Ovarian cancer 3c diagnosed in Jan 2017 joined ... - My Ovacome

My Ovacome

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Ovarian cancer 3c diagnosed in Jan 2017 joined icon 8b trial relapse dec 2018 6 chemo scheduled 5 completed. Started Olaparib May 2010 brca2

Rivervalley1 profile image
5 Replies

. The recurrence was a shock along breast cancer, but they felt the ovarian cancer was more life threatening so started chemo 6 cycles. Only got to five because of neuropathy stage 2. So they started me on Olaparib and scheduled the lumpectomy which I did in August 2019 back on Olaparib tough issues with fatigue reflux and constipation which they said would settle. And it has thank god. I’m on the strongest dose 8 capsule twice a day. Starting to feel normal agin apart from the fatigue but it took 6 months to get here. 2 falls 1 fracture to back. Ca125 13.

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Rivervalley1 profile image
Rivervalley1
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Katmal-UK profile image
Katmal-UK

Wow you have had a time of it. Good luck with the Olaparib, Ive been on it 5 years 11 months and still going strong. I wish the same for you! xx Big Hug, Kathy xx

Rivervalley1 profile image
Rivervalley1 in reply to Katmal-UK

That’s an inspiration to me. Thanks for the positive reply

Lizjj profile image
Lizjj

Hi. Have you been on Olaparib since 2010 and did the recurrence happen while you were Olaparib.? Wishing you all the best..X

Rivervalley1 profile image
Rivervalley1 in reply to Lizjj

Hi my recurrence happened 6 months after I finished chemo ( I was on a trial icon 8b) I have the BRCA 2 gene so after finishing chemo for recurrence I started Olaparib only in May of this year. High hopes for this .

LittleMissStubborn profile image
LittleMissStubborn in reply to Rivervalley1

Hi, I'm sorry that you have had a bad time of it. I'm BRAC2 too and started the ICON9 trial with olaparib and cedirinib just last Friday. I know it's very early days but I'm feeling extremely tired and very sick. I too have very high hopes for these drugs. How have you been feeling on olaparib, do you remember how you felt when you started? Kind hugs x

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