parp trial... shd i try another combination.... i am so confused i cant think... please help,......... has anyones cancer cum back so fast so many times?xx
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shen
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I am sorry you are feeling so scared. It's normal for this b####y disease though. We all get scared. You have come to the right place. I cannot answer your question though. We are all so different with different results. If I were you, I would give the helpline nurse a ring in the morning. The number is 0845 371 0554. She will be able to help you with your question about trials and what sort of questions you could ask your oncologist when you have your appointment. Do you have a referral to a counsellor via your hospital? That may help you to make sense of all you are going through. Just be sure you are among friends here. We have all been in the situation where our fears outweigh everything. You will get through. Keep in touch and let us know how it's going. Sending you a big hug
Love Wendy xx
Hi Shen,
Just wanted to say that you are in my thoughts and prayers,I can only endorse what Wendy has just suggested give the helpline a ring in the morning... Ruth might be able to put your mind at rest..goodnight and God bless love x G x
Hi Shen, i know how worried you must be and and in my thoughts. We are all here for you and understand what you are going through . I fully agree with Wendy about giving Ruth a ring . Your oncologist is also there for you to ask as many questions as you want . I find it is useful to keep a notepad and write down as many questions as you wish and take it with you . Counselling may be a good idea and help you through this time,
Dear Shen, I am also BRCA+( 2) and my first remision was also only 6 months. I then had caelyx/carbo and had 7 months free. Then carbo alone. Today I go for screening for a PARP trial. If I do not get onto the trial this time I will have gemcitabine/carbo. Just know that there are more treatments and often being BRCA+ makes us more sensative to chemo. I am often very scared but despite so much chemo, I am still living as I want, hiking, cycling, gardening etc. enjoying life with my husband and visiting our son, daughter in law and lovely baby grandson. Speaking to Ruth will help put your mind at rest and help you go forward. All the very best. x
To clarify one thing nandi says... being brca+ means your *disease* may be more sensitive to chemo (i.e. more easily killed)... you won't have any different side-effects. Try not to panic... as so many people I know in life and here on this blog have shown, life can indeed go on (and even improve!).
Try not to panic! It wastes time! Enjoy each day as it comes!
Thinking of you!
Love Margaret!
Hello Shen
All those other wise women on here have given you lots of good advice as you face this frightening situation. I know the fear can seize you up like a whole body muscular spasm and your imagination just gets totally out of control.
Distracting yourself is the only way to go and it's whatever works for you, exercise, baking a cake, some girly pampering with friends, weeding the garden, a meal out, a good book, meditation, etc, any or all of the above.
Sometimes we don't want family and friends to know just how worried we are as we want to spare them the fear as much as possible. I don't know if this is a good thing or not but counselling is a good way of dealing with this. And of course you can always air your fears, let off steam and even, believe it or not, share a chuckle on this site whenever you feel like it.
Yes it is very frightening.But I think you are right to be considering your options, scary though this is. As you have a Brca gene, it is worth asking your Dr about the Parp inhibitor trials.You can find out more before you have to decide anything.
It can seem bewildering to have choices and options, but the good thing about it is that if something doesn't work, there is something else that can be tried.
Hi Shen, Sorry to hear your news and please do as Wendy suggests and speak to some one who can try and help you get through your fears, it hasn't been easy for a lot of us but I know since finding this site and reading some of the responses the ladies give it really can make a difference, my thoughts are with you, let us know how you go. Jorja xx
hi thank u all so much for taking the time to answer me, i was in a bit of a state last night when i wrote this...i have rang the overcome tle no to speak to the nurse, but she was on the phone... i have just rang bak and she is engaged again... so i am going to call her in abt half an hour afta i take our dog out for a walk with my husban, david (third time lucky) i really really appreciate u all relying to me, i still dont know what to do, but im not sitting here like a blubbering wreck now.... thank u all... u are just a brill bunch of brave ladies... thank u shen xxxx
Just wanted to say that you are not alone as this wonderful site shows.
I was stage 3c when diagnosed last feb, had surgery followed by 5 cycles of taxol/carbo. I had the all clear in August but the cancer showed signs of reoccurring in October, chemo restarted in January.
Unfortunately I am allergic to carbo so my oncologist has said that I can no longer have it. My last ct shows that my secondaries have gone, but my pelvic mass has halved but still remains like a sleeping dog.
The fear is always there, I suppose we would not be human if we did not feel it, my counsellor is teaching me to think where am I now. If I am out with my dog, I will look up and watch the birds, I will try and feel the breeze and draw in the smells around me ( hopefully they are good),
I am not sure if this is helping but thought I would respond as you touched a cord.
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