Julie40: Julie hadn't written much on here... - My Ovacome

My Ovacome

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Julie40

LittleSan profile image
LittleSan
β€’41 Replies

Julie hadn't written much on here recently but she had previously and had done so much to raise the profile of OC awareness. Julie passed peacefully with her lovely family around her on Saturday evening. She was a truly beautiful person who lived much longer than initially expected and lived with grace and tenacity. Despite having multiple treatments throughout 5 years, she raised money to support children in Cambodia and for OC charities. Her capacity for love, friendship and fun (particularly holidays) was immeasurable. I will miss her warm heart more than words can say but feel privileged to have met her.

Sending prayers and all good wishes for strength and peace to Steve and her gorgeous family.

πŸ™β€οΈπŸ’

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LittleSan profile image
LittleSan
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41 Replies
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Katmal-UK profile image
Katmal-UK

Gutted..... I have no other words to express how I feel. A beautiful person inside and out. Fly high dear Julie. You will be missed.....

Condolences to the family xx Kathy xx

LittleSan profile image
LittleSan in reply to Katmal-UK

πŸ˜˜πŸ’

Lyndy profile image
Lyndy

I will miss her ❀️

jools53 profile image
jools53

So sad ! Yet another taken to young to quick 😘 bloody disease πŸ’πŸ’πŸ’

So sorry to hear about Julie. My condolences to her family and friends.

Rest in peace teal angel. πŸ¦‹πŸ•―πŸ™πŸΌ X

Coldethyl profile image
Coldethyl

Guessed it just be that Julie when I saw it on the Facebook forum. So very sad for her and her family . And on a selfish note, all these recent deaths just make bearing this disease that but harder - I asked my husband at the weekend how it is possible to live without hope as the more I learn about this illness the less Hope seems an option to me - thinking of Julie and of us all x

Katmal-UK profile image
Katmal-UK in reply to Coldethyl

Totally get your comment about hope but hope is all we have..... that and the fact that we actually wake up each morning which in itself is a blessing. We seem to be losing so many ladies off the forum lately, doesn't matter we haven't met in person but it matters we feel a kinship because we are going through the same things. I feel extremely sad today as I am sure others do. Think we all need a group hug xx

Tesla_7US profile image
Tesla_7US in reply to Katmal-UK

Sad. Yes. Again. Without hope, I'd just sit down and die now. Hope allows me to push this monster out of my mind for awhile so I can enjoy the HERE and NOW. The mind/body connection is powerful. I'm just going to go on imagining I'm cured until I hear otherwise. And yes, I've got many permanent side effects from surgeries and chemo that have profoundly altered my every day living. I just figure as long as my quality of life allows me to enjoy my family, that's good enough for me. Thank you for posting consistently and with compassion. You make me think I can do this! With love and hugs, T

LittleSan profile image
LittleSan in reply to Coldethyl

I find it really hard too but there is definitely hope. My mum never recurred. Julie was given six weeks to live exactly 5 years ago and lived an amazingly full life up to a few months ago. Big hugs all round. Julie used to find losses hard but dusted herself down and lived life to the max. Xxxx

Coldethyl profile image
Coldethyl in reply to LittleSan

That’s all we can do I’m on wait and wait ( can’t say watch as so far nowt to see just elevated markers ) and the endless surveillance is affecting my well being enormously - I am on 3m scans and I tried to explain it to my husband by likening it to the scene in the deerhunter when Christopher Walken’s character plays Russian roulette - he new registrar hasn’t helped as last appointment he kept banging on about when and what chemo - my previous one had been much less in your face and that suited me better - somedays I’m fine but the recent spate of deaths has shaken my pragmatic equilibrium x

Superkim profile image
Superkim in reply to Coldethyl

I think we're all quite lucky, actually. No one knows how much time they have. Think of all those passengers on the two 737 flights. Do you think they had any idea those moments would be their last?

We are extremely fortunate to be in a place where we have good doctors, and options, and amazing support.

I feel sorry for anyone who can't recognize that.

This thread is for expressing sadness for a lovely woman lost and supporting the people who knew and cherished her. It's not a place for self pity.

March2017 profile image
March2017

So so sad, thinking of her family at this time πŸ’ž

Lindaura profile image
Lindaura

I never knew Julie, as she mostly did not post during my entrance onto this forum, but I went back to read her history and past posts.

She was SO very young and it hurts that she will not see her children grow up and they will not have their mum.

I lost my father when I was 12 and it took me about 20 years to stop crying when I thought about him.

Losing so many beautiful and hopeful women in the past six months is tragic, as well as terrifying for the rest of us, who are fighting for our lives.

When I was struck down, I did not believe I was fighting.

So sick, I merely submitted to treatment,

But as soon as I began to recover, I began to actually fight- by researching and joining this forum.

I just hope we can all live to fight on.

Hugs to all of you,

Laura

julia8163 profile image
julia8163

Deepest sympathy to her family.

gmc920 profile image
gmc920

Sending love, strength and condolences to Julie’s family and friends and everyone on this forum.

xx Gina

January-2016-UK profile image
January-2016-UK

So sad. So very sad. She will be missed.

Maus123 profile image
Maus123

Gutted. I had missed Julie's posts of late. She was always so kind and motivated, despite running (or sometimes crawling) the gauntlet that is the neverending OC treatment mill. Her pictures always made me imagine a large, very supportive family who were right with her all the way.

I wonder if Julie, Sarah, Lily-Anne and the others are raising a mug of something, wherever they are. We certainly do, in their name. Here's to you, ladies past and present.

My thoughts are with her family.

