rubraca side effects

[SKpaints1]

ive been taking rubraca for six months now and had my dose recuced because of gastric side effects and troubke swallowing. I have recently been having episodes of extreme fatigue. Anyone else had similar symptoms

[Beaugirl]

HiI've been on Rubraca for eight months now. I've had two dose reductions for low Hb (50) and have had lots of blood transfusions. Finally it's settled but now CA125 is rising. I also have fatigue first thing in the morning which isn't good at work 😊. Been told it takes 6 months for the body to get used to it so hope for you it settles down xxx

[SKpaints1 in reply to Beaugirl]

thank you.. my ca125 is also rising, albeit slowly, fingers crossed i dont have a big jump, blood tests are next week im prayi g it hasnot risen too much!

[Beaugirl in reply to SKpaints1]

Best of luck xx

[JustKBO]

Hi there. I’ve been on Rucaparib for 2 years. My dose had to be reduced too. I also get ridiculously tired at times. For the first couple of months I felt a bit nauseous so I moved to taking them after a drink and piece of toast in the morning and before bedtime. I have intermittent problems with bowel habits but I’m not sure how much is Rucaparib and how much adhesions from surgery. All in all it’s been a Godsend for me. Good luck.

[SKpaints1 in reply to JustKBO]

thank you im hoping things will settle, ive been on rubraca for nearly six months fingers crossed will pick up soon

[Dales-Rambler]

Hello

Similar to the previous 2 replies, I too suffer with fatigue, but usually only first thing in the morning. It improves as the day progresses. I'm on a reduced dose of 300mg Rubraca morning and night. My other main problem is low Hb and reduced kidney function, neither of which help with energy levels! But I adjust, and try and save my energy for things that matter. When it's available online, the Ovacome PARP Life talk which took place on 28th February is a useful watch.

Best wishes

Sally

[SKpaints1 in reply to Dales-Rambler]

thank you for replying, will look out for the lifeline talk.. fatigue is so difficult to deal with