Back to paclitaxel: Well it would seem that the... - My Ovacome

My Ovacome

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Back to paclitaxel

Lockygill profile image
15 Replies

Well it would seem that the cancer is still progressing dispute the GemCarbo. The scan revealed a lesion near my pancreas and some inflamed lymph nodes. They want to start me on a course of Paclitaxel. I’ve always been so positive and now I’m just weepy and upset. Not like me at all....

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Lockygill profile image
Lockygill
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15 Replies
Caroles1 profile image
Caroles1

Hi lovely,

Felt drawn to you because you joined 1st Sept 2014 and that was the day I had my de baulking op.

I know how you feel and I would feel the same if I had a re occurrence, but if you really think about it there is no option but to pick yourself up and carry on, otherwise what would you do?

Life is precious and you never know if the next treatment is the successful one.

There is nothing wrong in being weepy, let alone what life is like at the moment, we all get weepy, it’s a welcome release, better than bottling it up, but don’t weep too long, you need to gather your thoughts for the fight ahead, you can do it girl

😘

Lockygill profile image
Lockygill in reply to Caroles1

Thank you Carole. The tears seem to come out of the blue x

Caroles1 profile image
Caroles1 in reply to Lockygill

I think tears do these days, let alone what you are going through.Do you have good support? Otherwise speak to the advisors on here or someone you can offload to. A re occurance must be awful, but you have dealt oc before, you can do it again.

Allow yourself this time to have a little weep because of shock, get it out of your system but then (if you need help, get it from professionals) get a positive mindset and get your fighting pants on.

Let us know how you get on, p.m.me if you want to

😘

delia2 profile image
delia2

Don’t feel bad about the tears. It’s a sh-t situation. Maybe you should look for a trial or non-chemo maintenance. Take care of yourself! Hugs.

AlaNtO profile image
AlaNtO

Be sure your Onc does a BP test, weight check and bllods each and every time just before the infusions. Your dosage depends on these factors and if ignored you could get overdosed. The taxols do work well but like all chemo drugs we can build uo resistance to them, or rather the cancer cells may build resistance to them. When you reach a sticking point get your Onc to review and change.

DouglasPouch profile image
DouglasPouch

Being tearful and upset is totally appropriate! It would be strange if you didn’t feel upset and anxious and scared. I have found myself extremely upset after each reoccurrence. But then life takes over and I move on - but the sadness and anxiety isn’t too far away. I am a determined and ‘positive’ person but that doesn’t mean (for me) trying to keep the feelings away. Faced with disease and death is tough. That doesn’t mean you won’t have lots of other feelings too. Please don’t give yourself a hard time for being upset. Good luck with the Taxol. Jane x

Lockygill profile image
Lockygill in reply to DouglasPouch

Thank you x

SUE7777 profile image
SUE7777

Hi baby,

I'm in the same boat and only just at the last part of first line. Let it all hang out it'll make you feel better and have a look at this link there may be information that can help.

ovacome.org.uk/webinar-reco...

Sending you a huge bear hug. Sue xx

Caleda4 profile image
Caleda4

Hi, I do feel for you and once I get my CT scan I maybe in a similar position. Although my .ca 125 has gone down to 29 I still have this feeling that ther will be something else lurking around. It is difficult to be positive.

You will come through this as you have before,but I totally understand where you are coming from.

I wish you luck with the taxol. Stay safe nd let us know how you get on.

Caleda x

Broader profile image
Broader

Hello

Isn’t life a bitch ! It’s hard to stay positive when the knock backs come.

I went on carbo / Caylex in Jan did 4 it made me so poorly and it didn’t work so put on taxol in June to sept .... it worked !

Now on Letrozole maintenance hoping to get 6 to 9 months off treatment.... I was where you are now So take heart, don’t be defeated yet.

Have a good cry, it will do you good after such a blow.

Then chin up, onwards and upwards, you are stronger than you know. We are all rooting for you.

Big hug coming your way

Wishing you well

Christine x

fendweller profile image
fendweller

You've every right to be upset , cry ,scream rage beat up a cushion or two ,but then you'll get on with it ,cause that's what we do ,sending love and hugs.

Xxx Cheryl .

Ruebacelle profile image
Ruebacelle

Dont worry. Carbogem didnt work for me either neither did caelyx but taxol did. Hang in there stay strong

Lockygill profile image
Lockygill in reply to Ruebacelle

Thank you that’s good to know x

It’s better to let those feelings out I reckon. I often feel better after a cry.

All the best for your next treatment - really hope you go back into remission 🙏🏽

Be kind to yourself please xx

Maus123 profile image
Maus123

I can imagine you feel defeated right now, but hope the uplifting news from the ladies here helps you breathe more easily again. Wishing you luck with Taxol! xx. Maus

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