Feeling very low today ,had my sixth cycle of Carboplatin and caeleyx Tuesday ,side effects kicked in big time , really bad night . I'm on fourth line in three years ,parp didn't work , not looking good,I'm thinking I'm running out of time ,I'm not ready to go yet ,but don't know how much longer I can cope with the chemo ,,I'm thinking I'll probably be offered one more option then told that's it , never heard of anyone on fifth line .
Cheryl
Dear Cheryl, I’m so sorry that you are suffering from chemo side effects. I hope your mouth sores have not worsened. I postponed my fourth Carbo Caelyx treatment for thirty days because the side effects were hard to endure. Sometimes it’s just so very difficult to deal with. I just searched the OVACOME posts for ladies who have had fifth line chemo. I found about seven ladies who did fifth line. So it is possible. Please stay on the planet. Sending good thoughts, positive energy, and prayers your way.
Sashay
Thank you Sashay , really appreciate your reply , I think I'm hanging by a thread today .My mouth is a bit sore but no ulcers yet , another couple of days and they'll be back like last time . I asked for a reduced dose this time but oncologist didn't do it so I had full dose again ,so angry with him , I have no energy or strength today and no concentration so unable to do anything ,so I guess I'm wallowing in self pity ,thank you for your kindness .Cheryl x
As Cheryl sorry to read you are feeling down this morning & to be honest I don't blame you. I am only on second line & have those down days too but you are a true fighter & I always admire that spirit you have to pick yourself up & carry on. Are you finished on this treatment now, if you are don't give up the fight just yet.I am sure you are going to have a Ct scan soon to see if the chemo did its job so you might be surprised to find that things are not so bleak & even though I am not hugely religious I will say a prayer & light a candle for you that you will get the results you deserve. Take it easy on yourself today ,put on your favourite music & turn it up as loud as you can bare & sing along (hope your a better singer than me )😂 & just forget for a little while.Hopefully it will make you feel a bit better & you will realise that this world is not ready to do without you in it . Keep fighting Cheryl you can do this again. Lots of hugs from across the water Xx
Thank you for such a nice reply , I think I'm so drained and unwell from the chemo that I can't get on top of it today ,but I'm trying ,just keep thinking about the future or rather the lack of it ,I will try and pick myself up ,on with the music .Cheryl x
I finished second lot of chemo at end of december, like you parp didnt work and its taken until now to feel more like me. Towards the end of last treatment I was so down and I think Im more a cup half full.person but it pulls you down Cheryl. Second time did carbo only. Had my PET scan mid Feb my aorta nodes shrunk by 50% but one node in chest increased by 1mm onc said if Id had any other scan it wouldnt have shown up. So no treatment at mo another scan about May time so suppose will see what they are doing. I almost want to bury my head in the sand but I did ask can they treat me again, she said yes but to go home and enjoy my life. Was thinking of finding more info on cyberknife from Ovacome before next visit. Do think Cheryl that when this lot of treatment is finished and your body and mind has a good rest you wont feel so low. Know last treatment I said to my husband no more, but life is precious. Have you asked if there is more they can try. I send my positive thoughts and a hug to you as your post touched me and knew how you felt. Hang on in there.
Thank you so much , you have helped me today ,more than you'll ever know ,I'm feeling a bit stronger now ,my oncologist did mention weekly taxol ,I think I'm feeling so bad physically as well today I feel I can't face more ,but deep down I know I will , I love life ,my husband and family to much , I think you're right in saying when I've got over this and had a great I will feel able to carry on . Thank you so much .Cheryl x
Hi Cheryl. I’m so sorry you are feeling so down, both physically and mentally. You deserve a bit of wallowing. You’ve been through rough times. But in a few days your body will begin to recover and hopefully your spirits will too. I guess your onc really wants to save you! Mine lowered the dose any time I complained. I’m sure there are more treatments and possibly trials left for you.
Thank you for your reply Delia,I really appreciate it ,You are right ,in a few days I should start to feel better and will get myself together again . I think today is the worst I've ever felt ,so was hanging by a thread , I've had some lovely replys so getting myself together a bit more now .Cheryl x
Hello Cheryl, I am so sorry you’ve been having a really tough day. Just know that there are ladies on here who understand exactly how you are feeling today and care very much for you. We all have feelings of hopelessness and despair but I’m am hoping and praying that little by little you start to feel physically and emotionally stronger and can enjoy some of the small pleasures that life has to offer.
Be kind to yourself. Much love and a gentle hug.
Jan.x
Thank you Jan , you are very kind ,I appreciate your reply ,I've hit that all time low like so many of us do at times ,when Ive got over this last chemo I'm sure I'll pick up again ,just a 'hanging by a thread day ' I've had some lovely inspiring replys from you lovely ladies that has helped me a lot today .Cheryl x
Oh Cheryl, I am so sorry you are feeling down, I think your chemo combo is quite a harsh one and as we all know the side effects are not trivial at all, despite what oncologists like to tell us! Please feel free to wallow as much as you like over the next few days. I think I was lucky in some ways to get chemo’d in hospital -there isn’t anything to do…except sleep and I did a lot of that. Once I was home and having it I kept thinking I ought to get up and do something! Sending you a gentle hug and a hope that you will be through the worst soon xx
Thank you Lyndy for your kind words ,I'm certainly having a bad day ,but I've had such kindness and understanding I feel able to get through another day tomorrow . I've got to go for a CT scan tomorrow ,and I haven't the energy to get off the setee but my husband said we'll get a wheelchair at the hospital if I need it tomorrow ,he always has a plan.Cheryl x
Hi. As I said in my last post, I have been following you for a while, as I feel that our progression and treatment has been following the same lines. How many more Carbo/Caelyx have you got to go? Hopefully they will give you a bit of respite, before the next battle.
