Wondering if Niraparib is causing me to feel slightly unsteady when out walking. This has been happening over the past fortnight. Been on Niraparib for 15 months.
I dont think its vertigo as its only slight and lasts all day whilst vertigo 2 years ago was bad enough in the mornings to have to use a stick !
Anyone experienced this?
I was on it for 11 months and balance was a major problem held hubbys arm whem out and about x
I have been on Niraparib since Sept, 2021 and this week (Nov 23rd) started experiencing the same thing. I don't have virtigo, just light headed and also noticed when I did my balance exercises that I was much worse. I was afraid to go to my Yoge class today in case I toppled over. Ithink there is a website for Niraparib. I'm going to check and see if it says anything about being light headed.
Hello Rosebine
Is it worth getting your bloods checked? I have been on Niraparib since July this year and I started feeling unsteady and dizzy and then eventually quite breathless. Turns are my platelets and HB were very low and I needed a blood transfusion.
Hope it resolves soon for you.
Gillian
I get my bloods checked every month before I get next months prescription, nothing has been flagged up
Morning, I've been on Niraparib nearly three weeks and my only side effect has been heartburn. They do say any side effects should have calmed down after a couple of months so maybe not the tablets in your case. On a different note and not cancer related my mum had a similar problem to yours a few years ago and it was a problem with her ears. x
I find my balance is worse than it was but it may be my age rather than Niraparib although I feel so tired when I get neutropenic that this might be making things worse. When I had similar issues a few years ago it turned out to be a viral inner ear infection so it is worth checking out with your doctor.
Hello, yes I find that every chemo and Parp inhibitor has had that effect on me. After chemo i like to start walking but the last time I did a lot of falling into bushes too!
It has improved on the Parp so keep going, you may find it clears xx
I did wonder about the ears but if I do have an infection there are no other symptoms!
Alice77 unfortunately by the time I get an appointment with my doctor it probably will have resolved!
Dear Rosebine2,
Thank you for sharing your post. I can see that many of our forum members have replied to you and I hope this brings you some helpful advice and support.
I am sorry to hear you have been experiencing feeling unsteady. I would encourage you to speak to your medical team about the side effects you have been experiencing as they will be able to provide the specialist advice and support for you, knowing your individual circumstances. It is always advisable to let your team know of any side effects as soon as possible. I really hope your unsteadiness eases.
A side effect of niraparib can be to experience dizziness. If you would find it helpful, I have shared a link to our Targeted Therapies booklet below if you wish to read up some more information on niraparib.
ovacome.org.uk/targeted-the...
If there is anything else we can support you with please don't hesitate to get in touch, we are here to support you. You can call us on 0800 008 7054 or send us an email to support@ovacome.org.uk, we are here Monday to Friday, 10am to 5pm.
Best wishes,
Sorcha
Ovacome Support
Thanks for the info. I have been wondering (after having a google trawl! if its something to do with the dental treatment I had a couple of weeks ago. Back molar extracted and quite a long time in the chair generally , fillings, with my mouth open !Apparently it can sometimes cause ear problems.
Dear Rosebine2,
Thank you for your reply. I hope the information is helpful.
I hope that your medical team are able to identify the cause of your unsteadiness so they can provide you with some treatment for these side effects, so they ease as soon as possible for you. It may be useful to also inform your team the details of your dental query, so they are up to date with all your information.
If there is anything else we can support you with please do get in touch.
Best wishes,
Sorcha
Ovacome Support
I managed to get a GP appointment! No diagnosis but ordered blood tests for anaemia etc. Im sure that would have been picked up on my monthy blood tests though? Ive gone partially deaf in one ear over the past few days but doc couldnt see anything wrong with eardrum etc. Im wondering if it is the Niraparib long term effects.
Hi Rosebine2
It's good that you were able to see your GP. Anaemia is a common side effect with niraparib but the blood test will confirm if this is what is happening for you. I've checked the long term side effects for niraparib and can't see hearing loss listed. Do let your doctor know if this persists even though they've already looked at your ear. They can investigate further or consider a referral to audiology if it would be helpful.
I hope this is resolved for you soon.
Best wishes
Anna
Ovacome Support
New diagnosis - feeling frightened
Feeling exhausted and emotional
Feeling quite hopeless again
Trying not to feel depressed
Rubraca feeling not too good
