Update: Hi wonderful warriors, I had my oncology... - My Ovacome

My Ovacome

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Update

Pixiepurple profile image
18 Replies

Hi wonderful warriors,

I had my oncology appointment today & lymph nodes enlarged in my pelvis & under my arm. So platinum chemo for me starting tomorrow. Carbo/gem.

What a disaster. I'm gutted 😢

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Pixiepurple profile image
Pixiepurple
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18 Replies
Lyndy profile image
Lyndy

Sending you a big hug Pixiepurple ❤️

It’s horrible knowing it’s back and even though we know that this is always a possibility, somehow it doesn’t stop it being a shock!

You will get through this feeling to a more positive place I am sure but take good care of yourself while you’re getting used to it all xxx

Pixiepurple profile image
Pixiepurple in reply to Lyndy

Thank you pet. Just so crap. But I got through it last time & I'll hopefully get through it again. Yes some shock, and I was on my own. Thanks again for the lovely reply xx 😘

candyapplegrey profile image
candyapplegrey

So sorry to hear this, Pixie. I am dealing with an unexpected recurrence and they want me to have major surgery then chemo again and I'm scared to go ahead. My team keep calling it secondary surgery but it's the third one. I understand a little of what you're going through. It's like starting again. Have you asked if there are alternatives? RT? Just commiserating really. Hugs xx

Pixiepurple profile image
Pixiepurple in reply to candyapplegrey

Thanks Candy. I didn't ask about alternatives suppose I was in shock a little. 3rd surgery. Blast it. Life is just so so cruel. Why why why. I didn't ask the 1st time its all I keep thinking now. Have you any other options besides surgery? Sending hugs xx 🤗

Lirene profile image
Lirene

Stay strong and positive, recurrences happen to almost to most of us. Prayers and blessings Lx

Pixiepurple profile image
Pixiepurple in reply to Lirene

Thanks Lirene. Had a cry this morning & feel better for it. Fighting fit today. Just waiting to start. Long may it continue xx

SuffolkJen profile image
SuffolkJen

Hi Pixiepurle

So sorry to read about your recurrence it really isn’t fair 😫 hoping that your next chemo regime sorts those pesky lymph nodes out for good this time!! Sending hugs xx Jen

Pixiepurple profile image
Pixiepurple in reply to SuffolkJen

Thanks Jen. Ready today to kick its butt. But I must say. All the lovely messages and kind words are what is making me stronger. Everyone is just so amazing xx

Towergirl profile image
Towergirl

Dear Pixiepurple,

it’s a horrible thought having to have surgery again. If your surgeon is positive of a good outcome, in my opinion surgery is better than relying on Chemotherapy alone.

Sending positive thoughts and hugs 🤗

Pixiepurple profile image
Pixiepurple in reply to Towergirl

Thank you Tower girl, to have the fluid drained is sooo painful not looking forward to that. But needs must I suppose. Ist session chemo done today. So playing the waiting game now to see how I am. Thanks again x

Schnauzer19 profile image
Schnauzer19

sorry to hear this Pixiepurple, you’re right, life can be cruel, but I’m sure you’ll get through it like you’ve done before. Sending hugs ❤️

Pixiepurple profile image
Pixiepurple in reply to Schnauzer19

Thanks Schnauzer19. Feeling in fighting form today. Will get through it hopefully 🙏 thanks again

delia2 profile image
delia2

That sucks. I’m in the middle of carboplatin chemo for second recurrence. The good news is that I had a scan after the third cycle and all the cancer is reduced. I hope it works as well for you.

Pixiepurple profile image
Pixiepurple in reply to delia2

Whoooop Delia that is fantastic news I am so so delighted. You have made my day ❤

AuntyOrange profile image
AuntyOrange

I've just finished a cycle of Carbo/Gemi for 3rd recurrence & scan showed 50% reduction. Started another cycle now & hoping this knocks it out completely. I'd like to say it was a shock but these days it's just a bit "oh bugger". As long as they can keep treating it, I will keep fighting it & look forward to those lovely years in between. Keep strong. 💜

Pixiepurple profile image
Pixiepurple in reply to AuntyOrange

Hi Aunty Orange,This is so true & such good news your getting such a good response. I was a bit shocked yesterday but got over it fast. N yes it does feel like " oh bugger" now. I love it. Great response. Reminds me of what a very dear friend would say if I told her. Made me smile thank you. 😊

Hi Pixiepurple, sorry to hear about your situation right now. All of us ladies on here are such warriors! Hang in there and keep positive thoughts! Sending you a hug and well wishes xx 🥰

Pixiepurple profile image
Pixiepurple in reply to Pianoplayer731021

Thank you Pianoplayer. Yes once I got over the initial shock I'm ok again. Just get on with it now and hope for the best. Thank you 😊

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