Hi all, last time I posted, I mentioned my mom's CA-125 going from a low of 6, to an astounding 2,512 in just five weeks time. That was 2 weeks ago. She just had a CT scan done on Monday, and I've been going through torture waiting to hear back, and they just called to say...
"There is no recurrence"
I couldn't believe my ears really. For the last two weeks I've been losing sleep, worrying about my mom having a 2nd recurrence just 5 months after her first one. I had completely convinced myself that she had to have recurred with numbers like that, and feeling gutted thinking she'd have to go back on Chemo during the holidays, so this news almost feels like a miracle. They attribute the rise in numbers to possible inflammation from her abdominal hernia.
My mom, God bless her, never worried for a minute. She never does. It's like all her worrying gets absorbed by me. And on that note, reading the CT scan, there's still some things that concerns my cynical side, namely a trace amount of pericardial fluid, and trace pelvic fluid, BUT I just have to tell myself that her GYN/Oncologist, and NP said no recurrence, and leave it at that!
So I think it's safe for to finally exhale, and start looking forward to Christmas and my B-day (12/27) without that shadow hovering right over me. I'm going to do my best to make sure we have a great time together.
I want to thank all the amazing people on here for your continued support. You really do keep people like me sane (or as close as possible).
-Michael
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ssjmichael
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So happy for you and your Mom, Michael. That's great news. Now you can RELAX - yippee!! There's a lesson for us all in your worry. We shouldn't fixate on our Ca125 numbers quite so much. Something most of us do. There can be other reasons for high readings 👏
Wishing you an early Merry Christmas and very happy birthday. 🍾🎁🍺💐
Thank you all for your kind words and support. While I am very relieved that my mom doesn't have to go back on chemo during the holiday season, I do understand that a rising CA-125 often means something is going on, even if a scan is relatively clear. It's possible that something could show up on the scan in a month or two.
The rise from 6 to 2,512 seems almost unprecedented to me. I personally haven't read anyone who had such a huge jump in such a short period of time. She gets her CA-125 checked again sometime after Christmas, so I suppose we'll know more then. I'm praying it was just some crazy anomaly or something since nothing has really changed with her otherwise, and her numbers were steadily going down every 5 weeks.
But for now, I have to listen to the doctors, and understand that right now there is no recurrence, and enjoy this time to the fullest. Me being a full-time worrier (a true Capricorn lol), that's not always easy.
Hi. What a brilliant birthday/Christmas present for you! I’m not surprised though that you’re finding it hard not to worry. You’ve been on a very long rollercoaster ride and it will take a little while for you to regain your equilibrium. Best wishes for a happy birthday and a good Christmas. Jo 🌺🌸🥂🎂🌲
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