Diagnosis still not conclusive: I've had a small... - My Ovacome

My Ovacome

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Diagnosis still not conclusive

Annie2609 profile image
10 Replies

I've had a small mildly complex cyst, with 2 solid nodules, and a diameter of 1.9 cm for many years (possible 10??). After repeated ultrasounds, and 2 CA-125 - first slighly raised and second normal, the doctor recommends to do surgery to remove it. She says my risk of having cancer is still low. However, having some other health problems, I cannot decide about the surgery as I'm not sure it outweighs the risks for me. My question is if you had such small cysts which were identified as malign? I would expect if it was cancer to have grown a bit faster.. but only in the last year, after 3 ultrasounds, the size remains the same. I'm puzzled..

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Annie2609
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N-A-58 profile image
N-A-58

In short get the surgery. My mums stage 3 cancer was not seen on 3 ultrasounds and a ct scan. It was wide spread when they went in and she had two operations within 2 weeks.

Have it done and get it out. Not wanting to sound harsh here but it’s not worth the risk.

Annie2609 profile image
Annie2609 in reply to N-A-58

Thanks for your feedback. If I may ask, what was seen on the ultrasounds. Did they see a cyst or just nothing?

N-A-58 profile image
N-A-58 in reply to Annie2609

They same a simple cyst. Was actually referred back to her GP by the private consultant we saw and paid for. Her nhs one offered her quarterly bloods ca125, or removal of ovaries incase. Stage 3A eventually.

If it’s laparoscopic surgery, the recovery time is very quick.

I don’t want to sound all doom and gloom but I wouldn’t want any other women to go through what my mum has if she can help it.

Georgiatec profile image
Georgiatec

Morning Annie x

Have they discussed taking a sample from the node?

Good luck xx

Annie2609 profile image
Annie2609 in reply to Georgiatec

My understanding is the only way to take a sample is to have the laparoscopic procedure.

SUE7777 profile image
SUE7777

High grade grows fast, low grade grows slowly. Surgery will confirm but the thing can mutate. From where I'm standing have the Surgery and all the best with it. Sue xx

delia2 profile image
delia2

Please get it removed. Ovarian cancer is nothing to fool around with. I may have had mine for 8-10 years but then it suddenly started spreading. It was 7 cm and I am stage 3b. Interestingly my daughter just had a preventive hysterectomy and removal of ovaries and tubes and she had a benign cyst that was in the same location as my malignant one. I think she dodged a bullet. I hope yours is benign but better safe than sorry!🌻🌻🌻

Annie2609 profile image
Annie2609 in reply to delia2

How old is your daughter?

delia2 profile image
delia2 in reply to Annie2609

49

csewsandskis profile image
csewsandskis

I was diagnosed in January 2019 with supposedly a small cyst on one ovary (1cm) and a slightly larger one on the other (about 2.5cm). Was told they’d be benign (NHS) and best to monitor. Saw a private consultant and he was more worried so I opted for laparoscopic removal in April 19. It turned out they were Borderline Ovarian Tumours and had also spread to peritoneum (so stage 3C). Had debulking surgery in June 19. I’m so glad I opted for removal as I feel like I was a ticking time bomb.

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