New member

[A1r1t]

Hi everyone, I've only just plucked up the courage to post anything. I've read quite a lot of posts and been encouraged and amazed by the brave ladies I've read about on this site. It really is good to know that there is some one out there who knows what it is like to go through the different stages and emotions. Hope everyone out there is doing fine, love to you all xxxx.

[candyapplegrey]

welcome to the forum! there's so much experience and knowledge here, admittedly about things we never really wanted to experience or know. i've found it so helpful. xx

[A1r1t in reply to candyapplegrey]

I suppose we have to do the best we can with the hand that we've been dealt but knowledge is power so I suppose we can still retain a bit of power over our bodies. Sorry don't mean to sound too deep.

[Heart12345]

Hi A1r1t I’m pleased you posted, the first post is always the most difficult. I have found these warriors very supportive when I have needed them and as you say it is comforting to chat with people going through a similar journey as ourselves. I was diagnosed at the beginning of 2021 had the normal chemo, operation then chemo and now on Orlaparib as maintenance. 👍🤗

[A1r1t in reply to Heart12345]

Hope everything is going well with the maintenance drug. I'm on bevacizumab and everything seems fine, I'm nearing the end of this treatment and waiting for my scan so fingers crossed if everything OK they will just monitor me.

[Heart12345 in reply to A1r1t]

So far the Orlaparib is doing a great job but still nervous every time I get my ca125 results. Wishing you a good scan result too let us know how you get on 🤗

[A1r1t in reply to Heart12345]

Thank you, glad your treatment is going well for you and long may it do so! 💖. I will post my scan results as soon as I've had my scan and spoke to my lovely oncologist. Best wishes.

[Saintgermain]

This is a great forum I live in the US this is the best. The emotions are a challenge at times much easier talking to Gals that are on the same page no I’m not going crazy ha!

[A1r1t in reply to Saintgermain]

I felt like I was living in a dream or should I say nightmare at first. The word numb comes to mind as well. But once I'd got used to the situation and stopped feeling sorry for myself I just took things one day at a time. I felt sorry for my family having to deal with it too because it does effect them profoundly. If you think too far ahead, I think that can send you a bit crazy 🤪.

[Saintgermain in reply to A1r1t]

It’s all very surreal I had debulking April 2021 followed by 6 Taxol/Carbo treatments finished Oct 2021 was on autopilot at times alitte bonkers from the steroids I totally get the numbness it was harder for me when I finished Oncologist said CA125 levels good CT Scan clear your seeing your Gyno Onc every 3 months so see you in 6 months boom I was on my own I felt like a fish out of water it’s hard on your Family my Husband has been my rock thank God married later in life no children. It’s a hard adjustment some Friends said that’s all behind you now you can move on I try not to over read articles on the Web I agree you could drive yourself batty

[A1r1t in reply to Saintgermain]

Hi, hope you're feeling OK at the moment. I used to read things on the Web but having read the advice ladies on here were offering I realised its not always good for you, for your mind set. I understand why family and friends want you to move on and I get it that you feel like a fish out of water, I've nearly reached the stage were I might feel like that soon but at the end of the day, no one knows what's around the corner for them. Think I'm trying to say, just live your life and enjoy it. Sending you love and best wishes.

[Saintgermain in reply to A1r1t]

HiThank you i’m doing good I have to say not reading a lot of stuff as helped me tremendously keep with the upbeat spiritual books, TV and exercise even if we weren’t going thru this journey life is unpredictable love and best to you

[thejoannabell in reply to A1r1t]

I was numb and out of it all throughout chemo and surgery, from the fatigue and the drugs and the fact that it does all seem so surreal. Also the chemo nurses and doctors are so nice to you, and friends and family rally during this time. Like Saintgermain, I struggled more emotionally once I got the "all clear" and was expected to go back to normal, but there was no normal to go back to. I hope you are doing as well as possible, but always know you can vent negative feelings or celebrate good news with this group.

[A1r1t in reply to thejoannabell]

Thank you, I hope you are doing well. I'm trying to embrace the new normal now for myself because I realised if I didn't it just makes you feel miserable. And no one wants to be around miserable people all the time. I have my off days but I give myself a good talking to in my head and shake it off. I'm lucky I have positive people around me and a wonderful husband. Not everyone has that network so I count myself lucky. Best wishes to you.

[Saintgermain in reply to thejoannabell]

Joannabell,

Like yourself the drugs made me a little out of it especially the steroid I agree finding the new normal because it is all new can be a challenge I do pretty well at times I get waves of fatigue remind myself 5 months out and I try not to worry about every ache in time they say that gets better I’m so glad I found this group

[SopSinger]

Welcome! No such thing as a silly question, so if you have questions, ask away!

[A1r1t in reply to SopSinger]

Thank you, I will ask away when I need to, even silly 😋 ones.

[Morini]

Thank you, it's hard dealing with this and it's good to know you are there too xx

[A1r1t in reply to Morini]

It is hard at times but it's comforting to know that there are a lot of brave ladies who are going through similar situations and a lot have been living with this for a long time. Best wishes.

[Realistic]

Hi welcome to the forum, so much to learn and so many positive responses thankfully. And makes you realise there is light at the end of the tunnel. Please don't go fact finding on the Internet it frightens you, and nearly always sound very dramatic. You really can get some very useful information..And remember if your not happy get a second opinion it really could save your life. So stay positive keep well and try to get on with your life before the dreaded cancer started. That's what most of us on here do. Sending love & big hugs your not alone.SheilaFxxx

[A1r1t in reply to Realistic]

Thank you, that's very good advice, that's what I like about this site, so many positive posts. Best wishes to you.

[Tulips66]

Hi, like all the other ladies who joined this forum I am sure you never thought you would be faced with getting OC, but you are right, you & the rest of us just have to gather strength from deep down to get through what is hurled at us along the way for ourselves & our families. None of it is plain sailing but we all advise & encourage each other & hope that we can get through this dreadful journey together. The Ovacome team are also very good if you need to know or understand something that maybe we can't help you with. Best of luck with your scan results 🤞all will be good X

[A1r1t in reply to Tulips66]

Thank you, I'm not worrying just yet because I feel OK. I'm sure my scan will be fine and I will cross that bridge when I come to it. Best wishes to you.