Would you rather...: Hi Ladies, I haven't... - My Ovacome

My Ovacome

17,746 members19,983 posts

Would you rather...

4 Replies

Hi Ladies, I haven't written much on this site but visit frequently and follow each and every one of you as you live with this dreaded disease. You have strength and clarity that I've not yet found and you have inspired me much these past few years.

I've been blessed to have been in remission for more than a year. With my CA125 levels rising consistently all of last year, and with several interim scans, I felt I was headed toward a recurrence, but scans did not turn up any cancer so I was uncertain. The results of my latest scan just came in and now I'm certain - my cancer has returned.

I have choices to make now about how to move forward and have been reading your posts about your experiences. Thank you for sharing so openly. I've also been speaking with my friend (Almalyffe) and a former member of this group. She faced a similar situation just recently and after our chat, posted a wonderful little ditty on her blog mycancerconfessions.com about the choices we all must make.

It was just so insightful I wanted to offer it to those who may be facing a similar choice in how to move forward or those who feel they soon may be. I hope you enjoy it.

And I hope to write more here as I go through my journey so that perhaps I can be of help to others as you have been to me.

Many Thanks and Best Wishes to all.

Sue

4 Replies
js53 profile image
js53

Hi Sue. Thank you so much for sharing your friend's (Almalyffe) link to mycancerconfessions.com. She totally nails the feelings about ovarian cancer that are hard to share with family and friends. So I will show her inspirational words to those close to me.

I have stage 3C ovarian cancer and have had the debulking surgery and 18 weeks of chemo and now on 3 weekly Avastin only maintenance. I am trying to maintain a normal life but get tired and still have lack of taste and smell and neuropathy in my feet. My hair is growing back so on the outside I look pretty healthy....but the inside demons persist with the unknown and the possibility of a recurrence. Some think I am cured, yet my oncologist has yet to use the word remission. I feel I am that porcupine in the balloon factory.....

Many thanks for sharing.

Best wishes from Adelaide, Australia

delia2 profile image
delia2

Dear Sue,

Thanks for posting the link to Almalyffe’s blog and also about yourself. I really enjoyed her blog and I look forward to an update on your situation.🌻🌻🌻

Hi Sue, thank you for sharing this with us. Hearing about what others are going through is always a useful learning experience. I’m sending you strength and hugs and good wishes at this difficult time.

Anne 🤗🤗🤗🤗🤗🤗 😘😘😘

SASSY196 profile image
SASSY196

Your friend writes powerfully. I am very sorry that you have to make choices. I hope that whatever your plan things go as well as they can xxx

You may also like...

What would you like to say to MPs?

in the year. From a personal perspective, I also want to talk about how much Ovarian cancer is a...

Would you have the ovary removed?

CA-125 is normal. I have been told it is an inactive ovary and that the ovary would have changed...

Would some of you lovely ladies share you stories with me so I can show my mum she will be fine?

My mum has been diagnosed with OC, they are thinking stage 3c. If some of you could give me your...

Has anyone experience of weekly rather than 3 weekly chemo sessions?

I have been diagnosed with Stage 3C ovarian cancer, after finding a smallish lump in my tum in July,

would like some reassurance please!

the CA125 levels? I understand this question may come across a little selfish given some of you...