Just saying Hi!

[Lolotango]

Just wanted to say hi to the group.

[Flower2011]

And hello to you.

[Lolotango in reply to Flower2011]

Looking to gain some useful information and lots of positive energy and prayers for everyone.

[Newbie_2020]

Hello with all best wishes

[Lolotango in reply to Newbie_2020]

Looking to gain some useful information and lots of positive energy and prayers for everyone

[Hidden]

🙋‍♀️

[Lolotango in reply to Hidden]

Looking to gain some useful information and lots of positive energy and prayers for everyone

[Cropcrop]

Hi lovely lady ❤️Xx Jane

[Lolotango in reply to Cropcrop]

Looking to gain some useful information and lots of positive energy and prayers for everyone

[Emma-Jane87]

Hello to you too xxx

[Lolotango in reply to Emma-Jane87]

Looking to gain some useful information and lots of positive energy and prayers for everyone

[Katmal-UK]

Hinand welcome to the Forum xx

[Lindaura]

Hello, Lolo,

Welcome to the site.

I read your profile. What a shame they could not continue that second surgery!

But hopefully, your PARP work mightily..

Here in the U.K. , we usually have Carbo and Caelyx (Doxil) for our first recurrence and PARPS are usually a maintenance drug.

Hope it keeps you safe,

Best wishes,

Laura

[LittleSan]

Hello and welcome 😘💐

[Mumsie13]

Hello and welcome to the forum,

[LesleyGB]

Hello and welcome - there is so much information and support available on this site so make use of it!

Lesley

x

[Frenchhouse3]

Hi there, welcome to this great forum, you’ll find lots of useful info and support on here.

I’m on Olaparib too, had issues with sickness and diarrhoea but these have settled more now, though I still get some days with it. I’m currently quite anaemic but hopefully will get my dose lowered.

Wishing you all the best with your treatment.

Love Denise xxxxx

[Panther17]

Hi there. Hope you are feeling better. Ive had all my surgery , chemo, 3 fluid removals and drains this year. Im on Lynparza. My O.C. was genetic and I carry the Brac1 and 2. A year and a half ago I was seeing friends doing things. Very exhausted and with the pandemic I have to be so careful with my immune system compromised. Hair growing back very slowly and curly brown and gray. I had long straight blonde hair. I pray for all of us. ❤

[Lolotango]

I just stopped Lynparza after 12 weeks, had to have 2 blood transfusions and area of Oc on liver not responding. Also very fatigued to the point that all I did was move from inside chair to outside chairs, not like me at all. So onto a clinical trial, bloodwork Completed yesterday and chemo part starts Aug 11. I also will be monitored with a machine that I carry with me 18 hrs a day if I get that part of the study. Will know by end of week. Staying hopeful!

[Panther17 in reply to Lolotango]

Yes the exhaustion is beyond words. Nobody can understand it unless they are on the Parp. Im so sorry that you are going thru so much. What kind of monitor will you have? I never heard of that. Also your clinical trial. We have all been thru so much. Time for a break. I wish you all the best of luck. Sending healing hugs and love.💖

[Lolotango in reply to Panther17]

Hello, no longer doing trial, they wanted someone with reoccurrences 6 months or less. I had first recurrence after 9 months and 2nd recurrence after 1 year. So now back to chemo again. Going to do Carbo and taxol again and if that doesn’t do it, always had good results last 2 times, going to use something else. Just frustrated that I missed 4 weeks preparing for the trial and then have it switched.

The monitor I would have worn would have been for 18 hrs a day and it would send tif fields (electronic fields) to cancer cells and break up in addition to being on paclittaxol.

Here is the info:

clinicaltrials.gov/ct2/show...