I too am not ready to throw in the towel, but understand that there are only so many treatments on offer. It's not fair, and I rant and rage with you.
Jenny
We'll rant and rage at the unfairness of this together . I've had my sixth and last one ,it's been much harder than the rest , though each cycle got worse. I will have a break after this , I think it will take me a while to get over this ,it's been a harsh regime .Cheryl x
Is the sixth the last treatment of this cycle? If so, it's not surprising you feel rubbish, as the accumulated toxicity is now at its maximum. Meanwhile, the chemo is doing its good stuff, and the side effects will gradually ease off. There are a number of ladies on my other groups who've done fifth line, and others who have gone into clinical trials after fourth line treatment, so all is not lost. That said, it is always your decision, and if you feel you've had enough there's no shame in choosing to stop treatment. Sending hugs!
It's reassuring to know there are ladies on fifth line ,it is my sixth cycle ,it's the worst I've ever been since I started treatment in 2019 , I am a bit more rational today so know it will pass and I'll feel well enough to do nice things again . I m going to ask about trials ,thank you for your kind words .Cheryl x
So sorry to hear your so low at the moment please hang in there every one on this site feels your despondency too so your not alone. We all fear news like your and wonder when it will be our turn. I'm going for my scan today, my first after my last avistatin finishes. So hoping I receive good news after but you can never tell. I'm feeling OK at the moment but that doesn't mean anything from what I've read on this site. I'm still on an early journey compared to you but I understand your despondency. Tomorrow is another day when you're so down the only way is back up, so chin up, big 🤗 sending you love ♥ Xxxx
Thank you for your kind words , wishing you well with your scan and hoping you get a really good result . I think I will feel better emotionally when I get over these awful side effects .Cheryl x
Your courage is inspiring I was asked to try carboplatin and Caeleyx but did not like the idea of Caeleyx due to side effects now just on carboplatin but missed my last two treatments due to low white blood cells. Was really disappointed as want it over and done with. I was diagnosed with stage 1V ovarian cancer in Oct 2020 and it’s now in two of my lymph nodes near my right kidney. I am hoping bloods ok this week so I can get ahead with chemo. I have been thinking of you a lot this week and feel you will get a good outcome let me know fendweller. Xx
I hope your bloods are up and running so you can continue the fight and get a good result , I had Carboplatin on its own once and got a good result. I don't feel very inspiring at the moment ☹️ but thank you for your kind words .Cheryl x
Just to let you know bloods up. Chemo Friday. Hope things are improving for you.
That's good news , hope your chemo goes well . I'm a bit brighter now thanks ,the sun today helped .xCheryl
Hi Cheryl I'm feeling really sorry for you. Your on a really nasty combo, I only had 3 of those and was in a very bad place. You can have many lines of chemo you just need a break in between so you can feel better. I hope your scan gives you the results you need and everything goes well. Spring is just around the corner, hope you feel better tomorrow we're all routing for you. Sue xx 😘
Thank you Sue, I made it to my scan this morning , I felt too weak and wobbly to walk along the long corridors so my husband got me a wheelchair , I hated it but got the scan done , thank you for your kind words , it certainly is a nasty combo , I wouldn't want it again .Cheryl x
You won't get it again, there are other options. Hope you soon feel better. Sue xx
Thank you Sue xx
I can completely understand you being so despondent and really feel for you . Its such a tough course of treatment and you must be utterly exhausted. I really hope that you are soon coming out of the other side and feeling stronger.
Sending you a hug
Liz x
Thank you Liz,it's been very tough, I am exhausted by it ,I'm thinking when I get over this my mood might lift when I have more energy to do nice things , I've only been out of the house four times in the last two months because the side effects have been so bad .Cheryl x
Hi. I was diagnosed August 2015. 1st line 6xcarbo taxol then surgery. 2nd line 3 carbo with 17 avastin. 3rd line carbo gemzar. 4th line 6xcaelyx. 5th line weekly taxol. 6th line carbo. Then 25 sessions radiation. Recuperating. End of april CT and pet scans probably more carbo then a PARP. It ain't over til it's over. Hugs from paris
What an inspiration you are , you've given me hope for more time . Wishing you well with your scans , I hope you are recovering well.Hugs from Lincolnshire England.x
Thanks. One day at a time. Enjoy the springtime
You too .xx
Cheryl, just sending warm thoughts for you today. So sorry that you have had such a tough journey with this. Hope things go smooth for you in whatever the dr.’s decide to help you with. Hugs and best wishes from across the pond. Donna
Thank you Donna ,your kind words mean a lot to me .Cheryl x
Hii dear how r u today?? I hope u r feeling better now
Hi ,I'm feeling a bit better today thank you ,the side effects are easing little and I've been able to potter about , a bit of sun has helped .Cheryl x
Watch and wait vs treatment 
Opinions on specialist hospital for second opinion 
ovarian debulking surgery advice please!!
On a break from caelyx,125 going up need advice.
