Is anyone able to share positive stories of having more than two reoccurrences? I’m worried about my friend and would love to hear about others who are still doing well despite it coming back.
Worried and looking for reassurance: Is anyone... - My Ovacome
Worried and looking for reassurance
Hi- just wanted to say I am on my fifth recurrence of OVCA since 2008 and I’m still around.
Hi Star, just want to say your friend is lucky to have you. My journey is not that old so can't help you there but have seen many ladies on here with multiple reoccurrence and they are doing well. X
Morning Star
I was originally diagnosed in 2015, several recurrences, three major surgeries and loads of chemo. I’m still here and loving every day I have although sometimes it’s hard.
Your friend is lucky to have you,
Hi. I am beginning my 3rd year. I have had a second debulking surgery after frontline ama the good news is that it means a much smaller load for cancer. I feel fine for the most part. I am in a clinical trial that I believe I may be failing out of (pending my oncologist). I am wondering about additional surgeries to remove what’s there and periodically doing it again, as needed. I wondered what you did and if you think it’s been beneficial?
Audrey
I’ve ‘only’ had 2 recurrences since 2007 but have been NED since 2013 albeit on a parp inhibitor. I was told I had 2 years in Oct 2007 .
I’m on my second recurrence but it seems like business as usual. I expect it to work and have some time off chemo. I’m enjoying life when it’s not the week post chemo!
Hi Star,
I’m not sure if this counts as I’ve never been clear of OC so when my disease starts to progress it’s not called a recurrence. It’s been 2 steps towards clear and then one back for the last 9 years. 2 recurrences isn’t that uncommon and many on this site survive more. Occasionally 1 forward and 2 back - none of us know what the future holds for us 😏
It’s lovely that your friend has you to worry about her but try to stop worrying and carry on helping her to live her best life with OC. We all need a friend like you (I’m very luck that way).
Iris🤗