OCTOVA TRIAL

[Colman]

Hi everyone.

I have been into clinic today for my CT results and it is as I thought the bugger is back. I finished chemo in August carbo taxol for my second reacurrance. I wasn't really sure on my options before o got there. I had the usual going round my head 12 to 18 months. I really need to stop thinking that every time I go to the hospital. I'm normally very positive in my day to day life living with cancer. Well I have been offered a place on a trial called OCTOVA and was wondering if anyone else has any info input on this trial? I have just got to have a kideny function test as the cancer is on my tubes that lead to the kideny and if all is good I'm on. I'm not sure how difficult it is to get on trials but I feel rather lucky in some way. 😀

Thanks Claire

[Cropcrop]

Hi Claire,

I’m sorry the bugger is back it’s rotten but it’s good there is a trial you can take part in fingers crossed for the kidney function tests. I took part in a trial in 2014, they are often randomised and there are certain requirements for each one. I can’t give any info on the one you’ve mentioned, I’ve looked it up but can’t really offer any advice. I would say though that when on a trial you get monitored really closely, I was checked every week and found it really reassuring.

I hope you’re able to qualify for the trial if it’s what you want and that it gives good results. If you don’t qualify then I’m sure there will be other options for you. Keep strong lovely, love and hugs ❤️Xx Jane

[Colman in reply to Cropcrop]

Thanks Jane I will find out Monday if kideny function is ok. They mentioned something about putting stents in. As usual I can't remember everything she told me. Haha

[Petrolhead]

I do not have any useful information but wanted to wish you the best re your kidney test and your chances of getting on the trial 🤞

Fay

[Colman in reply to Petrolhead]

Thanks Fay x

[Lindaura]

This might help:

google.co.uk/search?q=Octov...

Or this:

oncologypro.esmo.org/Meetin...

I hope you get on the trial and I hope you get the combo that destroys this evil beast.

I hate to see so many of us suffered and having to make such dire decisions.

Hugs,

Laura

[Colman]

Thanks Laura x

[Phuket]

Hi Colman

I'm new to the forum so you won't have seen me posting before. I am in a very similar position to you and yesterday I was offered the option to apply for the OCTOVA trial. I just wondered if you had any update on your situation? Have you had tests and were you accepted? How do you feel about the trial? I still haven't made up my mind .

[Colman in reply to Phuket]

Hello. I was excepted onto the trial everything was ok regarding bloods and kideny function. I started the trial on Tuesday I got put in the taxol arm 6 weeks of weekly chemo. I feel I had to go for it as I'm not sure I would of had any chance of being offers olaparib which seems to have some good results for a lot of women especially in America they seem to rave about it. My consultant seems very excited about the cediranib tablet to. When I have finished my 6 taxol and still have evdince of disease I will be given one of the other arms. So in some sort of sick way I hope I still have the cancer so I can get the tablets. I hate chemo but I will have to just grin and bare it. I just worry that my options are going to start running out. I hope this helps a little and I will let you know how I get on with it. Let Me know if you decide to go with it.

Take care of yourself

Love Claire