Reacurrance

[izzybruce]

Has anyone on here,never had a reacurrance,after first line treatment,and how long have you been NED xx

[Purple-iris]

Hi

Count my lucky stars each day but so far NED. Diagnosed stage 4 and initially inoperable June 2016 but had radicle de bulking after 4 th chemo.

Finished chemo End Jan 2017, (Finished Avastin End Jan 2018 )

Am monitored with 3 monthly CA125 as mine is a good measure.

Feel very fortunate to even still be here so try and make the most of each day and manage the fear of recurrence that’s always there but not always easy.

Love and best wishes Kim x💜

[izzybruce in reply to Purple-iris]

I know what you mean, mostly I put it out of my mind, just hit me today,so pleased for you, it's nice to hear positive outcomes xx

[Caleda4]

Hi Izzy,

I had my total hysterectomy in November 2015,followed by 4 days of 6-7mins of brachytherapy. I have been NED since then,thankfully. I was diagnosed stage 2 high grade 3 serous,endometrial & also cells found in one fallopian tube & this is classed as ovarian for treatment.

I consider myself exceptionally lucky so far & value each day & have never become complacent, knowing that probably sometime in the future it will probably return.

I did think when I was diagnosed before the op. that I would not see the first Xmas,and as we travelled to Cardiff hospital from our home I looked at the fantastic autumn colours across the Brecon Beacons & thought that this will be last time I see all this. Anyway to my astonishment I am still here & I am 74.

I wish you luck with your future & that you will value each day.

Caleda.xx

[izzybruce in reply to Caleda4]

That's amazing, life is wonderful xd

[Petrolhead]

Hi Izzy

A question we would all like to know really. However, you must consider that your type- mucinous- acts differently to other types of epithelial types of OC. So whilst replies from the forum are extremely interesting and can be reassuring- as we all say “everyone is different “ and those ladies with mucinous even more so.

Also very often those ladies (or their interested parties) who do not recur or have been in remission for some time may well have left the forum. Some do pop in from time to time but this means that your replies may well be skewed.

Saying that any stories of NED and remissions are very welcome. 😄

Best wishes

Fay

[izzybruce]

Does this mean that muchinous types return xx

[Petrolhead in reply to izzybruce]

Hi Izzy

Very often mucinous is found early (often stage 1) so chances of remission is often greater. But everyone is different and if mucinous does recur it can be more difficult to treat as there is a lot of resistance to the usual drug combo - can be 70%.

This is a disease that is so unpredictable and so makes treatments and forecasts very difficult if not impossible.

Best wishes

Fay

[izzybruce in reply to Petrolhead]

Thanks fay, here is hoping you stay in remission xx

[Petrolhead in reply to izzybruce]

Cheers for that. 👍

Fay

[grammeejill]

Hi Izzy! 3.5 years no recurrence for OC 3B. Had taxol/carbo for first-line. 2 IV, 4 IP. CA125 at 6.5. It happens! Just had an appt yesterday and all is well.

[izzybruce]

So happy for you Long may it continue x

[27-359]

Hi. So far, so good. I finished chemo in October 2016, and Avastin in August 2017. I have been well since then, but to be honest, expect to hear the worst at every check up!

Jenny

[izzybruce in reply to 27-359]

I know it's the new norm now, hoping for the best every three months xx

[Lizjj]

Hi Izzy...Braca 2 positive...diag. 2012..stage 4. After debulk and chemo...NED...lived life freely...worked and travelled hard for almost 6 yrs...last ca 125 I had done end of 2016 and that was 10 as usual, so I continued living my life with no check ups at all until june 2018 when ca 125 was 128 and OC had returned...Almost 6 yrs of free living and that I am grateful for. At the time I did not know that I was BRACA pos. Now i am on Olaparib ...just started recently. Wishing you all the best...X

[izzybruce in reply to Lizjj]

Wishing you all the best to and that your treatment is successful xx

[Trathi]

Hi izzybruce, Sorry misread the note. I thought you wanted to know when recurrence happened. I was ayear in remission when it came back. Lots of love 💕 hugs 🤗 and positive thoughts xx

[izzybruce in reply to Trathi]

Thanks for your reply, hope they can sort you out, hope you go back into a very long remission xxx

[Trathi in reply to izzybruce]

Thanks xx

[ARamage]

Hi Izzy,

Like some of the others, I believe each diagnosis is different but there is encouragement and hope in sharing out stories of how we battle this horrible disease. I was diagnosed with Stage 2 endometrioid ovarian cancer July 2016. I had six rounds of taxol/carbo. Three of those were IP "belly washes." (Eighteen treatments all together) I was able to complete about three months of maintenance (once a week lower dosage of taxol) but had to stop because I became toxic. I have been NED since diagnosis and my debunking operation. I've returned to normal activities; but, of course, I'm slower and become tired when it comes to physical exercise, etc. Still, I count each day as a blessing. I tell others: "I'm vertical, I'm here, and that's a good thing!" Enjoy each day—especially the little things—to the fullest. Wishing you the best. xx

[izzybruce in reply to ARamage]

I know it's the little things, I appreciate everything now, though I am slower to, sending you the very best xxx

[Entito]

Hey Izzy, I was diagnosed Dec 2012, high grade serous 3c, finishing chemo June 2013. I have been in remission ever since and am also BRCA2. I have 6 monthly check ups. I wish you well.

[izzybruce in reply to Entito]

Long may your remission continue sending hugs xxx

[Entito]

Thank you!

[Grace123]

Hi Izzy I was diagnosed with 1c3 (clear cell carcinoma) and had a total hysterectomy in November 2015. I had 5 of the 6 rounds of carbo-taxol (just couldn't face a 6th, and as most people said the first few rounds are the most important and only 8% of women with my diagnosis benefit from chemo, I decided 5 was enough). I've been fine ever since, though have had a few scares which have turned out to be IBS! Like others have said on hear, I feel so grateful to be alive and healthy, and know that this disease seems to have little rhyme or reason - so just trying to keep as healthy as I can without being neurotic, and as grateful as I can for all I have. Wishing you the very best - long may your remission continue xxx

[izzybruce]

Thanks Grace, that's great for you, long may it continue,I also feel grateful, but get the odd day, but too hear so many positive response from all the ladies on here is a good thing, after all the sad news xxx