I have recently stopped taking Rucaparib as it was not working, but before starting third line chemo, opted to delay for a couple of months, as I was feeling well.
In the last month or so, I seem to have a permanent back ache, which even hurts when I am in bed. Had anyone else experienced this as a result of their ovarian cancer, or should I be looking for issues with my back?
I should add that I have damaged my back in the past, and needed to see an osteopath, but once treated I have been fine. I am just wondering if I should perhaps start the chemo sooner rather than later.
Jenny
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Thank you very much for your post. I am sorry to read that you have been experiencing backache. I’m sure that members of the forum community will be along soon to share their experiences, but I just wanted to comment as I was wondering if you have been able to discuss this with your clinical team? They will be able to look into what may be causing this pain and support you to manage it.
I do hope that the pain eases for you soon. Please don’t hesitate to get in touch with the support services team if we can help with any information or if you would like to talk anything through. Our support line is available Monday – Friday 10am - 5pm and you can contact us by calling 0800 008 7054, by emailing support@ovacome.org.uk or by sending us an instant message through the pink ‘Can we help?’ box on our website ovacome.org.uk.
Hi,I never suffered with my back,but certainly the tops of my thighs/hips were painful,and this has disappeared since coming off of Rucaparib . I hope that you will feel better soon.x
Hi Jenny. Sorry you’re having to have chemo again. I complained of mid backache at the beginning of my first recurrence, it also woke me up in the night, I had it for a few months, I was so worried it had spread to my bones. My oncologist referred me for a bone scan and I had wear and tear in my spine, when I found out this I seemed to stop worrying and it seemed to stop aching so much, shows how much stress makes us worse. Good luck with your treatment xx
Yes I know. I think every little ache etc is cancer in a new form. I actually had a DEXA scan a couple of weeks ago, as one of the treatments my onc suggested would deplete the calcium in my bones, so it will be interesting when we get the results of that.
Weirdly, I stumbled on a discussion in another forum yesterday.
I'll copy and paste the Q&A below...
Q. Hi Everyone-
Is back pain a thing with this?
The oncologist didn’t think it was related to the lymph nodes- not sure if it’s covid, cancer, chemo or hysterectomy 😵💫🥺😫… any tips?
A. Hiya #####
How weird how we always suffer with the same things haha.
I questioned my oncologist about this and he said my lower back pain was from the hysterectomy.
He explained it to me being that women pre-hysterectory have a curved spine, however when you have a hysterectomy your spine & ribs fall & your hips widen making your spine straighter, this causes the back pain as your body is adjusting to a different position.
I thought it was actually really interesting and never knew this before!
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