Is there any platinum resistant?

[Inguc_is]

What to do if you are platinum resistant? Is this the end? :(((

[nettiebobs]

My sister has just had a recurrence after 4 months. She has just started chemotherapy again. Is this yourself you are asking for or like me someone close. I can’t comment professionally and will follow your post to see the replies. I am gathering information all the time, and from what I read, no, it is not the end. You always have to believe.

[Inguc_is in reply to nettiebobs]

Do u know which chemo she get?

[nettiebobs in reply to Inguc_is]

I don’t I’m sorry. She is in Christie’s at the moment. She is having one hour chemotherapy weekly for six weeks.

[Inguc_is in reply to nettiebobs]

That is her first recurrence? She has ovarian cancer?

[nettiebobs in reply to Inguc_is]

Yes, first recurrence and stage 3c ovarian cancer.

[OvacomeSupport Partner My Ovacome Team]

Dear Inguc_is,

I just wanted to message to let you know that we are here if we can help with any information or if you would like to talk things through. You can contact us by calling 0800 008 7054 or 07503 682 311, by emailing [e-mail] or by sending us an instant message through our website ovacome.org.uk. We would also be very happy to arrange a video call. Here is a link to some more information about this here: ovacome.org.uk/forms/1-to-1.... Our support services are available Monday – Friday 10am – 5pm UK time.

Please don’t hesitate to get in touch if we can help with anything.

Best wishes,

Cathryn

Ovacome Support Services

[January-2016-UK]

All platinum resistant means is that you have recurred earlier than six months of treatment. Sometimes this happens early on in the treatment cycles and sometimes after years. But you Consequently you are unlikely to be given a platinum drug again as it is unlikely to have any benefit. I recurred within three months of my first line treatment, six years ago but I have had many different chemotherapies since.

Do check with your oncologist what treatment is proposed and also speak to the Ovacome help line as suggested.

Best wishes

[Inguc_is in reply to January-2016-UK]

didnt you have any platinum chemo after first reccurance? you are 6 years platinum resistant? how long was your remissions due to this time? i am very stressed about this all

[January-2016-UK in reply to Inguc_is]

I've had no more platinum since initial recurrence. six hears ago, There are many other chemotherapies available, try not to panic.

[Inguc_is in reply to January-2016-UK]

Did u get remission with this chemo? How long?

[Ruebacelle]

Nope. Taxol very effective and platinum based chemo can be tried after a out a year or more.

[Inguc_is in reply to Ruebacelle]

I hope that they will offer it, taxol must be done each week?

[Ruebacelle in reply to Inguc_is]

Usual protocol is once a wk for 3 wks 4th wk off. The protocol also includes 2 days after taxol of booster shots to keep white count up. Hugs from paris

[Inguc_is in reply to Ruebacelle]

Paris is a beautiful city love it and thank You for information

[Tj511]

Hi Inguc I’ve become platinum resistant and have been put on caelyx , hope this puts your mind a bit at rest , there are alternatives xx

[Inguc_is in reply to Tj511]

Did it work?

[SUE7777]

Taxol is not Platinum Based and if given weekly it would be a lower dose which is much easier to tolerate. I'm on weekly Taxol at the moment.

[Inguc_is in reply to SUE7777]

how it works?

[SUE7777]

PS It's working

[Inguc_is in reply to SUE7777]

that a great news

[SUE7777]

Taxol is Chemo so it works the same as other chemo's but is not Platinum so can be used for people who are Platinum Resistant.

[Inguc_is in reply to SUE7777]

i hope they will offer it to mom if CT will show recurrance!

[SUE7777 in reply to Inguc_is]

I'm sure they will, but you could also ask for it and also you can get a 2nd opinion.

[Neona]

Please don’t think that this is the end. I have been platinum resistant in fact platinum refactory right from the outset. I have clear cell. There are other chemo’s and I was offered caelyx br I chose a trial instead. I wet to London for a consultation which opened up new treatments that were not possible locally.

[nettiebobs in reply to Neona]

Could I possibly ask who you saw in London? Was it professor Fotopoulou?

My sister has had a recurrence and I have contacted prof for a consultation. I know the care she is under are brilliant but I have to scour all the avenues. She has been given a time scale if this platinum resistant line of treatment is not effective. And I’m aware that all recurrence’s are in different places etc but I just can’t give up.

[Neona in reply to nettiebobs]

I saw Dr Rebecca Kristeleit and paid for my appointment at the London Clinic- to get a quick appointment. She sent me to the UCLH Clinical Research Facility where I eventually got on a trial.

[nettiebobs in reply to Neona]

Thank you. That’s another one on my list.

[Inguc_is in reply to Neona]

unfortunatly i am no n UK :(((

[thejoannabell]

I'm also platinum resistant. Had Gemzar and Avastin for a recurrence, which was effective. Coming up on two years since diagnosis and I'm doing well!

[Inguc_is in reply to thejoannabell]

Did u go to remission with it?

[thejoannabell in reply to Inguc_is]

Yes, the PET scan showed NED after I completed treatment.

[Inguc_is in reply to thejoannabell]

That great how long it is already? and where was recurrance? my momd is in lymphs

[thejoannabell in reply to Inguc_is]

My recurrence was in two inguinal lymph nodes.

[Inguc_is in reply to thejoannabell]

Same there And some other lymph :/