ca 125 up

[Inguc_is]

after 2 months post last chemo (2nd recurrance) ca 125 is up from 40 to 91 i am so upset, CT scan will be in december… what next who knows??? :(((

[27-359]

I know this is depressing, but if it is a recurrance, there will be other treatments to try. I am currently on weekly Taxel for third line treatment, after a par P failed to be of benefit.Jenmy

[Inguc_is in reply to 27-359]

yes.. she was not ned after last chemo but it was more stabilisation… i hope she will have longer holiday… now it is only 2 month

[organicinna in reply to 27-359]

Hi Jenny. I just been offerd weekly taxol as third line treatment. How is that for you now? I was uspet about loosing hair again but they said try cold cap. I also been offered Trail together with weekly Taxol which i think I will do because why not )))

[27-359 in reply to organicinna]

I have no issues with the Taxol, although the dose was lowered after I started suffering from neuropathy. The only thing that gets me down is the need to be at the hospital twice a week including the blood test. I wasn't offered the trial, but would probably have gone for it if offered.Jenny

[organicinna in reply to 27-359]

Thank you Jenny. Yes perspective of twice a week bugging me too )) Sorry Jenny how long is each infusion last 1hr or 3hr ? Asking this because if I ask for cold cap it will b longer

[27-359 in reply to organicinna]

It's about two hours. Mine is thirty minutes longer, as I have antihistamines too, due to a terrible reaction during my fourth infusion. The problem at my hospital, is that they are always running at least an hour late, so I am thoroughly fed up before we start!Jenny

[organicinna in reply to 27-359]

OK its good to know. My hospital is always late too. Are we in same hospital ? )))

[27-359 in reply to organicinna]

I think this holds across all the hospitals these days. They are so short of staff. I am in Maidstone in Kent, where the staff are lovely. I just don't want to be there having chemo!!Jenny

[organicinna]

HI Ingus. The same with me here (( I had 2 month break after last second line chemo finished. And just been told that cancer is grown a little but CA125 jumped from 46 in September to 240 ! (( And I actually was unwell and felt that something going on inside me (( They now offered me a Trial in paralell with weekly Taxol for 3 weekly - 1 week break, and they will monitor me every week how is that helping. I suppose I will start in 3 weeks time something like that . I was OK all this time mentally but now suddenly panic sets in and am desperate to start even tomorrow but have to wait . They offered to link me to Macmillan community services mean hospice helps with my aches and whatever and cancelling with RM but that makes me feel one step closer to the End.....Aaah oooh dear god help us )))

[Inguc_is in reply to organicinna]

oh gosh..:((( my mom feels quite good no pain at all… and no bad feelings regarding cancer… i hope they will find something for her, as she only try carbo and taxol and nothing else

[Trickysite in reply to organicinna]

Your docs are offering you a plan, so take that as positive. And also take all the help you can get emotionally as well as physically. Hospices are wonderful places and have lots to offer outpatients. I was referred to my local one after my op and found them very helpful. In the end, they discharged me as being too well. May the same happen to you but in the meantime take what help is offeredyou. Emma x

[organicinna in reply to Trickysite]

Oooo ...Thank you Emma darling .....I know, i know they good. But I have a mad brain not accepting the fact that am going to die and H O S P I C E word means I have to accept it first right? Am getting there, getting there )) thank you darling x

[27-359 in reply to organicinna]

I have just read this and would definitely advise hospice input. I go to a coffee morning every week, I now have a blue badge arranged for me, and I can see the community nurse about any little worries or concerns. She emails my GP if she thinks I need any medication etc. It is often difficult to contact other health professionals so I find her a godsend.Jenny

[organicinna in reply to 27-359]

Aaaaaa ! Still scared of Hospice World. I know, I know , lots of people saying how WONDERFUL is there but am still resisting the thought am going to die there, therefore don't fancy getting accustomed to them, stretching my visit to far far far future )) Saying that I also believe now that it can change any day ....But yr advice is priceless thanx dear friend xx

[Trickysite]

As one of the teal sisters wrote to me recently, "Nobody gets out of this life alive." Hospice does not mean you are going to die. It means you are having the best possible life. Put your toe in the hospice water just once, and you will be surprised how your mind changes.Emma x