I have metastatic endometrial cancer. Tried carbo/taxol and Keytruda, just had surgery again to remove tumor - what’s next? Anyone out there

[Miriamn57]

Just wondering who else is dealing with this.

[OvacomeSupport Partner My Ovacome Team]

Hi Miriamn57

Thank you for your post and for sharing this experience. I can see from your profile and post above that you have been diagnosed with uterine/endometrial/womb cancer. I just wanted to let you know that the MyOvacome forum has a focus on ovarian cancer which may be why you've not received any replies yet, but I wonder if anyone on the forums below may be going through similar experiences?

- healthunlocked.com/ask-eve

- healthunlocked.com/share-ut...

In addition, our friends at the Eve Appeal offer a specialist gynaecological health information service that may be of interest to you. For more details, please visit this page on their website: eveappeal.org.uk/supporting...

I note that you’re based in the U.S and wonder if the Foundation for Women’s Cancer may be able to provide the information you are seeking?

foundationforwomenscancer.org/

I hope you are able to connect with someone going through similar experiences soon.

Best wishes

Annie

Ovacome support

[Miriamn57 in reply to OvacomeSupport]

Thankyou for the info and response

[organicinna]

I don't have same experience but I wish you all the best and to stay positive. One thing at the time. They removed that tumour that is on thing out of the way. And its good it was operable . Sending you hugs and wishesxxx

[PPSCENE]

Hello Miriam. Hope you well xx my mums on a trial drug - Atezolizumab. Is that an option? Lots of love and good wishes x

[Miriamn57 in reply to PPSCENE]

Hi!!! I will check

[UltimaForsan]

Hello,

I was diagnosed with Stage 3 endometrial cancer (Grade 1). A second opinion found symchronous primary endometrial and ovarian cancers. But my gyn onc favors her original diagnosis and has treated it as such.

I had surgery first and unfortunately a tumor on the lower pelvic wall was left behind. I had chemo (carbo/taxol), but the tumor progressed during chemo. I then had six infusions of Keytruda, which shrunk the tumor by two-thirds. It was then small enough for radiation, so I had 28 sessions of external beam whole-pelvic radiation. Just had the post-radiation CT and it showed no sign of cancer, thanks be to God. Dr suggested another month “off” to recover and then I’ll start taking Megace (40 mg twice a day) as a hormone maintenance drug for at least five years. Studies have shown Megace to be effective in treating advanced or recurrent endometrial cancer. Dr also mentioned Avastin infusions as a maintenance therapy, but I prefer to try the Megace.

I hope you find a good follow-up treatment and are able to have a peaceful and restful holiday.

[Miriamn57 in reply to UltimaForsan]

Thankyou for the hope. I will discuss with my doctor