Preliminary CT Results????

[yo207]

Hi everyone. I just spoke to my oncologist about CT scan results. She told me it was good and it looked like the area of my pelvic lymph nodes had shrunk but she did not have the exact measurements yet. I was very happy but just before I hung up she mentioned that they saw something on my lung but sometimes that happens. I almost fell off my chair!! I asked if I should be worried about the lung issue and she said no. How can I not be concerned? I am presently on a clinical trial which includes immunotherapy and olaparib for three months. Trying not to freak out here as I have been very depressed and anxious with the coronavirus issue. Any help are similar experience is appreciated. I sometimes feel like these doctors don’t tell you how concerned you should be. Thank you. God bless us all!

[Lyndy]

This happened to me at the end of my first line. They said all clear and then mentioned nodules in my lung ‘but they weren’t doing anything’. It was true... they were dormant for more than 4 years. Try not to worry xx

[Kasiunia]

Hi Yo207

I don't know if any of that will make you feel a bit less concerned, but I also had a nodule spotted on my lung, alongside my st scan, where I had tumors found on both ovaries, some suspicious spotting in the pelvic area and a nodule on my lung.

It did not look or sound good. It was 2 years ago. Surgery and frozen section confirmed borderline ovarian cancer but there was nothing else found. Tumors and ovary removed . The spotting was just an irritation caused by huge tumors. then waiting to follow up scan of my lung, that showed nodule disappeared. My Dr at that time was really reassuring saying they very often spot some nodules in the lungs that are very often unrelated and can simply be caused by illnesses that you go through like chest infections. Which proved to be the case for me.

[yo207 in reply to Kasiunia]

Thank you for your response. I am not freaking out. I have to hang in there and try not to make myself crazy. Take care.

[bamboo89]

I wouldn't worry about the lung nodules - I have one or two in my lungs, though they were only mentioned to me a year ago after I saw a CT scan report which said 'lung nodules unchanged' and asked about them , so I didn't even know they were there initially,nor do I know how long they've been there. The assumption is they're not anything to do with the OC, they were just there anyway., so they just monitor them when they do scans to make sure they don't get any bigger. The thing about CT scans is they can't always tell whether something is cancer or not if its just a tiny nodule, and if you've ever had any chest infections (most people have during their lives) that can cause them.

Lucky you, though, being on a trial - can I ask what the immunotherapy drug is and whether you notice any side effects from it? And are you in the UK or elsewhere - I was told immunotherapy drugs aren't available here yet, but its looking like they make the PARP inhibitors more effective at keeping the cancer at bay., so if you're in the UK and on a trial, that's hopeful news for the rest of us....and you!

Miriam

[yo207 in reply to bamboo89]

Hi Miriam and thank you for your response. I live in the US and I’m being treated at Memorial Sloan Kettering. The immunotherapy drug is called tremelimumab. It is combined with olaparib pills twice a day. I have only been in the trial for four months. The good news is that it seems to be working because the cancer did shrink in two of the three areas and one area was not seen at all. The bad news is that I’ve had several issues with the trial including bad anemia requiring a transfusion, some kidney function issues and of late stomach issues but all have been tolerable. Hopefully these treatments will become available to you soon. Stay well. Thank you!🙏

[bamboo89 in reply to yo207]

I believe anemia is one of the problems with PARP inhibitors anyway, certainly its been mentioned as a risk for me with one of them - thanks for the info, very helpful.

Miriam

[delia2]

I also have a number of lung modules originally discovered when I was diagnosed with OC and they monitor them but they haven’t changed in two years and are not cancer.