Yikes

[Rlenesue]

Well, I got my bloodwork results today and my CA125 is at 977. Pet scan scheduled for the 29th of November. I was supposed to start the parp on the 3rd of December but now, I dont know. Does anybody have experience with doing the naraparib in lieu of chemo? Or is the nataparib just as effective as chemo?

[Maxjor]

I wish I could give you a definite answer but I can tell you from all I read, that yes, some people are put on PARPs as treatment and others for maintenance (me). I think your oncologist should know, in your particular case whether treatment is possible for its use. There is a site on Facebook called "PARP INHIBITORS, Drugs and Trials" and many members have a variety of experiences. If you are on FB, join the group and ask there as well. Wishing you much luck and that scan results allow you to give it a try! oxoxxo Judy

[Rlenesue in reply to Maxjor]

Thanks for replying to me. We must have read the same articles regarding parp vs chemo. My oncologist definitely wants me to start the parp, just unsure as to when now that my CA125 is up. Will know more on the 3rd. Have a happy Thanksgiving, Judy!

[gmc920]

Hi Rlene, I don’t have an answer to your question, but I just wanted to wish you all the best with your upcoming PET scan, and then optimal timing to start the Parp 😊

xx Gina

[Rlenesue in reply to gmc920]

Thank you, Gina. Life is a roller coaster with cancer. You got fear, ups and downs, and a little curve every now and again. For 11 years I've been on this roller coaster and although I would like the ride to continue, maybe less boy and scary, but I dont want it to end yet. I'm not ready.