Low Grade OC hope- Trametanib

[Levanah]

This is at last something we can look forward to. The results of the LOGS trial is now being reported on. Around about 8th October we should see a written summary of this but for now ESMO 2019 has revealed what we were waiting for .... scotsman.com/health/edinbur...

[Levanah]

ecancer.org/en/video/8281-o...

[Purple-iris in reply to Levanah]

Thanks for posting, great link and fantastic news.

Let’s hope that NICE and NHS can fast track changes to treatment protocols

Best wishes Kim x

[Lindaura]

That’s really great news. I hope they fast track it for approval!

Thanks for that,

Laura

[Levanah in reply to Lindaura]

You’re welcome Laura. Fingers crossed ! Diane Xx

[Spirit22]

Thank you for sharing looks promising xx

[Artgreen]

What brilliant news! I am feeling a bit more hopeful and I know my oncologist will be interested too. I’ve shared it and look forward to seeing him in December and seeing if the NHS can prescribe it.

Thank you for sharing!

Love

Alex x

[Bev155]

Thank you for sharing.

[thomas62]

Brill news. Lets hope it can get through NICE asap. We low graders need it! Gwen Xx

[Levanah in reply to thomas62]

Ovacome have been amazing .. I emailed them this morning and they have made contact with Novartis the pharma company that supplies Trametanib. I will do all I can to ensure this is accepted by NICE Gwen xxx

[thomas62 in reply to Levanah]

Hi Levanah, Thanks so much - a good job done! Do you know what Ovacome are planning to say to Novartis. Perhaps sell if cheaper than the 9,000. per month that a low grader has just told me. I am off to London tomorrow for admission to Queen Charlotte's for more surgery. Hey Ho here we go (again). Gwen Xx

[Levanah in reply to thomas62]

Oh Gwen, good luck with your surgery dearest Teal Sister. Let us know how you get on when you can but I shall keep you in my thoughts.

Ovacome will be discussing how to make the drug available to low Grade ladies I should imagine. That amount of money is so much !!! I had no idea about that cost . There are compassionate grounds in which to apply too so that shouldn’t be ruled out whilst the drug is being introduced to NICE.

Sending you love

Diane x

[Spirit22 in reply to Levanah]

Well Done Levanah for taking this forward and Overcome Thank you XX

[thomas62]

Hi Diane, Thanks for your good wishes. I will let you know when I can. Thanks for the other info. Also love and best wishes to yourself. Gwen Xx