Thank you Sandra. And... How are you getting on with the new treatment? Hope side effects are bearable and hair under control. xx

Maus

LittleSan profile image
LittleSan in reply to Maus123

I've not started my new treatment yet because I have to wait for 4 weeks from finishing Niraparib. I've just signed the consent forms today for the CEBOC Trial. I'm on a low residue diet and coping OK on that. My tum seems to be getting bigger by the minute but the pain is relieved with just paracetamol so I'm doing OK.

I'm sure Julie and all will be cheering us all on (especially with our other friend Debs - Dolly's Mum). Cheers to all our lovely friends whose physical presence we no longer have but whose support remains with us.

How you doing Maus?

πŸ’πŸ’– Xx

Maus123 profile image
Maus123 in reply to LittleSan

Fingers crossed then. Hopefully the treatment will get rid of that belly.

I remember when I was already unknowingly riddled with 10 liters of Ascites shortly before my diagnosis, and boarded a Ryanair plane, only to be asked 'Excuse me, are you pregnant? You won't be able to sit in an exit row then.' - Say whaat?

I'm plodding on, Sandra. Still on Avastin and Letrozole. Not technically NED because my marker is still high, but when it was last taken in March, it was at the lowest since records began (that is, at my diagnosis) - 77. So, annoying exhaustion be d**ned... I'll keep going this way since it seems to be working in a way. Hugs, Maus

LittleSan profile image
LittleSan in reply to Maus123

Arghhh I'll bet the pregnancy comment stung. I'm fortunately too old for folk to make that mistake.

Even the maintenance stuff takes its toll eh? I was on Avastin for 3 years and it was pretty tough at times. Served me well though. Bought me 3 and half years chemo free.

Keep on keeping on. πŸ’πŸ˜˜

ShropshireJo profile image
ShropshireJo

Such sad news. My deepest sympathy to her family and friends Jo 🌹

Orsolini profile image
Orsolini

Heartbreaking. I’m so sorry. Condolences to her family. But given the prognosis I see above she did brilliantly. Nicola x

Kakabud profile image
Kakabud

Is this Julie from northern Ireland?

LittleSan profile image
LittleSan in reply to Kakabud

Yes it is. X

Kakabud profile image
Kakabud in reply to LittleSan

So sorry to hear this news! I had been in contact with Julie on this forum just a few months back. I am also from northern Ireland. I was enquiring about her treatment in Manchester. My mother was just 59 and had stage 4b. Julie was so nice and took the time to respond to me. My mother passed away just 5 and half months after diagnosis. Julie sent me a lovely post when she heard. My thoughts are with her family. Such a difficult time! All these ladies gone way too soon. Still hard to believe when someone you love so much is just gone. May they all rest in peace x

LittleSan profile image
LittleSan in reply to Kakabud

Unfortunately, this damned disease seems to affect the most lovely people. Julie was one of the most warm and remarkable people I've ever known. Even in her last few weeks when she was poorly, she found time to text support and encouragement. Such a star. Big hugs to you. I worry about my girls and all they're going through with me not being well. Xx

Kakabud profile image
Kakabud in reply to LittleSan

You sound like my Mammy! Always thinking of her girlsπŸ’“

LittleSan profile image
LittleSan in reply to Kakabud

πŸ’–πŸ’–πŸ’–πŸ˜˜

CallmeMum profile image
CallmeMum

So many lovely ladies getting taken by this disease lately! I hope one day a cure is found for this! May Julie Rest In Peace xxxx

So very sad, a lovely lady. Condolences to her family.

Julie is one of the first ladies I remember on this wonderful forum. Her kindness and positivity gave me hope that you could live with this disease and not lose yourself.

My thoughts go out to her family and friends and to all of you wonderful people who like her take time to answer messages and show compassion.

These wonderful women may have left us but their impact on me has been hugely positive and lasting.

XxX

LittleSan profile image
LittleSan in reply to

πŸ’–πŸ’–πŸ’

Purple-iris profile image
Purple-iris

Heartbreaking to hear of Julie passing. She was a great inspiration to me when I first joined the forum and I was hoping and praying that she was well.

Sending sincere condolences to her beautiful family and friends.

So many beautiful women lost to this disease before their time. So so sad.

I was doing a β€˜walk in her name’ with OCA for all our Teal Angels on Sunday morning and especially for Lily-Ann, Harpist , Sarah, Suzanne and Debs and had included their names with others on a memory wall.

So sad to now learn that Julie passed on Sunday morning especially as Mothering Sunday. πŸ’œ

Sending you a big hug Littlesan.

Love Kim x

LittleSan profile image
LittleSan in reply to Purple-iris

Thank you Kim. Co gratulations on the walk πŸ‘πŸ»πŸ’

Btte profile image
Btte

Rest in peace sweet Julie, my thoughts and prayers are with her family and friends . Love Bridie

marylondon profile image
marylondon

Heartfelt condolences to her lovely family .πŸ’πŸ₯€πŸŒΊ

Cropcrop profile image
Cropcrop

This is so sad, another lovely lady taken too soon and much much too young. I am so sorry for her family especially her young children now without their mum. Fly high lovely Julie πŸ˜”πŸ¦‹ ❀️Xx Jane

ellseybellsey profile image
ellseybellsey

So sad to hear this news, condolences to all her family and friends. Fly high teal sister πŸ¦‹πŸ¦‹πŸ¦‹

Ellsey

IrishMollyO profile image
IrishMollyO

I'm so sad to hear about Julie. She was kind and helpful to me whenever I put up a post looking for advice and I'm sure many other women had the same experience. She will be sorely missed. My condolences to her family.

X X

πŸ’šπŸ’•.

πŸ˜’πŸ’•πŸ•ŠπŸŒˆβ­οΈ

May she be at eternal peace

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