Worried and looking for reassurance: Is anyone... - My Ovacome

My Ovacome

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Worried and looking for reassurance

Star_22 profile image
8 Replies

Is anyone able to share positive stories of having more than two reoccurrences? I’m worried about my friend and would love to hear about others who are still doing well despite it coming back.

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Star_22 profile image
Star_22
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8 Replies
Leniko profile image
Leniko

Hi- just wanted to say I am on my fifth recurrence of OVCA since 2008 and I’m still around.

Star_22 profile image
Star_22 in reply to Leniko

This is exactly what I need to hear. Thank you x

Pixiepurple profile image
Pixiepurple

Hi Star, just want to say your friend is lucky to have you. My journey is not that old so can't help you there but have seen many ladies on here with multiple reoccurrence and they are doing well. X

Educating-Rita profile image
Educating-Rita

Morning Star

I was originally diagnosed in 2015, several recurrences, three major surgeries and loads of chemo. I’m still here and loving every day I have although sometimes it’s hard.

Your friend is lucky to have you,

audhilly profile image
audhilly in reply to Educating-Rita

Hi. I am beginning my 3rd year. I have had a second debulking surgery after frontline ama the good news is that it means a much smaller load for cancer. I feel fine for the most part. I am in a clinical trial that I believe I may be failing out of (pending my oncologist). I am wondering about additional surgeries to remove what’s there and periodically doing it again, as needed. I wondered what you did and if you think it’s been beneficial?

Audrey

Katmal-UK profile image
Katmal-UK

I’ve ‘only’ had 2 recurrences since 2007 but have been NED since 2013 albeit on a parp inhibitor. I was told I had 2 years in Oct 2007 .

delia2 profile image
delia2

I’m on my second recurrence but it seems like business as usual. I expect it to work and have some time off chemo. I’m enjoying life when it’s not the week post chemo!

Irisisme profile image
Irisisme

Hi Star,

I’m not sure if this counts as I’ve never been clear of OC so when my disease starts to progress it’s not called a recurrence. It’s been 2 steps towards clear and then one back for the last 9 years. 2 recurrences isn’t that uncommon and many on this site survive more. Occasionally 1 forward and 2 back - none of us know what the future holds for us 😏

It’s lovely that your friend has you to worry about her but try to stop worrying and carry on helping her to live her best life with OC. We all need a friend like you (I’m very luck that way).

Iris🤗

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